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Saturday, November, 14, 2009
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Is it just me

theresag79
theresag79
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theresag79 is Blessed :)

I am a young woman living with MS.  I have a husband...

theresag79

Friday, August 29, 2008
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O.k.  it is going on 1 year since I was diagnosed in Sept 2008.  Is it just me or does anyone else feel like when they are having an exacerbation or relapse that they need to talk about it? Do I want sympathy or just a listening compassionate ear?  

 

I have been having numbness/burning/aching/pain in my lower exetremities.  It has been getting progressively worse over the last couple of months.  Yesterday was the worse it has ever been. The pain from a scale of 1-10, 1 being the least and 10 being the worst, was a 10.  It was so bad it was the only thing I could think about.  It hurt when I lay or sat down, it hurt when I stood to long, it hurt when I walked.  I was shuffling around all day.  And yesterday was open house at my kids schools so I was on my feet visiting teachers. 

When I mentioned it to my mom a couple of times, she completely ignored me like I never said anything.  She didn't acknowledge my pain at all.  She never asked me anything about it or even asked me if I was feeling o.k. at any point in time after knowing how I was feeling or seeing the way I was walking. 

My husband works a night shift, he doesn't get in the door until 1:30 a.m. and then sleeps all day until it's time for him to go to work.  And when we do have a chance to talk the conversation revolves around him 90% of the time.  I said something to him about it but he was so wrapped up in a situation he is dealing with at work that he barley acknowledged it. 

My father is a diabetic and has feet nueropathy, so he understands.  He suggested I take 2 of his prescription 800 mg Ibroprofen.  It didn't even touch the pain.  Today I am a 6 in pain. A much better improvement from yesterday, but still noticeable and still troubling. 

When I was diagnosed, I was told that I have RRMS, like I am sure many others are told.  From what I understand with RRMS you have remmisions where you are symptom free or pain free and relapses. Well I have never had a full remission.  My symptoms have always been there and are getting worse.  Sometimes I wondered if I have already begun the next level of MS, secondary progressive MS. I mean things are very stressful right now. And I can't get away from the stress, I can only deal with it and remember that I am blessed but it doesn't make the stress go away. Could this stress have pushed me over to the next MS phase?

 I know if I am going to get any advice on this it will be I need to discuss these symptoms and feelings with my nuerologist.  But I don't have any insurance and right now I can't even afford to go to the clinic. I am not taking any drug therapy and even though I was diagnosed in 07, I have been having symptoms since 01.  And I know there is no use in complaining if I am not going to go to the doctor to check it out.  I just needed to let it out somewhere (this website) where I knew others would understand. 

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