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Invisible Disabilities

Mandy Crest
Mandy Crest
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Mandy Crest is How are you doing?
MS Blogger and Freelance Writer

Currently residing in northern Virginia with my

Mandy Crest

Monday, May 19, 2008
View All of Mandy Crest's Posts
Disabled. Handicapped. When you hear these words, do you automatically picture a wheelchair? The handicapped placard, the handicapped parking space -- the very symbol of handicapped accessibility is the wheelchair. In my last post, I wrote about the inaccessibility of a supposedly “handicapped ...
  1. Invisible Disabilities
    Nathalie
    Tuesday, May 20, 2008 at 02:40 PM

    I completely agree... I was in line at the post office not too long ago, and had to stand in line, clearly leaning on my cane... and I waited for about 25 minutes while others went about sending a dozen parcels, one by one, in slow motion it seems.

     

    the staff saw me and other customers saw me but nobody offered me any assistance or their place ahead in line or at the counter.

     

    I guess I still look ok and too young to be in pain while standing in line....

     

    well, that's just my 2 cents and I aim to avoid lineups since then... I would prefer to walk away than feel such pain in my legs and feet again.

     

     

    Reply
    re: Invisible Disabilities
    Mandy Crest
    Tuesday, May 20, 2008 at 02:53 PM

    Thanks for expressing your feelings. I've shared this experience more than once. What to do about it is a puzzling thing. I don't think we can rely on strangers to notice or act on our behalf. Most people simply are not that perceptive, and personally, I am too shy to ask for help in most instances.

     

    Maybe that is one situation where that cane/stool would come in handy, but we can't always anticipate when it might be needed. I can't imagine the post office installing seating for us, either.

     

    Maybe if we all put our heads together, we can come up with some solutions -- I know that there are a lot of other people out there with our problem.

     

    Readers? Care to weigh in?

    Reply
  2. my cane
    stephen
    Tuesday, May 20, 2008 at 05:10 PM

    i walk with a cane i made myself, and while i do get people i know, who know i have ms, asking about it, i wish that people who didn't know why i was staggering, dragging my foot along, would just ask. they can ask nicely, but i'd rather they ask instead of wonder to themselves, "what's wrong with him?"

    Reply
    re: my cane
    Mandy Crest
    Tuesday, May 20, 2008 at 05:49 PM

    I use a cane, too, and many strangers make comments. They are quick to assume why I am using it, rather than ask. This is generally followed by some form of advice. Depending upon my mood, and upon their attitude, I either give an explanation or simply let it go.

     

    I have several canes and I do appreciate it when people compliment my cane, or inquire as to where they can purchase one. In those cases, I think of the cane as a conversation piece!

     

    I guess it's all a part of living with a disability.Thank you for sharing your viewpoint. It's nice to hear from a fellow cane-user!

    Reply
  3. shopping malls
    Anonymous
    Wednesday, May 21, 2008 at 02:04 PM

    I can relate to your comment about shopping, when I do go, my husband comes with, I like to use his arm, but retailers find that filling the aisles with displays is helpful to them.

    I hate that!!!

    I have to drop his arm, and maybe lose my balance.

    *sigh*

    Reply
    re: shopping malls
    Mandy Crest
    Wednesday, May 21, 2008 at 02:19 PM

    Oh, I know! And if the aisles aren't too stuffed with merchandise, then you have people trying to get in between you!

     

    You know those crazy canes with the rear view mirror and the horn that people use as "old age" jokes? I think they just might do the trick. Can you picture us, making our way through the stores, tooting that horn?

     

    Wink

    Reply
    re: shopping malls
    oncall 24/7
    Friday, May 23, 2008 at 07:14 PM

    I too could relate to those aisles stuffed with displays. Not only the aisles being jam packed but what about these stores that has things hanging from the ceilings. Such as baskets that are so low one bangs into them.  It makes you wonder if they really stop and think about their clientèle. I understand they want to sell, sell, sell but really. It gets ridiculous!

     

    One day my service dog with her packs on gotten hung up with a display at the end of the aisle. As she was maneuvering around this obstacle for me. Needless to say the whole display came down. Luckily it wasn't anything breakable. And forget about clothing stores because you cannot get through those racks, not unless you are skinny as a real! lol.  

    www.animalsspeak.org 

    Reply
  4. Shopping
    oncall 24/7
    Friday, May 23, 2008 at 10:17 AM

    There are many individuals with invisible disabilities! And the degrees differs! Although I am legally blind and have a service dog, I also have other disabilities that causes me issues if standing too long! Unfortunately there isn't always a place in the store fronts to allow the elderly and people with disabilities to sit especially if they use what is called share a ride programme. These programmes are great however the timing isn't always as they could take an hour or two to pick you up. Especially when it comes to doctors appointments and you have what is called a will call. You must be at the front of the buildings able to see them pull up as they are only allowed to wait for 5 minutes. If you are not where they see you then forget it!  I've been an advacate for such a long time trying to get stores to at least have some sitting area's so we could sit and wait for our rides. Some will accommodate while others do not. Why they do not I cannot commprehend this. It's not like a massive amount of seats just a few is all that is needed and it doesn't have to be outdoors either.

    animalsspeak.org

    Reply
    re: Shopping
    Mandy Crest
    Friday, May 23, 2008 at 01:27 PM

    Thank you for your comments. You gave me a lot to think about, because I have not yet had to deal with some of these things.

     

    I think we've all got to just keep doing what we do -- being vocal about our needs and trying to educate businesses as best we can... at least the ones who would like our patronage!

     

     

    Reply
  5. MS disabled with cane at age 46
    Blythe Columbus
    Monday, May 26, 2008 at 06:38 PM

    I know what you mean about people either thinking that you do not really appear handicaped because you look so young.  And disablities are only for the elderly.

     

    When I was able to still shop on my own before I finally broke down and started using a cane.   I was at the checkout counter holding onto the cart with one hand for support and the other hand was hanging onto the countertop.   There was a couple behind me in their late 60's.   All of a sudden, he starts shoving his empty cart past mine while the clerk was still checking my purchase through.  Well,  of course, there was not enough room for the cart to pass so he took it upon himself to grab my cart and start to pull it away from me.  I looked behind me at his wife and she could care less what he was doing.  I looked at him and said " Excuse me Sir,  I am using that, " I could not finish my sentence because he yelled at me " I am going to give it back to you ".

    It was the first time I had spoke up, I looked at the clerk and told her " I have difficulty with walking and standing for long periods of time and could have fallen when he started taking that cart away from me"

     

    Never the less, I always start to shake when there are people who cause confrontations, which, makes me not able to move one step for fear of falling because of the weakness of my legs.

     

    I now take an escort with me whenever I am to go out into public.  My daughter is really good at giving the evil eye to people who are disrespecting her mama.   I also stick my cane high enough in the cart so that people can see it.

     

    Blythe

    Reply
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