lately both of my foot are swollen and they hurts so much and my whole body hurts so much and im just tired most my times i go out and like in an hour or 2 i want to get back home and lay on my bed just to fall asleep and dont want to be bother dont want to cook im just so weak its that normal or event part of the ms or the non specific ms?
YOU WILL FIND THIS IS A COMMON FACTOR IN MANY AUTO-IMMUNE DISEASES.I HAVE IT AND I HAVE FOUND THAT FROM START TO FINISH AND THIS DOES INCLUDE TAKING A SHOWER AND GETTING DRESSED I HAVE ABOUT A 4 HOUR WINDOW AND THEN I START TO WILT.WHEN I GET TO THAT POINT.EVEN IF I AM HAVING FUN,I NOTICE IT AT ONCE AND I HAVE TO FIND MY HUSBAND AND HE ALREADY KNOWS WHAT I AM GOING TO NEED TO SAY.HE SEES ME WALKING TOWARDS HIM AND HE JUST SAYS YOU NEED ME TO TAKE YOU HOME.I JUST NOT YES.
I HAVE MORE HEALTH PROBLEMS THAT I NEED TO REST IN BETWEEN DOCTOR VISITS ETC...MY PRIMARY FIRST DIAGNOSIS WAS MYOFACIAL PN SYNDROME.AND THAT IS THE MYELIN THAT COVERS YOUR NERVES BREAKING DOWN.I HAVE CHRONIC FATIGUE SYNDROM AND FIBROMYALGIA.AND A LOT MORE.SO SOMETIMES IT IS REALLY HARD YOURSELF TO UNDERSTAND WHAT IS WRONG WITH YOUR BODY. BUT YOU ARE NOT ALONE.AND THAT WAS BASICALLY WHAT I WANTED TO TELL YOU.WE ARE ALL STILL SEARCHING FOR OTHER DIAGNOSIS.GOOD LUCK AND JUST KEEP DOING YOUR OWN RESEARCH..I HAVE FOUND THAT IS THE BEST WAY.
WE HAVE BECOME A GENERATION OF BACK PROBLEMS AND WE ALL MUST GET INVOLVED WITH OUR PROBLEMS AS WELL.NOT TO JUST LEAVE IT ALL ON THE DOCTORS LAP .YOU MAY FIND YOUR DOCTOR WILL PAY MORE ATTENTION TO YOUR WORDS WHEN HE UNDERSTANDS SYMPTOMS AND WHAT THEY NEED TO DO.REMEMBER...THEY ONLY SEE US FOR A FEW MINUTES.AND IT IS JUST ABOUT IMPOSSIBLE FOR THEM TO SOLVE OR EVEN CONCENTRATE WHEN YOU HOP AROUND TAALKING ABOUT YOU HAD THIS ANE YOU HAD THAT.
I AM VERY GUILTY OF DOING THIS.I FIND WHEN THE DOCTORS EYES ARE GLAZING OVER I WENT OFF OF THE SUBJECT.I UNDERSTAND THAT I DO IT ALL THE TIME.SO I HAVE TO CHANGE GEARS AND GET HIM BACK INTO THE CONVERSATION.
I HOPE ANYTHING I HAVE SAID WILL HELP BECAUSE I TRULY UNDERSTAND WHAT YOU ARE GOING THROUGH.I DO NOT LOOK AT MY EMAIL EVERY DAY.BUT I ALWAYS GET TO IT EVENTUALLY.TAKE CARE.JO
ty you so much im also planning to have another mri my head keep hurting and my dizziness just control not event with the meds but ty every comments i get helps to me to learn more of this and to know wat to expect i dont like this kind of surprises this ms has change my life like i never tough it would in my life
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Honey, I think that it is just the old MS. I have one foot that stay slightly swollen all the time, my wait, let me see..right, left, ok my left foot. It swells more in the summer time, so my closed in shoes fit better in the summer. The swelling goes down in the winter so my shoe flops in the winter... go figure. The left knee hurts most of the time, I have Lyrica, I do not take it only on rare occiasons, about once every four months. I do not like taking anymore meds than I have to, and I have a high tolerence for pain. Cooking, that is out of the question, only at Thanksgiving. I do not complain. But if you have to make it simple, use Accent, it does wake up the flavor of food! I have found that fatique is my worst MS emeny, I had to surrender, so just rest, when you cannot beat them, join them. Provigil works sometimes, but I have added vitamin B6 it helps also. So have no fear it is just the MS. I hope that this helps. sherry/smomdukes
thnxs momdukes and yes everything you do tell me does helps me out and make me laugh you know something momdukes i have been having a pain at the back of my neck that i cant ignore anymore it hurts so much plus im gonna make it at the note where i write donw all my systoms i cant keep up with this pain i keep forgetting u hhow its with the bad memory loss but this time im writting it donw does that happends to you its that normal?plz let me know
ooh sorry and also ur lower back ??
Yep about once a year my lower back will hurt. I will take Naproxen for it. I just have this thing about prescription meds, I feel like I take enough. I was talking to my Nuero on my last visit, and she asked me while looking over her glasses "again Ms Sherry, when did you graduate from Med school?" we both laughed. I told her I still was not going to take the pain med, she said all right suite yourself, I said I would, she smiled, and said, "she you will never change, and don't." We understand each other that is why we have a wonderful relationship! For me the pain only last for a while, and I can endure it, not everyone can, if you need the meds, by all means take them, but I am "
Bill Bad Ass" so I will tough it out. When I fall and my husband hears me, I have gotton so good, and he comes in the room where I have fallen, he says, I guess you where looking for something on the floor right, I say yep! I never admit to defeat, not yet anyway! sherry/smomdukes
ps I cannot help it if th floor keeps moving higher
ooh momdukes u are the best lol well im goona see if i see my doc soon bc i cant keep up with this pain lol and i really hate just laying on the bed knowing i have things to do i already did few things here but u know couldnt keep up so i hope by 2pm i could get from my bed than lol and momdukes here is a hints next time tell ur husband help im falling and i cant get up lol t