Thanks Mandy. As you can see this is a really important issue, one as you say we must insist on rectifying with government officials. Hopefully our upcoming election will help somehow.
It sounds like there are some options available through assistance programs that help some folks some of the time. But we need help for all folks all of the time.
I'd like to add that I think health insurance is a stress for so many out there and its time we have less stress. Hoping to see a change soon - but we all have to do our part I guess.
In the meantime, I'll add a link to Kristin's post here as she provides contact info for some programs that could help people get assistance with medications. Also thought a link to our insurance help section might be important.
All the best, sue
I was just diagonosed with MS 2 1/2 yrs ago. I took the medicine 2 times...had an allergic reaction to it. In a way, I was glad I did as it saved my husband and I $400 a month. The medication was actually $2000 a month but I do have medicare. The progression of my MS has been like nothing I had read about. Diagonosed in 2006, not working or walking by 2007 and now my eyes shake constantly. Even my optometrist says he has never seen anything like it. My head doesn't shake...but my eyeballs do. When I first found out about the MS I tried every source of place to me us pay for the medication. Like you, my husband has a SMALL business, very small - 1-3 employes. That is all any of them needed to hear and I was turned down any assistance. Living with MS is bad enough...living with the lack of care by others just made it worse.
It does not make sense that group health care (read that "affordable" health care) should be tied to employment.
In a country that supposedly encourages small, family-owned businesses, we manage to discourage innovation and small business by making access to quality insurance all but impossible.
It's definitely time for change. I hope you get your personal story out there for all the world to hear.
Thank you for sharing.
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I applaud you for coninuing the effort .. but a broader spreading of the word must be done .. we write and write and it is almost predestined that it is falling on deaf ears .. the only reason health reform is a hot topic and will continue to be a hot topic is due to the elections coming up ..
Then it is back to business as usual .. the better way is reaching out to drug manufacturers and social serivices and local health groups that can get you advice , go to walmart , go to walgreens , and start a campaign there .. as government uses this issue only as a tool to get elected .. after all these years , as i am gettting closer to being a senior , it is the embedded seniors that out vote us .. i don't get it , but that is it, and the younger generation that is to weak in numbers to do anything .. or even care ...
So, while I believe in writing to whoever will listen, sometimes you gotta go straigh to the source , and if you have the strength , geta group going and picket outside a pharmacy, outside your legislators home , outside where ever and when ever , we will not get heard ... agserra
I do agree that we must do more than write about this overwhelming problem. It also takes action!
Thanks,
Mandy