I currently have bilateral optic neuritis which finally pushed me out of the limbo lane. My sister said are you happy or sad to know? I said I am both, happy to know that now finally we can get started and sad to know that I have to burden my family with this and espeically my husband. We will celebrate our 2nd anniversary next month. I am so thankful to have him here with me for this season of my life. This each a second marriage for each so we are so much more comfortable and at ease with each other than I have ever been at any point in my life. I think most people would look at us and never know (other than we still can't keep our hands off each other) that we have not shared our entire adult life together. We just click and complete each other. I know sounds cliche but for those of you who have this kind of relationship know what I mean. My parents have been married over 60 years and love is just comfortable after all that time but I feel my husband and I as newly weds have managed to create that kind of love.
Pray for me today as I am new to all the meds. I go to hospital soon to begin my first 5 day regimine of Solumedrol. After that the doctor said we need to decide which medicine you want to begin. So I have lots of reading to do as I get to be a part of that decision.
Thanks for listening.
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Welcome back! I'm sorry that the news is such a mixed bag. Good to be able to move forward but sad that MS will be there next to you always. However, know that MS is not always horrible. Many of us live wonderful lives.
Regarding the 5-days of steroids, please read Beginner's Guide to MS: Solumedrol, It's All the Rage! for some tips on how to make the experience easier.
It's really nice hearing about you and your newly-wed husband. Sounds like a wonderful relationship. Very nice to have him by your side, I'm sure.
Please let us know how you are doing, especially while you are on the steroids. Our community is here for you.
Lisa,
I did read your beginners guide Monday evening after I got home from the neurologist, so I was prepared with mints, gum and drinks. We did my first treatment yesterday over a 2 1/2 hour time. She said today we would go a bit faster. I have a headache today but I have had one for about 10 days straight and eye pain for a week now along with light sensativity that started Monday and blurry vision that I woke up with yesteday. So I was hoping that the first treatment would be magic and I would wake up renewed this morning, no such luck! I was thankful that I was able to sleep all night and I have been nauseaus with the headache so appetite is not a problem yet. Since my vision blurred I have opted to have someone else drive me for treatments yesterday and today. Tomorrow I am hoping to have clear vision and some energy so that I may go in to work for a half day. Any advice for me? I can take time off, I just don't very often and don't want to if it will not speed the process of healing. Doctor said it is up to me, depends on how I am feeling and if I am getting better.
For my worst attack of optic neuritis, it took a long time for my vision to begin to return (weeks) but I was completely blind in one eye.
Anytime I've had the 5 days of IVMS, it was usually after the 3rd infusion that I really noticed improvements. This was true for a lesser case of optic neuritis I had. You may not feel safe to drive tomorrow just yet. Only way to know is to wait and see. (haha, pun was unintended)
I do hope that things start clearing up quickly. The nice thing about steroids is that they continue to work even after you've completed the series of infusions.
Good luck and let me know how tomorrow goes.