does any 1 here takes topiramate for chronic magraine ??? that i was give by my neurologist but i feel that is still is not doing enough on me i still suffer headache what any 1 recomend me? plz it would be helpfull
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Does any 1
7/26/09 7:43pm
Hi! Sorry to hear about your migraines. I've been suffering for about twenty years with them. Tried everything. Even went to the Cleveland Clinic. Bottom line, my body gets used to the med and then it doesn't work. The doctors have told me they really haven't solved migraines yet. The best thing I can do is put an ice pack where it hurts (back of head for me) and go to bed. Often the migraine will follow me for days, pushed down and popping back up.
Good luck.
8/ 4/09 10:44pm
I do have a friend who has cluster migraines.He was self injecting the usual medication for that.I just have it on the tip of my tongue right now and I know anyone will understand on this site about short term memory loss.
Well now it does not seem to be helping at all.His doctor is trying him on oxygen at night.Needless to say anyone who has even bad headaches can be empathetic to you.Why is it that doctors can cure bizarre and terminal problems.But still have not found a cure for a cold or the flu or cancer.There are so many people who have more than just one medical problem.
The meds for one pain causes side effects I cannot deal with.And I think we all know our own bodys better than a doctor who sees you for 30 minutes.We all really need to be more aggresive because I am not and I think if I were to speak up for myself more maybe someone would listen to me.but they have us brain washed into thinking they rule.But yet they are the ones being paid to provide a service that we have to pay them for.In essence they need to get the a personality check.
For years doctors have been treated like Gods.And I am sorry to have to say this because it conflicts with the doctors who are kind,compassionate and really want to help us.Why don't they have to fill out a questionnaire for us.Tell us about themselves.And sit and wait in pain while no one does anything for them.It is a shame and they should be ashamed.I have 3 doctors I love and trust with my life.I have known one for almost 20 years the other about 12 years and now I have to face the fact about my primary just up and changes her insurance horse in mid-stream.This is the second time it has happened.
So having to find a primary who does not have a cardiac when they look at my meds and want to take them away from me.But this time it might be a situatution where I think it may be to my advantage to stick with the new fellow.He is young and he is a primary physician with a side specialty of sports medicine.
I am thinking he probably knows the up to date stuff.And he did not even blink when I watched him look at my medications.My husband said I think you would be better off to stick with this guy.And it has been since just this past January.I like him and I am going to stick with him.
I hope I did not go on and on.But maybe you should change horses too.word of mouth is usually the best.Use your computer to find out who is the best in your area.Ask around and listen to others who suffer with the same problems.I know it is hard.Believe me I have been disabled since I was 47 years old.In constant chronic pain for almost 12 years and I am about to lose my mind.
One thing we think will put an end to one problem has caused even more serious damage.
I hope all who read this don't get a hurtful neck because I talk so long.It is a personality trait I just cannot change about myself.I like to help others even though I may be in more pain than them at the time.I hate to see my friends,family and people I care about be in pain.
So I hope you know that I care about you.Wish I could have been a doctor.I would be poor and driving a buggy to everyone's house and get paid with food or what ever.Like Little House On The Prayrie.Don't lose hope.I have done that so many times.I know GOD must know we suffer.I guess there is a reason that as human beings will never know.Why do some people sail through life with out a care in the world.and others you see on the side of the rode in wheel chairs going to the grocery store because they do not even have a car.Guess it is time to get off my box.God Bless You
8/ 4/09 10:46pm
I do have a friend who has cluster migraines.He was self injecting the usual medication for that.I just have it on the tip of my tongue right now and I know anyone will understand on this site about short term memory loss.
Well now it does not seem to be helping at all.His doctor is trying him on oxygen at night.Needless to say anyone who has even bad headaches can be empathetic to you.Why is it that doctors can cure bizarre and terminal problems.But still have not found a cure for a cold or the flu or cancer.There are so many people who have more than just one medical problem.
The meds for one pain causes side effects I cannot deal with.And I think we all know our own bodys better than a doctor who sees you for 30 minutes.We all really need to be more aggresive because I am not and I think if I were to speak up for myself more maybe someone would listen to me.but they have us brain washed into thinking they rule.But yet they are the ones being paid to provide a service that we have to pay them for.In essence they need to get the a personality check.
For years doctors have been treated like Gods.And I am sorry to have to say this because it conflicts with the doctors who are kind,compassionate and really want to help us.Why don't they have to fill out a questionnaire for us.Tell us about themselves.And sit and wait in pain while no one does anything for them.It is a shame and they should be ashamed.I have 3 doctors I love and trust with my life.I have known one for almost 20 years the other about 12 years and now I have to face the fact about my primary just up and changes her insurance horse in mid-stream.This is the second time it has happened.
So having to find a primary who does not have a cardiac when they look at my meds and want to take them away from me.But this time it might be a situatution where I think it may be to my advantage to stick with the new fellow.He is young and he is a primary physician with a side specialty of sports medicine.
I am thinking he probably knows the up to date stuff.And he did not even blink when I watched him look at my medications.My husband said I think you would be better off to stick with this guy.And it has been since just this past January.I like him and I am going to stick with him.
I hope I did not go on and on.But maybe you should change horses too.word of mouth is usually the best.Use your computer to find out who is the best in your area.Ask around and listen to others who suffer with the same problems.I know it is hard.Believe me I have been disabled since I was 47 years old.In constant chronic pain for almost 12 years and I am about to lose my mind.
One thing we think will put an end to one problem has caused even more serious damage.
I hope all who read this don't get a hurtful neck because I talk so long.It is a personality trait I just cannot change about myself.I like to help others even though I may be in more pain than them at the time.I hate to see my friends,family and people I care about be in pain.
So I hope you know that I care about you.Wish I could have been a doctor.I would be poor and driving a buggy to everyone's house and get paid with food or what ever.Like Little House On The Prayrie.Don't lose hope.I have done that so many times.I know GOD must know we suffer.I guess there is a reason that as human beings will never know.Why do some people sail through life with out a care in the world.and others you see on the side of the rode in wheel chairs going to the grocery store because they do not even have a car.Guess it is time to get off my box.God Bless You
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Hi beba violet,
So often, I don't have any answers to your questions or your situations. I'm sorry for that. But this time I'll ask - do you know about the Migraine site here? Since so many of your troubles lately seem to be related to chronic migraines, you might want to check it out. There will be people who understand. Simply follow this link to the Migraine site.
Oh honey, I use to have them so bad, I was self medicating, this is what I was doing (not smart at all) 2 Goody powders at a time, wash them down with a Pepsi, honey it worked! BUT guess what on the flip side, in a few years, I would have no stomach lining. So now I take Topamax, it works fine. I take it in the morning and I do not have the migranes at all. The Goody powders were killing me softly. They worked, but I was going to die a slow death. Try Topamax, talk with your Doc, and see what they say. It's a start. sherry/smomdukes