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Saturday, November, 14, 2009
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Multiple Sclerosis: Wonder of Wonders

Mandy Crest
Mandy Crest
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Mandy Crest is How are you doing?
MS Blogger and Freelance Writer

Currently residing in northern Virginia with my

Mandy Crest

Wednesday, December 24, 2008
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I've got a case of the wonders. Multiple sclerosis is an elusive force, but with a powerful impact on daily living, it is rife with unknowns. I wonder... if, when I'm doing particularly well, people think I'm faking it at other times. In their shoes, what might I think?... if, when I think I'm hiding...
  1. Wonder of Wonders
    Denise Coleman
    Friday, December 26, 2008 at 01:07 PM

    Dear Mandy, I hope you, Jake and your family have all had a wonderful holiday and that the New Year brings you much to be thankful for, much happiness and the love of good friends and family.

    You list of wonders was, in fact, wonderful!  I had to stop a few times while reading your list because many are so true to what I think about; specifically when you say it is more difficult to stand still than walk.  That's saying a lot because it is very difficult to walk on some days and always difficult to stand.  

    I also related to your wonders about people knowing more than you about your body, especially the strangers I meet on a bus.

     And how you feel guilt; I am full of guilt when I have to cancel plans with my daughter or friends, or need to ask for help with things I feel I should be able to do. And I am guilt ridden because I could no longer manage to work and continue in my career, which has changed my life in every way.  

    Let's hope that this year there are new breakthroughs in MS Research.  Best wishes for a good year.  Denise

    Reply
    re: Wonder of Wonders
    Mandy Crest
    Friday, December 26, 2008 at 01:32 PM

    Thank you, Denise.

     

    One of the great things about this site is that we are almost never alone in our experiences. There are many common threads among people with multiple sclerosis and realizing that does wonders... it reminds us that we are part of a larger group and that we are not so different after all. That gives me comfort and I know it comforts you as well.

     

    We're looking forward to another fabulous year with the members of this site and we wish you and your family all the best in the new year!

     

     

    Smile

     

    Reply
  2. Staying Connected
    Maris B. Mohr
    Monday, December 29, 2008 at 08:40 AM

    I would love to be able to change the color of this text to make it more cheerful Wink. I enjoyed reading your widget very much. I totally agree that one of the most comforting way to spend some (a lot) of our time is to be in touch with other MSers. I'm not a support group type, but I do enjoy communicating with people who live in the same sub-world as I do.

     

    I've been dx for 10 years, but I started having sx at least 20 years before that. I'm SP because I never have a remission, but I enjoy life and do the things I want. I retired from teaching H.S. EFL here in our little desert town in Israel in 2002 when my fatigue, pain and cognitive sx made it too hard for me and not fair to my pupils. It was the best thing I could have done for myself.

     

    Now I live by my own schedule, swimming every morning, writing and publishing poetry, doing photography, sitting at my lptp "talking" to people.

     

    Life is good. I take time to enjoy it every day.

     

    Happy New Year!

     

    Maris in Israel

    Reply
    re: Staying Connected
    Mandy Crest
    Monday, December 29, 2008 at 04:11 PM

    Maris,

     

    I know what you mean. I'm definitely not the support group type either and never did join one. But when I discovered the world of MSers online and in this forum in particular, I realized that I'm really not alone with my MS.

     

    I'm so glad you stopped by and hope that you become a regular visitor here. Your positive way of looking at things is refreshing!

    Reply
  3. I wonder.....
    Lisa Emrich
    Monday, December 29, 2008 at 06:12 PM

    Mandy,

     

    So many of your 'wonders' overlap with my wonders, especially when it comes to others complaining about the expense of their health care.  Often times, I'd love to get away with paying twice than the amount of their complaints, if it meant that I would be free from financial worries.

     

    I wonder sometimes what makes other MSers actually not be supportive of their fellow patients, especially in that 'support group/forum' situation.  Just shows that when we are dealing with MS, we are really dealing with people.....and the wide variety of personality disorders or emotional problems which may coexist within an individual.

     

    Could go on and on, but not now.  Thank you for sharing your wonders with us.

     

    Lisa

    Reply
    re: I wonder.....
    Maris B. Mohr
    Wednesday, December 31, 2008 at 05:01 AM

    I'm sure we all share the same "wonders" once we get passed the same fears that we have before we know and when we get the dx. The bottom line is to take what we're given and make the best life with it that we can. I think I've done it.

     

    Wishes for a peaceful 2009, good health Wink, much love, no pain.

     

    Peace & Serenity,

    Maris in Israel

    Reply
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