Multiple Sclerosis Disability Accommodations: Take Control and Make Changes

By Mandy Crest, Health Guide Friday, January 25, 2008
Living with multiple sclerosis often means making lifestyle changes, big and small. While it is very difficult to take that first step and admit that you need some type of assistance, once you make the necessary accommodations for your disabilities you will find that it actually empowers you. You wil...
How Multiple Sclerosis Taught Me Patience with Situations, in Relationships
Anonymous
Moreah Vestan
2/ 1/08 6:34pm

I did 2 hours research on MS for a friend, and came up with lots of URLs. Wish I'd found this resource. In case others are interested, I'll post what I found googling. I'd love to know if any of these were helpful. My blog is www.pleasuresandponderings.blogspot.com.

 

***http://www.mscare.org/cmsc/index.php?option=com_center_directory&Itemid=528 - 10 pages of 100-200 from the Consortium of MS Centers

 

***http://www.msakc.org/General/ListOfMSClinics.htm - List of MS Clinics In King County with full contact info

 

***http://www.nationalmssociety.org/site/PageServer?pagename=HOM_RES_research_primaryprogressive about research centers in Boston, LA, Syracuse, Texas, Rochester (Mayo) San Francisco

TEL: 415-353-2069 FAX:

(415) 353-2633

TEL: 415-353-2069 FAX:

(415) 353-2633

 

**http://www.nationalmssociety.org/site/PageServerpagename=HOM_LIB_web_resources -17 MS organizations (after gov't agencies)

 

 

 

 

and "A Sample of Society-Funded Research on Primary-Progressive MS." Info on clinical trials at http://www.nationalmssociety.org/docs/HOM/clinicaltrials.pdf - several sidebars on research

 

***http://was.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_sourcebook-lib.,Multiple Sclerosis Information Sourcebook http://was.nationalmssociety.org/site/ 192 Nickerson Street, Suite 100 Seattle, WA 98109 phone: (206) 284-4254

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_aboutMS Webcasts and Podcasts and

was.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_ms_learn_online#research -trends, conference, law, options

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSConnection--quarterly newsletters, archived

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSclinics - 8 clinics in Seattle, Tacoma, Spokane

 

***http://www.msif.org/en/ - MS Int'l Federation

***http://www.msif.org/en/research/ms_research_news/index.html, with MS Research Database, projects and awards as sidebars

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_MSclinics - Find an MS Clinic

 

**http://www.mscare.org/cmsc/Meet-the-Experts.html - 29 articles by MS experts

 

 

 

**http://www.ms-research.org/ -MS Nat'l Research Inst., San Diego 1-866-676-7400

 

**MS in Seattle, http://www.evergreenhealthcare.org/neurosciences/MSCenter/default.htm

http://www.swedish.org/12778.cfm - ask for Sylvia Lucas, MS neurologist with 400 patients (sylvia.lucas@swedish.org)

http://depts.washington.edu/rehab/fellowship/ms.html

http://msrrtc.washington.edu/ - MS Rehabilitation Research and Training Center

http://www.mult-sclerosis.org/news/Mar2004/SeattleClinicaHubforMSCare.html

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_homepage

https://www.virginiamason.org/home/body.cfm?id=1175&action=detail&ref=279 - Mariko Kit, M.D. 206) 341-0420

 

**http://www.med.cornell.edu/neuro/msresearch.html

 

**http://www.centerwatch.com/patient/studies/cat102.html - way over 100 MS Clinical Trials in over 30 states

 

**http://www.medscape.com/viewarticle/413730 - though it's about Secondary Progressive MS and Mitoxantrone, several of the 14 footnotes seemed relevant, as #14, Highlights from the Fifth Annual Meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis

http://www.medscape.com/resource/ms - Medscape's key clinical content

 

**http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_web_resources -17 MS organizations (after gov't agencies)

 

**http://www.mscare.org/cmsc/index.php - OUR MISSION: To be the preeminent professional organization for multiple sclerosis (MS) healthcare providers and researchers in North America, and a valued partner in the global MS community

 

**http://www.shepherd.org/research/ms.asp - a summary of current initiatives for Multiple Sclerosis research in Atlanta

 

** http://www.nationalmssociety.org/docs/HOM/grantslisttopic.pdf - 86 pages of current research projects funded by National MS Society

 

**http://cms.clevelandclinic.org/neuroscience/body.cfm?id=1734 Mellen Center for MS Research - "The world's largest and most comprehensive program for MS care and research

wwwMscare.orghttp:/www.mscare.org/cmsc/index.phphttp://www.mscare.org/cmsc/index.php for *http://www.unitedspinal.org/publications/msqr/category/relapsing-progressive-ms/

http://www.unitedspinal.org/publications/msqr/ MS quarterly reports with monthly archives

 

*http://appneurology.com/showArticle.jhtml?articleId=201200733 -lists MS pediatric centers of excellence (Alabama, NY, Boston, San Francisco-they would surely be able to direct you to centers for Adults

 

**MS in Seattle, http://www.evergreenhealthcare.org/neurosciences/MSCenter/default.htm

http://www.swedish.org/12778.cfm - ask for Sylvia Lucas, MS neurologist with 400 patients (sylvia.lucas@swedish.org)

http://depts.washington.edu/rehab/fellowship/ms.html and http://msrrtc.washington.edu/

http://www.mult-sclerosis.org/news/Mar2004/SeattleClinicaHubforMSCare.html

http://was.nationalmssociety.org/site/PageServer?pagename=WAS_homepage

https://www.virginiamason.org/home/body.cfm?id=1175&action=detail&ref=279 - Mariko Kit, M.D. 206) 341-0420

 

*http://patients.uptodate.com/topic.asp?file=demyelin/2206 "
"Treatment of progressive multiple sclerosis in adults"

which also has a subscription - provides access to the topic review you requested, all other topic reviews on this subject, and our entire database, which comprises over 50,000 pages of text. One-week subscription: $19.95 One-month subscription: $44.95

 

*http://www.jrsm.org/cgi/reprint/93/5/219.pdf - "MS Care Needs for 2000 and beyond" - 28 references

 

* http://www.helsinki.fi/~ahalko/files/vanha-ms29 - a forum of people asking/ answering MS questions

 

*http://www.morehelpforms.com/mhfms/support.jsp - 1-800-456-2255 for a support specialist

 

*http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=1850&CFID=5503631&CFTOKEN=86843774 - good sidebars

 

*http://www.ncbi.nlm.nih.gov/pubmed/10618696 lists 356 citations in Pub Med (http://www.pubmed.org/), info from U.S. National Library of Medicine and the National Institutes of Health

 

*http://www.multiple-sclerosi.org/

 

*http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIB_brochures_managingprog1 - many resources listed

 

*http://skins.broadbandvideo.com/nmss/06_07_07/06_07_07_transcripts/Transcript%20ProgressiveMS1.pdf - MS online internet program; can call 1-800-344-4867 with questions (Nat. MS Society)

 

*http://www.acceleratedcure.org/msresources/library.php - Accelerated Cure Project Interview Series

 

*At http://www.morehelpforms.com/mhfms/Step1Registration.jsp?vsid=&i=''&gclid=CKnd3trKnJECFQpMYQodrRU2ew, you can sign up for a FREE MS therapy evaluator

 

*http://www.msactivesource.com/msavProject/msas.portal/_baseurl/twoColLayout/SCSRepository/en_US/msas/home/Multiple-Sclerosis-Treatment/index.xml offers info on Multiple Sclerosis Treatment and 4 times T. and Th. for teleconference calls

 

http://ms.about.com/od/glossary/g/ms_secondary.htm

 

http://www.ohsu.edu/ohsuedu/about/foundation/ci_ms_center.cfm - I'm sure you have this-maybe use as a comparison to others

 

http://www.medhelp.org/Medical-Dictionary/Terms/1/002153.htm National Multiple Sclerosis Society (NMSS) - http://www.nationalmssociety.org/ NIH Neurological Institute - http://www.ninds.nih.gov/

 

http://www.hopkinsneuro.org/ms/ - MS Center at Johns Hopkins - "one of the largest MS centers in the world."

 

http://www.lahey.org/ClinicalTrials/Research_DisplayTrials.asp - clinical trials

 

http://www.avonex.com/msavProject/avonex.portal?gclid=CKHllpvOnJECFSFaagodrEaBQA has a treatment product and an MS newsletter. Has your sister had Avonex recommended?

 

http://www2.healthtalk.com/go/multiple-sclerosis/webcasts/my-therapy-expectations-are-they-realistic/transcripts/setting-ms-treatment-goals and http://blog.healthtalk.com/multiple-sclerosis/life-with-ms/

 

http://appneurology.com/showArticle.jhtml?articleId=201200733 2010 Initiative: Full-Force Thrust for MS Research

 

http://www.thelancet.com/journals/laneur/article/PIIS1474442205700284/abstract (research study, etc. on interferon-any use?)

 

Moreah Vestan Compassionate Communication Trainer, Life Coach, Columnist

http://communicationcoaching.net/ moreah@comcast.net
Author: Pleasures and Ponderings: From Nun to Nudist to Now and

Diving Right In: Reflecting on Life's Adventures
http://www.pleasuresandponderings.com/ 206-938-8385

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By Mandy Crest, Health Guide— Last Modified: 12/20/10, First Published: 01/25/08