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Monday, November, 23, 2009
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Lost in Limboland

Lady In Limbo
Lady In Limbo
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Have all the symptoms....no diagnosis!

Lady In Limbo

Saturday, August 15, 2009
View All of Lady In Limbo's Posts
Hi everyone, I'm new to this sight.  I feel like I can't "talk" about my symptoms anymore, because I feel like at this point everyone has tuned me out.  Two months ago, I was supporting my family of four with my career, I haven't worked since, might lose my job because I've used up all of ...
  1. Untitled Comment
    Jeannette Elsner
    Saturday, August 15, 2009 at 12:47 PM

    You must move forward and focus on your abilities.You clearly are an in touch,intelligent woman.Loss,if productively expressed through a modality fulfilling to you can be emotionally enriching.Having MS and experiencing the full range of problems,puts me in a place of gratitude.When I fall,I arise,provided I haven't seriously injured myself and move on.It's so powerful and satisfying to be "in charge"when we feel  a pervasive sense of loss.I know loss and strive to gain strength by being in a place with people I trust and love.I read with difficulty,in view of optic neuritis,work out,go to the movies......take care of myself,as should you.I hope this helps you.

    Jeannette

     

    Reply
    re: Untitled Comment
    Lady In Limbo
    Saturday, August 15, 2009 at 04:59 PM

    Thank you Jeanette.  It's one of the things I'm working on.....taking care of myself, instead of others all the time!

    Reply
    re: re: Untitled Comment
    Jeannette Elsner
    Saturday, August 15, 2009 at 05:53 PM

    Hi,

     I am sorry if my response was too simplistic.I fight so hard and can identify with your feelings.My parents were Holocaust survivors,so I have dealt with loss,in all its expression,physical,emotional....and so know that you are not alone.I try deeply to find the "good"in life.We all live at the " mercy of the moment"as I call MS.We fortunately or unfortunately are more prepared than most,as we have experienced acute loss in all its expression.BE well in your total all encompassing,spirit!!

    Jeannette

    Reply
  2. In Good Company
    KJ
    Saturday, August 15, 2009 at 01:36 PM

    There are many of us Limbolanders here, all going through what you're going through to some degree. MS isn't as easy to diagnose as you would think. It looks like a weird collection of symptoms that varies from person to person.

     

    I would go for all the testing that your doctor can set you up with. If you've already done all that, I would suggest putting together a detailed symptom log of past incidents that could be related as well as new issues that come up. Keep that handy and take it in when you go to see the doctor. Be open and honest with docs.

     

    While all that's going on - please take care of yourself. Get a flu shot when you're due. Take your vitamins. Exercise and get some fresh air and sunlight. Eat right. Ask for help when you need it.

     

    Stay in touch,

    KJ

    Reply
    re: In Good Company
    Lady In Limbo
    Saturday, August 15, 2009 at 05:01 PM

    Thank you KJ!  I think a symptom log is a great idea.  Especially since I now have all this time on my hands!  I also think I've been having "flair ups" for years, but was misdiagnosed, so maybe a symptom log will help piece it all together.

    Reply
    re: re: In Good Company
    momdukes
    Sunday, August 16, 2009 at 08:56 AM

    Hi Lady in Limbo this diease can really suck the big one, and I am so sorry.  Ok I am going to repeat my again and I am sorry.  If your insurance runs out go and apply for Medicaid at your local social service office do not go on Mon. or Fri. those are usually their busiest days.  Apply for food stamps, and this is for anyone out there having a hard time, with the ecom sohard now days it is not hard to get them.  At leat we can eat, you can buy anything that you can eat.  When I use to activate the cards, you do that yourself now, I told one young lady she was crying go early in the morning when no one was at the store, she was embrassed, go figureUndecided her tax dollars paid for them.  It is a start I hope it helps you out.  sherry/smomdukesKiss

    Reply
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