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Harder when your disease has gone progressive
Julie A Levitt
Monday, January 14, 2008 at 08:49 PMre: Harder when your disease has gone progressive
Mandy Crest
Monday, January 14, 2008 at 11:11 PMJulie,
The progressive forms of MS would naturally bring about an entirely different perspective. I realize that my relapsing/remitting MS allows me a certain relief that you no longer experience and I thank you for reminding me of that.
I, like you, will continue to research options and do all I can to find answers and to improve my daily life. Let's keep our eyes open and be very careful out there. Cautious optimism, I guess we could call it.
Thanks.
re: re: Harder when your disease has gone progressive
Anonymous
Saturday, July 04, 2009 at 05:04 PMCut out all carbohydrates and sugars. Start to eat organic and take all the metal dental amalgams out of your mouth - your body is suffering from mercury toxicity as well. MS is manageable and you CAN put it in remission. Its all the toxins, heavy metals, and pesticides that are in all the food we eat and people with MS have a definite vitamin and mineral deficiency as well because our immune systems are so suppressed from all the garbage they put in and on our foods.
Don't believe there is no cure, you will never find a drug that will cure it, you have to clean your body out of all the garbage they put in the foods you eat.Don't ever let anyone tell you there is no cure. Something caused it, the hard part with MS is that its not just one thing it is a multitude of things.
Go organic - it will save your life and take the metal dental fillings out of your mouth. You are being poisoned daily from it. Cehck out this site.. http://www.cafeoflifepikespeak.com/Videos/Smoking%20teeth.swf
You are going to have to change your life forever. But if you want your life back, you'll do it without looking back. Rome wasn't built in a day but if you keep at it, you will slowly improve. Regenerating nerve damage takes time. Take organic vitamins and digestive enzymes and clear the parasites out of your body, change your diet and remove any amalgam fillings. You will eventually notice a big difference and eat healthy oils, omega 3,6 and 9 with evening primrose oil will help reduce inflammation.
re: re: re: Harder when your disease has gone progressive
Joe
Sunday, September 06, 2009 at 02:36 PMI agree with you 100% it is too bad that western medicine does not focus on preventative atlernatives.. it is up to us get healthy and stay that way.
Berimetric pressure and humidity play a role with my symptoms so I follow the changes like a hawk. Interesting my neuro said it was all in my head... needless to say he is not my neuro anymore... nut job wanted to put me on Cheamo to slow down the progression .. he said... yeah right!
I have had it with the white coats!
Here are the links:http://www.weatherforyou.com/cgi-bin/hw3/hw3.cgi?forecast=pass&pass=current_map&hwvWxType=pressure&hwvMapRegion=ca&hwvMapUnits=
http://www.intellicast.com/Health/AchesPains.aspx?location=USNY1232
http://www.theweathernetwork.com/desktop/?product=desktop&pagecontent=index
Helps when you are aware of what is going on with your body and why.Stay well,
Joe
re: re: re: re: Harder when your disease has gone progressive
Vanessa
Sunday, September 06, 2009 at 08:17 PMIt gets even better.....I've been going to a chiropractor for 2 months now... he is treating me for cervical subluxations using the Grostic method of Chiropractic (not the back cracking kind!) and I went from barely walking to walking almost normal. Balance has improved and I stopped taking prednisone... I have a terrible neck (lots of problems) but he said all my problems are coming from my neck.
Check out these chiropractors and their success --- coincidence --- I think not!!! MS is totally misdiagnosed!!! Its a chiropractic and toxin problem!
http://www.erinelster.com/PDFabstract.aspx?PDFID=10
http://www.ms-cure.com/ - this guy has video proof all over youtube... you have to see this!
http://www.youtube.com/watch?v=qiOtb6yM_ow - Montel Williams and his success with this form of Chiropractic! Even he is raving about it!
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Ethical Dilemma
Lisa Emrich
Thursday, January 17, 2008 at 12:39 AMIn compiling the inaugural edition of the Carnival of MS Bloggers, I did face a minor ethical dilemma in accommodating a few submissions with a direct commercial and/or 'ms diet cure' slant. Sometimes it's difficult to be impartial and give respect for other's views.
I applaud you for pulling no punches regarding dubious claims absent scientific evidence.
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Magic cures.
Mike Shaddick
Thursday, February 07, 2008 at 12:46 AM -
M.S. Myths
Anonymous
Sunday, July 13, 2008 at 11:53 PM -
Possible vaccine cure for MS
Joan
Sunday, January 04, 2009 at 01:25 PMWatch this CTV news clip here about a possible cure for MS using an anti-viral drug. And this is to stop the MS never to return. Some MS damage can not be undone but you get recovery of other areas.
http://watch.ctv.ca/news/clip124079#clip124079
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Untitled Comment
James Skinner
Thursday, February 26, 2009 at 02:16 PMI think some of the skeptics would do well to remember the vested interests the pharmaceutical/medical industry have in NOT delivering a 'silver bullet' cure for MS (since their ineffective disease modifying drugs make them big bucks - chronic diseases are their favorite!), and by the same token, they of course always rubbish claims of the successes of 'alternative' treatments - they don't want any competition eating into their profits.
Please don't be naive enough to believe that there will ever be a pharmaceutical cure for MS. It doesn't make business sense, and since the top 10 fortune 500 companies are all pharmaceutical giants with a combined profitability greater than the combined profitability of the next 490 companies, you can be sure they have good business sense. And 'scientific research' is usually funded by these guys, so you really shouldn't swallow it whole, just because it bears that label.
The power of the mind is something we seem to have lost touch with, and its healing ability has been suppressed in modern day culture. I say do whatever you can with the alternative treatments and don't let corporate propaganda put you off. By the way, I have MS and I'm doing fine without any drugs, and I do the diet/supplements, the mercury detox, exercise, meditation, yoga and more - all of which are returning my body to a state of balance and wellness. My neurologist has a lot of respect for me because I know more than he does about how to make me better. Please don't rely in a blinkered and corrupt industry to make you well again. The responsibility lies with you!
I wish you love and wellness.
re: Untitled Comment
Anonymous
Wednesday, May 20, 2009 at 09:45 AMJust posted a comment about the candida connection and ms. I forgot to mention, my husband recently went OFF his medication. He just felt that if he is going to re-establish and rebuild his own immune system, he can't use an immune suppressing drug! One thing goes against the other. While he still fights his symptoms, I think he's pretty courageous for doing this and going against the profit hungry medical system, but it's the best thing he can do for himself. We're with you James!
re: Untitled Comment
Chris
Friday, August 21, 2009 at 12:19 PMYou wrote an excellent response, James. I agree with you totally. Drug companies are out to make what they can...bigtime. There will never be a cure for chronic ailments in this country; cancers will forever exist. If you can offer anymore information or ideas/advice on MS well-being, it would be most welcome. Thanks, Chris
re: re: Untitled Comment
James Skinner II
Monday, August 24, 2009 at 07:38 AMHi Chris. This is James here! This site won't let me post another comment for some reason - says my email is not recognised, even though I got an email from THEM with your comment! So I've set another account up with my girlfriend's email...
Thanks for your comment. Yes, I was appalled at the original text about 'sideshow cures' - amalgam removal being one of them... when anybody with half a brain cell should know how bad mercury is and how it has been linked to ALL autoimmune diseases.
No, I am 100% sure that MS can be cured. But not in the lazy sense of waiting for some sort of medical remedy but in making lots of changes that seemed to me to be a major hassle at first, but have actually become routine and fun parts of my life that I wouldn't change now, even if I didn't need to.
Here's what I do, and I am always chaging this when I find out something else interesting:
(This, as they say, is not medical or legal advice LOL!)
- Anti-candida AND low saturated fat diet (less than 10g a day), but I don't cut out meat. I do however avoid COW dairy products.
- Raw food wherever possible (yes I just love munching on raw brocoli LOL!), and ORGANIC - can be expensive, but works out the same with a bit of label and bag swapping in the supermarket ;)
- Fish oil (4 good quality caps a day), flaxseed oil (yuk!) 2 tbsps a day, Vit B12, Vit B complex, 15000 IU of Vit D (massive amount - I have found some 5000 IU tablets), chlorella tablets (for chelating heavy metals)
- I should mention I have had my fillings out and I'm seeing a guy who is a causative homeopath so I'm taking homeopathic isodes to detox my system - he also gives me some gamma rizol to get rid of parasites that have grown up around the mercury
- I've ordered a coloidal silver generator too as I've seen that CS has had great results for MS - this is also a long term investment to guard against the bioterrorism being orchestrated at the moment - fight the new world order, woo!
- I cycle, do yoga, meditate (that's SOOO important - at least 30mins a day - hard at first!) - and press ups - do loads of press ups - i'm pretty tonk now!
- I don't drink anymore, although my 30th is coming up and I have to get mashed for that! Plus I don't smoke but I allow myself the occasional binge on weed! I still have to live!
- Keep positive. Don't look at any of the mainstream info on MS. You have SOMETHING wrong but it's UNIQUE to you, so it doesn't have to turn out like you may fear. For that reason, please don't follow anything I say without doing your own research. BUt I have done a LOT of research myself which has led me to believe it CAN be fixed - don't let them tell you it can't. Take your health into your own hands. YOU CAN! Power of the mind stuff - so important. If you think MS, you'll have MS!
I know that all sounds a lot , but it has taken around 6 months to implement fully. I have a whiteboard on which I tick off all this stuff - helps a lot when you're a scatterbrain like me!
I hope this has given you some ideas mate. You'll probably be interested to know that I had my first attack 10 years ago (optic neuritis) and and although I've had some freaky stuff happened over the years, my only symptoms now are slightly dodgy use of fingers for small tasks - but I'm looking into myelin repair now for that ;) and occasional stiffness.
Anyways, bit of an essay there... all the best to you and good luck!re: re: re: Untitled Comment
Anonymous
Monday, August 24, 2009 at 08:55 AMThanks James! I do alot of research too, but it is for my 30 year old son; I am his mom (not a dad; "Chris" leaves one scratching his head;male or female?). Anyway, I thank you very much for your informative response. I do understand that MS is a custom condition and not a cookie-cutter illness. I try to gather as much information as I can for him and also ask people who have done something natural to help themselves. He has been reading alot too. My son does not do the drugs (Avonex etc)..he is on the paliolithic diet (Ann Boroch). Have you found homeopathic treatment to be helpful? thanks!
re: re: re: re: Untitled Comment
James Skinner
Monday, August 24, 2009 at 04:10 PMThanks Chris! I have just ordered the Ann Boroch book - looks great. As for homeopathy, my homeopath specializes in detoxification and chronic illnesses. He has trained under Dietrich Klinghardt and Savely Yurkovsky - and he happens to live just a few miles away from me! You should Google these guys and see for yourself what they do. I felt worse then better after starting to detox, so do bear this in mind as it's easy to lose faith if this happens.
One other thing I forgot to mention do whatever you can to avoid electro smog as this is another toxin that needs eliminating. There are some great products out there to protect against it e.g: www.memonyourharmony.com
Thanks again for the Ann Boroch info and wish your son all the best from me!
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Untitled Comment
bogna
Thursday, March 12, 2009 at 10:17 PMand you will not be cured because you are what you think and your boring scepticism, keeps you where you are, you will not try anything new because there is not proof, why belive in miracle when you can see a doctor and sure enough they will reconfirm your belives "no cure", that how this joke of medical establisment exist, with everybody poping drugs and sick with cancer, heart diseases etc.
Good luck in your bleland.
Bogna
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Love this post
Marcus
Tuesday, March 24, 2009 at 07:41 PMSince being diagnosed in August, a day doesn't pass that someone e-mails or calls me with something "I" should be doing that they "heard" about. At first it annoyed me, but now I play along. It amuses me. Also, most people that find out I have MS, also tell me about some friend that doing "great" and ask why I am limping or forgetful. That probably annoys me the most, as MS is different for each person that is living with it.
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the MS Cure myth
Stephen
Friday, May 08, 2009 at 03:59 PMI tend to agree - with the simple fact that there is as yet no cure for MS, lots of interesting research - but no known cure. However, why is it then that you write on a wedbiste that is littered with commercial adverts for the 'cure'. If I was to run this site, and I do realise some revenue is needed, then surely the best thing to do would be to take ads from real aid's for those of us with MS - things to help us get in and out of the bath, things that help us stay as mobile as possible e.t.c
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Untitled Comment
Nat
Friday, May 08, 2009 at 11:06 PMHi There,
Unfortuantly with the outlook, prospective and attitude you have towards your health you have already lost the fight against your MS before it has even started. You say that you have just excepted the MS and how your life is going to pan out with MS. As far as I'm concerned I am horrified that you have settled with this prognosis for you self but you are instilling your outlook in other MS Sufferers and that I beleive is wrong What right do you have to take the hope away from many who suffer MS and happen to stumble across your comments. You yourself understand that MS can make us feel vulnerable at times, people come on here to be uplifted not depressed by your sad, sad outlook that nothing can cure MS. Have you ever stopped to considered that many of the natural treatments may not completely cure your MS but send it into a state of permanent remission. I know people who are living proof of going into remission permanantly with a multitude of diseases and they didn't do it with an outlook like yours. Grow up, have a heart and stop spreading your doom around to everyone. There are scams were ever you look and if you are not smart enough too work out which ones are bad. Do some research and see what other people say. Your Neuro and Dr's are banking on the fact that there will never be a cure. YOU ARE A VICTIM TO THE PHARMACEUTICAL WORLD,
re: Untitled Comment
Mandy Crest
Saturday, May 09, 2009 at 12:16 AMWow. On the contrary - I have a very positive attitude about life and about my life with multiple sclerosis.
In this particular post, I was writing about "cures" and scams that take advantage of the fear and confusion of MS sufferers by making false claims. We've got to be very careful out there.
One cannot fight a battle against MS with first accepting the diagnosis. Accepting the diagnosis, however, in no way means accepting defeat. And I haven't accepted any kind of prognosis at all, since I've never been given one. A prognosis for MS is near impossible.
There are, in fact, many things that can be done to improve overall good health, many of which I -- and other writers on this site -- have covered in great detail.
I've never been accused of spreading doom before, but there's a first time for everything. I choose to follow a healthy diet, I exercise, and take care of myself in every way I can -- and that's exactly what I advocate for my fellow MSers. And yes, I take one of the disease-modifying drugs, but I would hardly call myself a victim for that. It's simply my choice. Others are free to choose differently.
I definitely haven't lost the fight against MS -- not by a long shot. Life is good.
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You'd be surprised
Anonymous
Wednesday, May 20, 2009 at 09:35 AMMy husband was diagnosed two years ago, but I suspect he has had ms longer than that. Started a stringent candida fighting diet which he will have to be on for the rest of his life. (See Ann Boroch's book). What a difference it has made in his life. He has no more attacks (we think he had 3 or 4 within 2 years), no vertigo, no constant tremor, no eye weakness, no incontinence, no tingling. Sleeps well every night. He is still working on left leg drop and imbalance. He does 15 minute beginner yoga in the morning and some other form of exercise a couple times a week. I have read so much about the candida albicans connection. It wreaks complete havoc on the body. I highly recommend anyone with ms or autoimmune disorder to read about it and follow a protocol for results. Consistency and patience with this is key to knocking it out!
re: You'd be surprised
James Skinner
Monday, August 24, 2009 at 04:19 PM -
Untitled Comment
truth
Wednesday, June 24, 2009 at 12:27 PMhow evil you are to try to convince people that they have to live with MS and stay on your "drugs"... GOD will have his way with those who suppress the truth including YOU. With your fancy degrees and millions of dollars of research, you still can't cure this "mystery" disease? Or would you rather pocket all the drug money and live in your fancy mansions? MS is caused by toxic mercury levels, it is no mystery... Get rid of the mercury (specifically found in dental fillings) and get rid of the disease... Suppress the truth for your own personal gain as long as you can drive your fancy car, but GOD is always watching...
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Thirty two years of living with and fighting MS
Joseph Haas, Sr.
Sunday, July 19, 2009 at 10:38 PMFor several reasons, I do not believe that medical research has done all possible to determine the cause and a cure for MS.
I have several serious medical matters to cope with on a daily basis. It is near my end time (80 yrs) and I have been a care giver, reader, researcher, prayer and the positive source of attempted humor and reassurance for thirty two years. I have noticed that many shy away from the MS patient for fear of facing the realities that life can impose on us.....with no known cause or cure. The MS patient must have the spiritual and loving attention of a care giver to even approximate survival on a daily basis. Without that supportive love and assistive reassurance, depression will destroy the patient and all who try to assist in facing the challenge. When I see contrived cures and promises that are without confirmed factual data, I wonder whether the offer may or may not be an insult to the patient. If the data or ritual for cure includes or creates a positive path to coping with the reality of the circumstances encountered on a daily basis, the fraudulent offers may have a positive effect. The medical community has been dabbling in the practices of determining the causes and cures, with fractional support from varied and ineffective sources. We can spend billions sending a rocket into a black hole in space but can not fund an all out effort on some of the most depressing diseases. Human management without empathy for those less fortunate but funding of toys, games and trinkets is evidence of the failure of the human culture and causes people to question the so called leadership of our countries. I am embittered by the waste of minds and financial resources on trinkets and toys in space while here on earth there is so much to be done. A billion or so to search space but not an equal amount to search earth for a cure for our suffering patients.
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No money to be made on cures
Joe
Sunday, September 06, 2009 at 02:12 PM
<!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:PunctuationKerning /> <w:ValidateAgainstSchemas /> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:Compatibility> <w:BreakWrappedTables /> <w:SnapToGridInCell /> <w:WrapTextWithPunct /> <w:UseAsianBreakRules /> <w:DontGrowAutofit /> </w:Compatibility> <w:BrowserLevel>MicrosoftInternetExplorer4</w:BrowserLevel> </w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" LatentStyleCount="156"> </w:LatentStyles> </xml><![endif]--><!-- /* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal {mso-style-parent:""; margin:0cm; margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:12.0pt; font-family:"Times New Roman"; mso-fareast-font-family:"Times New Roman";} p {mso-margin-top-alt:auto; margin-right:0cm; mso-margin-bottom-alt:auto; margin-left:0cm; mso-pagination:widow-orphan; font-size:12.0pt; font-family:"Times New Roman"; mso-fareast-font-family:"Times New Roman";} @page Section1 {size:612.0pt 792.0pt; margin:72.0pt 90.0pt 72.0pt 90.0pt; mso-header-margin:36.0pt; mso-footer-margin:36.0pt; mso-paper-source:0;} div.Section1 {page:Section1;} -->
<!--[if gte mso 10]> <style> /* Style Definitions */ table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-parent:""; mso-padding-alt:0cm 5.4pt 0cm 5.4pt; mso-para-margin:0cm; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:10.0pt; font-family:"Times New Roman"; mso-ansi-language:#0400; mso-fareast-language:#0400; mso-bidi-language:#0400;} </style> <![endif]-->Took me 10 years to figure that out after being a gunny pig for the pharma companies.
I have decided to go the natural root.. it is not a cure but I feel better and best of all no side effects.
I rest my case > http://www.youtube.com/user/CCHRInt
Stay well.
Cheers
re: No money to be made on cures
joe
Sunday, September 06, 2009 at 02:15 PMTook me 10 years to figure that out after being a gunny pig for the pharma companies.
I have decided to go the natural root.. it is not a cure but I feel better and best of all no side effects.
I rest my case > http://www.youtube.com/user/CCHRInt
Stay well. Cheers
ps something screwed up above? MS eh!
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I like your mindset but wanted to point out that sometimes accepting ones MS can be harder when it has gone progressive chronic relapsing (one of the rarer kinds) in less than 3 years since diagnosis...just all happening so quickly so time for acceptance but working on it daily. I get so many emails about MLM products that I must try because they have cured all of these 50xyz diseases...yeah right...do i argue with them, say thanks but no thanks or just hit the delete key.