Still adjusting to the MS Diagnosis

By MissouriMom Wednesday, February 23, 2011

In a previous posted I shared that I received my official MS diagnosis of RRMS on February 7,2011, which came as a result of bilateral optic neuritis and pain like I have never felt in my life!  Thank goodness the headache and eye pain are for the most part gone, although I still experience both in bright light or sunshine and my vision has cleared enough to regain the privelege of driving.  I had my 5 days of IV steriods and after one week of no sleep I am for the most part back to my sleep 3-4 hours and wake from pain and find a new position to sleep in back to sleep for hopefully 3 or 4 not so deep hours of sleep.  But many nights now I sleep around 10 to 12 hours total, if I don't I sleep 2 hours in the afternoon.  My body is tired and it wants to sleep.  I am not depressed actually I relieved in a lot of ways to finally know what the problem is, so my sleeping is not the result of depression.  Don't get me wrong I am had some down days but I know I have much to be thankful for and I try to maintain a positive outlook in life and encourage others.

 

My doctor has prescribed Copaxone and I am still waiting for the process of insurance approval and coodination with Shared Solutions.  If I do not receive a call today I will call them back.  Our initial call was last Friday and today is Wednesday which makes me think there is an issue with my insurance company.  In the meantime my short term disability company called yesterday and wanted to know when I plan to return to work.  (I really had to bite my tongue because they had not even processed my claim and they wanted to know my return date??)  Anyway I told them I was still waiting to be set up for my meds and would need training to learn to self inject and I wanted time to get started and get adjusted to the med.  Now keep in mind that I have not started it yet.....and its is Wednesday February 23 and they told me I am approved to be off thru February 27th, which puts me back to work February 28th next Monday.  Obviously they didnt  listen very well when we talked yesterday.  But I think all of this is ok, I will call the doctors office and tell them and I think they will call and give me another week or two.  Besides I don't feel that I am capable to be back at work full force 40 to 46 hours a week starting Monday and they don't want me to come back until I am 100%.  (not sure when I am ever 100% but I know what they mean)

 

I manage a multimillion dollor contract in the midwest for a company located in New York.  I have a staff of 30 and alot of stress and they don't pay me nearly enough lol.  But for the most part I like working but I really do wish I could work less and have less stress.  Currently I am trying to make a move to the governement since currently I work for a government contractor.  Keep your fingers crossed and pray that I get it.  I would have amazing benefits compared to now.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1955) >
By MissouriMom— Last Modified: 10/26/11, First Published: 02/23/11