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This is so true...
Merely Me
Wednesday, September 24, 2008 at 04:00 PMre: This is so true...
Mandy Crest
Wednesday, September 24, 2008 at 04:59 PMBully is a good word.
One of the hardest things about MS, at least for me, is the constant change. Unlike some other conditions or injuries, you can't just accept a particular disability and learn to work around it. We have to constantly accept new disabilities and new ways to adapt to them.
I guess that's what gives us so much fodder, huh?
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Trying harder
Julie
Thursday, September 25, 2008 at 11:12 AMHi Mandy:
As always, very good and pertinent post. I appreciated what you said about sort of rising to the occasion if necessary and rolling on a surge of adrenaline and willpower. That gets me into frequent trouble on a couple of fronts: 1) Because I pay for it with recovery time; and 2) the perception from others that I can really do more if I wanted to. That leads to hurt feelings ("guess I'm not worth the effort this time").
I have to make choices though and set priorities; as you point out, the payback to MS is unpredictable and unforgiving. I'm not always up to paying that debt.
re: Trying harder
Mandy Crest
Thursday, September 25, 2008 at 02:06 PMGreat point about the payback involved after the surge. I probably should have elaborated on that. Plus the fact that it has to be a really big deal to get that supercharge going.
I would hate to think that someone felt they were "not worth the effort" or that we could do it all the time if we really wanted to. Like most things MS related, this is very much out of our control.
Thanks!
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Mind Games
Diane J Standiford
Monday, September 29, 2008 at 02:36 PMIf I just keep healthy what I can then a cure will come and repair me. I will dance again like b4 MS! (Right...I was 22, now I am 51) My mind keeps playing, but my body won't join in.
re: Mind Games
Mandy Crest
Monday, September 29, 2008 at 02:50 PMAhhh, let the mind games begin!
Didn't anyone ever tell you that if you keep a positive attitude you could beat MS?
just kidding....
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MS is a bully as far as I am concerned...it comes out of nowhere to beat you up. What I find so difficult about this disease is that I get used to one type of symptom and then all of a sudden a brand new one appears. And anything and everything can be affected from the top of your scalp to your bladder...to your toes. It is an illness which is fodder for crazy making.
You make some excellent points...thank you for writing this.