Tuesday, May 29, 2012

Don't know what you've got 'til it's gone

By Kristin Wednesday, September 10, 2008

Hi everyone, long time, no talk - at least from me. It was summer (that is my easy answer - I have another reason for not writing for so long, but I will discuss that in a future post). I have been reading some of the posts throughout the summer and I am glad to see so many new people are writing on the site.

Merely Me talked about a song she couldn't get out of her head and one keeps going through mine since I heard it on the tv almost everyday this summer on Phineas & Ferb on the Disney  Channel. The show starts with the line "there are a 105 days of summer vacation". And by the last two weeks of summer vacation, I was ready for school to begin which it did last week.  My eldest started elementary school last week (can I be that old?) People say all the time to me to enjoy them when they are young because you don't know what you've got 'til it's gone. That is so true. It is also true about MS.

With MS, you don't know what you've got 'til it's gone. I have said before, I am very blessed and thankful that the MS has not progressed much in these last 11 ½ years. For others, I know this has not been the case. I speak with a newly diagnosed MS patient every other week or so and every person has a different story - similar sometimes, other times not. It is so hard to accept an ability as gone. And MS takes these away sometimes overnight. For me, the abilities have always returned. But who is to say that will be the case after the next flare up?

But one thing I have realized over the years is that the "abilities" that are taken away are different for everyone with MS. For some, it may be very obvious - using a device to help with walking for example. For some, the ability may be not being able to work 15 hours a day anymore because of fatigue.  Now the latter example may not sound as critical as the first, but to the person with MS that now has to change because that ability is gone, it may be critical. I have been lucky to have no abilities taken away from me, at least in the long term. But I have so many MS friends that can't say the same.

In 18 days (eek - I was reminded of that today), I will walk 50K in the MS Society's Challenge Walk. I walk because I still can and I raise money and awareness for those who can't so that someday they'll be able to join me. Maybe we can raise the money so that these abilities that were gone can return again. (Unfortunately, first day of kindergarten is gone forever :-).

Ten days and counting
Lisa Emrich, Health Guide
9/10/08 10:12am

Hi Kristin,

 

How exciting!  The baby's gone to school.  Kindergarten must be an exciting time.

 

And thank you for walking in the Challenge Walk.  I can't even imagine doing that (never would have been able to). Tongue out

 

I see that you're in the National Capital Area.  So am I.  Do you know 'nurse carol'?  Just wondering if we go to the same neuro office.

 

Hope to see more of you around the shareposts.

 

Lisa

 

9/10/08 12:03pm

Yep, we do see the same doc. Actully I used to post on blogspot and you responded to one of my blogs there -I knew your name was familiar. Maybe we will see each other at a Dc event.

 

Thanks for the comment. Gotta run for the bus now.

 

Kristin

Lisa Emrich, Health Guide
9/11/08 3:12pm

That's cool!  I love my MS Nurse, Nurse Practitioner, and of course Neuro.  I'm spoiled.

 

Which blogspot blog was yours?

Merely Me, Health Guide
9/10/08 9:12pm

Hey there...glad to meet yet another mom who is also dealing with MS.

 

You are so right..with MS...you never what may go next.  Right now I am feeling grateful that my symptoms usually leave within a few weeks.  But next time I may not be so lucky.  So for right now I try to get out there and do everything I want to do because who knows what tomorrow will bring.

 

Yes do enjoy the kids when they are young.  It is not a cliche to say it goes by so fast!  My first born is now six feet tall and in the 8th grade.  I have no idea how that happened!

 

Anyways...I am looking forward to reading more of you.  This is a very supportive community here and I am enjoying writing here very much. 

9/11/08 9:39am

Hey Kristin!!!  I am so glad to see you back posting.  Missed ya!

 

I know the childhood years go fast; I miss them so much and you are perfectly within your rights to put all your energies into them and be absent here as much as you like!! LOL

 

I would do the same thing.  I am happy you are able to do the MS Walk and you are very fortunate to be able to as well.  Have fun and stay well. Check in with us whenever you have the time because after all, our children are only young for so long and we shouldn't miss one single minute of it.

 

Love,

 

Anne (DisabledNotDead)

 

9/17/08 11:13pm

Anne,

 

Thanks for the comment. I am going to try to write with more frequency now that school is back. September is hard because some of my kid-free time is being spent training, but as you can read in my next post, I only have 10 more days, then the walk, then a nice warm bath!

 

Kristin

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By Kristin— Last Modified: 12/19/10, First Published: 09/10/08