Multiple Sclerosis Disability Accommodations: Take Control and Make Changes

I did 2 hours research on MS for a friend, and came up with lots of URLs. Wish I'd found this resource. In case others are interested, I'll post what I found googling. I'd love to know if any of these were helpful. My blog is www.pleasuresandponderings.blogspot.com.

***http://www.mscare.org/cmsc/index.php?option=com_center_directory&Itemid=528 - 10 pages of 100-200 from the Consortium of MS Centers

***http://www.msakc.org/General/ListOfMSClinics.htm - List of MS Clinics In King County with full contact info

***http://www.nationalmssociety.org/site/PageServer?pagename=HOM_RES_research_primaryprogressive about research centers in Boston, LA, Syracuse, Texas, Rochester (Mayo) San Francisco

TEL: 415-353-2069 FAX:

(415) 353-2633

TEL: 415-353-2069 FAX:

(415) 353-2633

**http://www.nationalmssociety.org/site/PageServerpagename=HOM_LIB_web_resources -17 MS organizations (after gov't agencies)

and "A Sample of Society-Funded Research on Primary-Progressive MS." Info on clinical trials at http://www.nationalmssociety.org/docs/HOM/clinicaltrials.pdf - several sidebars on research

***http://was.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_sourcebook-lib.,Multiple Sclerosis Information Sourcebook http://was.nationalmssociety.org/site/ 192 Nickerson Street, Suite 100 Seattle, WA 98109 phone: (206) 284-4254

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_aboutMS Webcasts and Podcasts and

was.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_ms_learn_online#research -trends, conference, law, options

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSConnection--quarterly newsletters, archived

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSclinics - 8 clinics in Seattle, Tacoma, Spokane

***http://www.msif.org/en/ - MS Int'l Federation

***http://www.msif.org/en/research/ms_research_news/index.html, with MS Research Database, projects and awards as sidebars

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSclinics - Find an MS Clinic

**http://www.mscare.org/cmsc/Meet-the-Experts.html - 29 articles by MS experts

**http://www.ms-research.org/ -MS Nat'l Research Inst., San Diego 1-866-676-7400

**MS in Seattle, http://www.evergreenhealthcare.org/neurosciences/MSCenter/default.htm

http://www.swedish.org/12778.cfm - ask for Sylvia Lucas, MS neurologist with 400 patients (sylvia.lucas@swedish.org)

http://depts.washington.edu/rehab/fellowship/ms.html

http://msrrtc.washington.edu/ - MS Rehabilitation Research and Training Center

http://www.mult-sclerosis.org/news/Mar2004/SeattleClinicaHubforMSCare.html

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_homepage

https://www.virginiamason.org/home/body.cfm?id=1175&action=detail&ref=279 - Mariko Kit, M.D. 206) 341-0420

**http://www.med.cornell.edu/neuro/msresearch.html

**http://www.centerwatch.com/patient/studies/cat102.html - way over 100 MS Clinical Trials in over 30 states

**http://www.medscape.com/viewarticle/413730 - though it's about Secondary Progressive MS and Mitoxantrone, several of the 14 footnotes seemed relevant, as #14, Highlights from the Fifth Annual Meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis

http://www.medscape.com/resource/ms - Medscape's key clinical content

**http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_web_resources -17 MS organizations (after gov't agencies)

**http://www.mscare.org/cmsc/index.php - OUR MISSION: To be the preeminent professional organization for multiple sclerosis (MS) healthcare providers and researchers in North America, and a valued partner in the global MS community

**http://www.shepherd.org/research/ms.asp - a summary of current initiatives for Multiple Sclerosis research in Atlanta

** http://www.nationalmssociety.org/docs/HOM/grantslisttopic.pdf - 86 pages of current research projects funded by National MS Society

**http://cms.clevelandclinic.org/neuroscience/body.cfm?id=1734 Mellen Center for MS Research - "The world's largest and most comprehensive program for MS care and research

wwwMscare.orghttp:/www.mscare.org/cmsc/index.phphttp://www.mscare.org/cmsc/index.php for *http://www.unitedspinal.org/publications/msqr/category/relapsing-progressive-ms/

http://www.unitedspinal.org/publications/msqr/ MS quarterly reports with monthly archives

*http://appneurology.com/showArticle.jhtml?articleId=201200733 -lists MS pediatric centers of excellence (Alabama, NY, Boston, San Francisco-they would surely be able to direct you to centers for Adults

**MS in Seattle, http://www.evergreenhealthcare.org/neurosciences/MSCenter/default.htm

http://www.swedish.org/12778.cfm - ask for Sylvia Lucas, MS neurologist with 400 patients (sylvia.lucas@swedish.org)

http://depts.washington.edu/rehab/fellowship/ms.html and http://msrrtc.washington.edu/

http://www.mult-sclerosis.org/news/Mar2004/SeattleClinicaHubforMSCare.html

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_homepage

https://www.virginiamason.org/home/body.cfm?id=1175&action=detail&ref=279 - Mariko Kit, M.D. 206) 341-0420

*http://patients.uptodate.com/topic.asp?file=demyelin/2206 "
"Treatment of progressive multiple sclerosis in adults"

which also has a subscription - provides access to the topic review you requested, all other topic reviews on this subject, and our entire database, which comprises over 50,000 pages of text. One-week subscription: $19.95 One-month subscription: $44.95

*http://www.jrsm.org/cgi/reprint/93/5/219.pdf - "MS Care Needs for 2000 and beyond" - 28 references

* http://www.helsinki.fi/~ahalko/files/vanha-ms29 - a forum of people asking/ answering MS questions

*http://www.morehelpforms.com/mhfms/support.jsp - 1-800-456-2255 for a support specialist

*http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=1850&CFID=5503631&CFTOKEN=86843774 - good sidebars

*http://www.ncbi.nlm.nih.gov/pubmed/10618696 lists 356 citations in Pub Med (http://www.pubmed.org/), info from U.S. National Library of Medicine and the National Institutes of Health

*http://www.multiple-sclerosi.org/

*http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_brochures_managingprog1 - many resources listed

*http://skins.broadbandvideo.com/nmss/06_07_07/06_07_07_transcripts/Transcript%20ProgressiveMS1.pdf - MS online internet program; can call 1-800-344-4867 with questions (Nat. MS Society)

*http://www.acceleratedcure.org/msresources/library.php - Accelerated Cure Project Interview Series

*At http://www.morehelpforms.com/mhfms/Step1Registration.jsp?vsid=&i=''&gclid=CKnd3trKnJECFQpMYQodrRU2ew, you can sign up for a FREE MS therapy evaluator

*http://www.msactivesource.com/msavProject/msas.portal/_baseurl/twoColLayout/SCSRepository/en_US/msas/home/Multiple-Sclerosis-Treatment/index.xml offers info on Multiple Sclerosis Treatment and 4 times T. and Th. for teleconference calls

http://ms.about.com/od/glossary/g/ms_secondary.htm

http://www.ohsu.edu/ohsuedu/about/foundation/ci_ms_center.cfm - I'm sure you have this-maybe use as a comparison to others

http://www.medhelp.org/Medical-Dictionary/Terms/1/002153.htm National Multiple Sclerosis Society (NMSS) - http://www.nationalmssociety.org/ NIH Neurological Institute - http://www.ninds.nih.gov/

http://www.hopkinsneuro.org/ms/ - MS Center at Johns Hopkins - "one of the largest MS centers in the world."

http://www.lahey.org/ClinicalTrials/Research_DisplayTrials.asp - clinical trials

http://www.avonex.com/msavProject/avonex.portal?gclid=CKHllpvOnJECFSFaagodrEaBQA has a treatment product and an MS newsletter. Has your sister had Avonex recommended?

http://www2.healthtalk.com/go/multiple-sclerosis/webcasts/my-therapy-expectations-are-they-realistic/transcripts/setting-ms-treatment-goals and http://blog.healthtalk.com/multiple-sclerosis/life-with-ms/

http://appneurology.com/showArticle.jhtml?articleId=201200733 2010 Initiative: Full-Force Thrust for MS Research

http://www.thelancet.com/journals/laneur/article/PIIS1474442205700284/abstract (research study, etc. on interferon-any use?)

Moreah Vestan Compassionate Communication Trainer, Life Coach, Columnist

http://communicationcoaching.net/ moreah@comcast.net
Author: Pleasures and Ponderings: From Nun to Nudist to Now and

Diving Right In: Reflecting on Life's Adventures
http://www.pleasuresandponderings.com/ 206-938-8385