One Woman's Experience with Multiple Sclerosis

By Mandy Crest, Health Guide Saturday, January 19, 2008
Come along with me and take a look at the world through the eyes of one woman with multiple sclerosis. Through my eyes......it's 3:00 a.m. and I am startled from a sound sleep, deep in the throes of a violent vertigo attack. I see the room spinning wildly, the bed is lurching from side to side,...
Multiple Sclerosis Disability Accommodations: Take Control and Make Changes
Anonymous
donna boone
1/22/08 11:34am

Hey Mandy..

Good piece you wrote there~

I had to grin at a few of your obstacles as I face them myself on a daily basis.

The stairs always get me.. as I climb them one can usually hear me mumbling outloud "strong on the left, lift on the right" .. ( it helps me keep my mind off the taskBig Smile).

 

I recently went up to my cabin with my husband to see how I'd do at snowmobiling this year. I'm proud to say I can still pull start my machine ( I tell myself I have to get mad at it, then I try to pull harder), I have to adapt my riding style tho as I can't swing my legs back and forth over the seat like I used to when riding in the deep snow. But its all good so far!!  The hardest part I find is trying (and the key word here is trying) to walk in deep snow. You can only imagine how frustrating that is. Again, I put on my stubborn hat and keep slogging away. My legs used to be the strongest part of my body now they seem useless sometimes LOL. Oh well, as long as I keep trying right!

Now my 'wish' is for more handicapped parking plots at the stores.. I find that usually when I get there, they are always full!!  So there is my little vent.

I am a true believer that we must keep a positive attitude even though some days really really suck! As I write this, I look outside, its chilly but there is blue sky so that tells me its a good day. I think I'm going to venture out for a little walk with my dogs.

Have a great day! 

Mandy Crest, Health Guide
1/22/08 3:03pm

Donna,

 

I admire your "can do" spirit!  Thanks so much for sharing your story.

 

Mandy 

1/26/08 2:00pm

Mandy,

I found your article here to be a thorough and honest representation of life with M.S.  I, too, often look into the mirror wondering who exactly is in that reflection looking back upon me.  Just today I told my husband that we need to go out this evening -- nothing big, just dinner and laughs for a few hours.  My reflection didn't like what she saw today.  She saw a woman who is saddened by being sick and tired. 

 

So, today, (and at least for today) I've tossed in the towel on both sicknesses and tiredness.  I want to enjoy a fun dinner in my husband's good company and want to try to recapture some of my inner youth and liveliness.  When I look at that reflection tomorrow, regardless of how I feel when I wake, I want the sadness to be gone and the fighting mad spirit to return. 

 

Thanks for sharing here.  It reinforces that what we all are going through is real.  "No two MS patients are the same" may be the mantra, but I directly relate your the world of MS through your eyes.

 

Have a Sunshine day,
Kim

Mandy Crest, Health Guide
1/26/08 3:13pm

Kimberly,

 

Thank you for your kind words. It always makes my day to know that I've connected with someone!

 

I read your profile and found that we have much in common, even the first warning signs of MS. I agree with your philosophy that sometimes we just have to put MS aside as best we can and find ourselves again -- our true selves. As I always say, there is more to us than MS.

 

Sometimes I'd just like to say:  "MS? No Thank You.  Not Today." 

 

Mandy 

By Mandy Crest, Health Guide— Last Modified: 05/20/11, First Published: 01/19/08