It drives me crazy sometimes to hear expert doctors go on about being pregnant as being beneficial for MS. At a speech given by Dr. Caroline Whitacre, PhD at the National MS Society's national conference, she said, "Pregnancy is the best treatment for multiple sclerosis."(I read that in the most recent issue of Momentum, the National MS Society's magazine) For me, it was the WORST treatment for my MS. I have been pregnant twice. And in my 11 years of MS, the worst 2 attacks happened when I was pregnant. And they happened at the same time in the pregnancies. A statement like that probably drives guys crazy too because they can't get pregnant - a hardship I know they probably lament all the time - at least my husband does - NOT. He actually feels like he got a raw deal because I had 2 c-sections and didn't really go into labor
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When I got pregnant, all I heard was how great it would be for my MS and I believed it. And my MS really wasn't bad. I had had 2 attacks prior to getting pregnant in the 5 years of having MS and neither attack was one that stopped me from doing most things (Ok - Tae Kwon Do was out, but I stretched in the back). I could walk, my legs were just a little bit weak and definitely tingling all over. I used my crutches for maybe 2 days during the second attack but I probably didn't need them, it was more of a security thing for me. So when I started having double vision 2 months into the pregnancy, I chalked it up to a weird pregnancy thing. It couldn't be the MS. All anyone ever said is how great pregnancy is for MS. Just the week before, I had lost taste in the left side of my mouth, also a weird pregnancy thing so I figured the double vision was the same.
Then the next day, I took a 2 hour nap. That was when my husband started worrying - I NEVER take naps unless I am sick. Later that evening, I convinced my husband that I was ok to attend a party given by his boss. I definitely shouldn't have done that. At the party, I knocked over a bottle of red wine because I thought it was one place, and it wasn't. At this point, my husband said I should talk to the host's husband, an oncologist. So I began by telling him about the double vision. Then I told him I was 11 weeks pregnant and he said, somewhat skeptically that it COULD be a weird pregnancy thing. Then my husband kicked me and said I had to tell him everything. So then I said, "oh yeah, and I kinda have MS." At which point, the doctor confirmed my husband's thoughts that this was an MS attack and I needed to call my neurologist first thing the next day. So, long story short, I went to see my neurologist. We waited 10 days to see if the attack would start to get better without the steroids since he didn't want to give me any medicine if he didn't have to. But it got worse, a lot worse. I lost 13 pounds and use of my right side - writing, eating, etc. which was difficult since I was right-handed and probably lent to the loss of weight, that and getting sick since my equilibrium was off with the double vision. So I went on prednisone 10 days after the attack began for a 10 day period. And the eye sight returned to almost normal by the end of the steroid treatment and 100% a couple of weeks after. The right side got better, but I would say it was a few months before my handwriting returned to normal. And then the rest of the pregnancy went great. The 20 week sonogram was scary, but everything looked good. I spoke to a doctor who is doing a study of Estriol (which is showing great promise) a hormone that is thought to help the MS that has an increased presence in women in their late 2nd/early 3rd trimesters of pregnancy. She said she wasn't surprised to hear I had the attack in the first trimester because the beneficial effects of the increase in Estriol didn't kick in until the later trimesters.


Kristen - I have been on many sites, and have never heard one of the many women who were pregnant , or thinking of , say that their doctors said it was the best thing for them .. many stories were quite the contrary, as yours, that they developed problems and that while they are able to have children , it was a very touch and go situation .. for the mother ....
I am sorry to hear of your experience .. I never had children, so I have no story to share , but always enjoy reading your shareposts .. and I believe you are on the right track, the doctors shouldn't lump all MS paients together and make these types of statments ... agserra
Adrian,
Its funny, it always seemed to be the experts toting the wonders of pregnancy. My OB said that it seems like 1/3 of the women pregnant have problems during the pregnancy, 1/3 stay the same & 1/3 get better. I had always heard that being pregnant put someone in remission which is why I was in denial that I was actually having an attack. I had heard the chances of having a flare up after giving birth was something like 50% or so, but never WHILE pregnant. I remember talking with a nurse after the attack and her saying that she wished she could say that because I had the attack during the pregnancy I was off the hook for a flare up after having the baby but she couldn't say that. And as it turned out, she could have because I was great after I had both babies. I have had one treatible (sp?) flare up (in 4 years) and it was pretty minor. I was actually surprised that they were even going the steroid route.
We really thought it was a fluke with our first. And then I got pregnant again. I took the home pregnancy test on Friday night and on Saturday, my husband asked me if I was slurring. And when I went to write, I noticed my handwriting had changed. We didn't have to wait for the blood test to confirm that pregnancy. The MS attack did that for us. My neurologist just concluded that something hormonally must trigger the MS for me when I am 2 1/2 months pregnant.
Funny story, when I went to get the solimedrol for the attack back in 2005, I took a pregnancy test with me and made the nurse confirm it was negative before I let her give me the steroid. The nurse did say that was a first in her book
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Thanks for your comment.
Kristin
Kristen - you will be okay .. it is good that you raise these issues .. others need all sides of this disease so they can make decisions .. that is why it is so important to share .. and you are brave , now knowing the "real" facts about your pregnancy , what course of action have you and your husband decided to take, if any ?
This is a good example for all of us, that if you read, hear or are told information regarding anthing about MS , that you must get all sides .. I am still waiting to get to the MS clinic here t learn more of "my" MS ..
my prayer for you is that with the knowledge you are now armed with about your MS , you and you husband can start to make better decisions or choices on what ever pops up after the birth or during the times that you recall having difficulties, or "flare ups" ..
so i am reading what i just wrote and hope you understand, there are no two patients alike, while we may experience similarities, our MS is just that , so you must be consistent in getting info from any and all your doc's , not the lump them together, but you history, your treatments, your experiences and your MS .....
agserra