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Wednesday, November, 25, 2009
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Lost in Limboland

Lady In Limbo
Lady In Limbo
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Have all the symptoms....no diagnosis!

Lady In Limbo

Saturday, August 15, 2009
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Hi everyone,

I'm new to this sight.  I feel like I can't "talk" about my symptoms anymore, because I feel like at this point everyone has tuned me out.  Two months ago, I was supporting my family of four with my career, I haven't worked since, might lose my job because I've used up all of my FMLA, not making any money because I've used up all of my benefit time, I have two boys that I can't do the things I want to with on summer break because of financial and physical conditions, and if I have to tell one more doctor my symptoms I'm going to scream.  Here I go anyway....my symptoms are entire body numbness, loss of feeling in both of my lower legs, EXTREME fatigue, headaches, when I walk it feels like my knees are tied together.  Neurologist is sending me to a university neurologist because he doesn't treat these cases.  Brain MRI shows "non-specific" lesions.  EMG shows slower than normal responses.  I feel like these doctors just don't want to take the responsibility of making a diagnosis.  Waiting for my primary to give me some direction.  What do I do next?  I feel like I'm sitting here at home waiting for an answer.  For a person who worked full time it's very difficult to sit here and wait....not knowing what will happen with my life is the worst!

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