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Untitled Comment
suvivrgrl
Monday, September 29, 2008 at 01:28 PMre: Untitled Comment
Mandy Crest
Monday, September 29, 2008 at 02:33 PMThank you so much for commenting and sharing some of your own story. I think that when we share our stories and connect this way, we come to realize that our situation is not unique. Not that misery loves company... but that there is strength in numbers.
Sorry you've had such a bad time of it, too. I think you will at some point discover new interests and find a new way of being you, if that makes any sense. I know I have, anyway.
Take care.
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Untitled Comment
Lisa Emrich
Monday, September 29, 2008 at 02:28 PMGreat article Mandy!!
Hey, it's also nice to 'see' you and read about your migraine experience.
It's difficult for me to sort out whether I'm pessimistic or optimistic or skeptic or ignorant. Sometimes those views flap around so quickly, I don't know where my head is facing. I often get tired of finding lessons in the good and bad.
A lifetime of learning - that's what MS is - a lifetime of learning.
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Exactly...
Merely Me
Monday, September 29, 2008 at 09:38 PMYeah I hear ya on this one.
All the positive thinking in the world isn't gonna bring back the life that you had before MS. It IS a big deal. It is life changing. It is a very mean disease.
I don't think that being realistic, keeping informed, and acknowleding that this disease is very difficult to deal with....is the opposite of being "positive." I think you have a good perspective here...one that I can readily relate to. You are on the road to acceptance and seeing both the good and the bad is part of that.
Very good post and one that surely will inspire me to write a post about this same topic.
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Untitled Comment
Abby www.thelemonaidstand.blogspot.com
Friday, October 03, 2008 at 04:12 PMToday I am optimistic, tomorrow, who knows? I think that because I am newly diagnosed and dealing with a variety of symptoms, I tend to be more on the pessimistic end of the scale. Which is sad because I am a normally very optimistic person.
Excellent post Mandy
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Getting Used to a "New Normal"
avonex4me
Saturday, May 09, 2009 at 08:20 PMIt's tough to remain optimistic after buying your first cane. Is this my new normal or a setback? I don't know the answer to that. What I do know is it's a difficult reality to face.
I just watched the Michael J. Fox special on optimism. Is it easier to remain optimistic when you already have others cooking for you, cleaning for you, and doing your laundy? Is it easier to remain optimistic when you don't have to worry about your income helping with college expenses for two?
I will adjust to this "new normal" if I have to, but I don't like it a bit.
re: Getting Used to a "New Normal"
Mandy Crest
Saturday, May 09, 2009 at 08:53 PMThat whole "new normal" thing... you are far from alone with that question.
I look at it this way. What is normal today won't necessarily be normal tomorrow. I had a tough time buying and using my first cane, too, but in time I realized that I felt and looked better because of the security it provides. Normal? Not sure what that is anymore, but I've stopped asking, and I feel better for it.
Michael J. Fox has a lot of benefits that we don't have because of his wealth and celebrity. However, that doesn't buy him a cure, or even a respite from a terrible disease. He must face the same physical and emotional hurdles as the rest of us.
I think that many of us with MS glide in and out of optimism and pessimism as our circumstances change -- and I that's okay, so long as we don't get stuck in a negative mindset for too long.

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Very good article Mandy. I couldn't agree with you more. I used to be an optimist, about everything! My story is so close to yours. Since I have stopped working (I am 42), I have lost my independence and that is what hurts the most. My life has changed profoundly as well. In social settings, it is very difficult to try to explain to people when they ask where I work or what do you do or have to carry on a conversation. It is tough when you are out of the work arena, you lose alot of yourself and it becomes a challenge to simply converse.
Thank you for expressing your thoughts on this. It truly does help to know someone else can identify.