Caring for the Caregiver

Mandy,

This  simple  post brought tears to my eyes.  Although my Sweetie was around when I was being diagnosed, it didn't really sink in with him.  Probably because I kept low key and with our brand new relationship, he didn't hear the fear and need in my voice.

Recently he's become much more aware of the limitations which MS was imposed upon me.  But I think we are handling it well although adjustments are constantly required.  I wrote about attending a Nationals baseball game last weekend and I think the caregiver in our relationship did a great job.

Lisa

Hi Mandy,

I agree that care partner sounds more descriptive of the relationship you and Jake have developed, which I know takes patience and love on both sides.  I have lived alone with my MS, and the spinal problems that I've had since  youth, and it can be very difficult.  I was married for a short time, fortunately long enough for me to have my daughter, but have been single now for 32 years ago and while I am sad that I never did get remarried and have someone to share this stage of my life, I have also learned a lot about myself and others as a result, including I was much stronger than I ever thought I was and could handle more than anyone should have to.

I know many strong relationships in which MS is just another issue to factor into life and no blame, guilt or "burden" is allocated.  I know others where things don't work as well and as a result neither partner is happy.

I am happy for you and Jake and congratulate you both on working to build such a wonderful relationship.

Denise