This was very effective, and although I wish you did not have to suffer this symptom, thank you for sharing with us what it means and looks like. I noticed you said that you awoke with this feeling (I think that is how you put it). I was wondering if you are able to tell ahead of time when you are going to be affected with this, or other symptoms.
Thanks
You ask such a good question here. I should write a post about it sometime. I do have warning that some MS symptoms may be coming whenever I feel nauseated or else have some visual disturbance like seeing zig-zaggy lines or flashing lights. It is almost like what folk with epilepsy have...an aura. Other times I get very nervous for no reason...the adrenaline is pumping and then I lose my balance and gait.
The mind sure is mysterious.
Thank you so very much for viewing and for your comment.
Merely: Thank you for putting yourself out there as a demonstration. That takes a lot of courage. I appreciate seeing how this symptom affects you and what it looks like. My weakness isn't as noticeable but, after watching you, I tried to walk a line and realized it was more difficult than I expected. It's why I now walk with a wider gait (which probably looks a little strange).
I look forward to seeing more of your videos and want you to know how much they are appreciated!
- Julie
I think you are so brave and wonderful at the same time for posting that on here for all of us to see. You brought tears to my eye. I am only 31 years old but with this NASTY MS I feel alot older. Its makes me so sad what this diesease does to us, its just not fair. I also tried to do the straight line and was able to go about 2 steps and would stumble as well......Thank you so much.....
Thanks for posting that video, Merely Me! I love your blog and now to get to see you in person is a treat. Isn't it weird how you can be sitting still and forget you have MS but you get up and try to move and you are reminded right away?
I have had the dizziness symptom before and nothing seemed to help but time. Mine wasn't a spinning feeling so much as a leaning...like as if I were on the set of the old Batman show on TV (you're too young for that and I just dated myself. Dang!)
Anyway, hope you feel better soon! Thanks for a video peek into your world. If I looked that good I might do a video too. Don't be looking for one any time soon. LOL
Jeri a.k.a. TickledPink
MerelyMe,
Thanks for putting yourself out to the world to show us MSers what this particular symptom can look like. It's one thing to hear/read about it, it's entirely another thing to see it.
Do you find that any certain thing sets off this symptom? Increased activity?
Take care,
Abby
Hey thanks so much Abby! This is an excellent question you pose. I wish I did know the triggers. I just kinda woke up that way. I feel weird and disoriented...sometimes I have an aura of feeling nauseated or experiencing a visual disturbance...and then the MS comes on strong.
How about for you? Do certain things set off your MS?
My latest post, titled "My Life on a Surfboard" went up this afternoon. I had not seen your video yet, and coincidentally, I also used the example of the heel to toe test. Now that I've seen your video, I am amazed at the timing of our posts!
Just goes to show, once again, how much we all have in common!
Oh wow! I am ashamed to say I have not yet read your post...but I will skidaddle over there now to read. It is like we are riding a surfboard! or a runaway skateboard. Thank you so much for reading me and commenting. I hold you in very high esteem for all your many contributions to your fellow MSers. A big congrats on the Washington Post article.
Seriously, aren't you truly something! Truly. Your direct approach. Your calm voice. Your balance is the only thing off about you, that's all I can say! You have a wonderful gift of communication, my friend. And, if this doesn't make me sound like your grandmother: you are cute as a button, too! Well, I am old enough to be your grannie.
Good morning:
I watch the video, my Doctor didn't test me on that, but I just did and guess what I can not walk the stright line. Thank you for that info and all that infomation that you sent and others's have sent it has help me and my husband. I can't remember who sent me one about shot. I tryed it and what a differents when I have to take the shot I wash the aera with hot sope and water than i keep a hot wash coloth there till I ready afterwards i massage the area with cotten ball I don't have any pain or bleeding or lumps afterwards so thats to who ever suggest it
thankyou for sharing your video with us all. i can relate to this its how i fell , i have to walk with 1 crutch on my right side as i always fall to this side or backwards. still waiting to see if its ms doctor is getting me to have another mri of the right side of brain.i also get alot of numness mainly on left side
Hi I just want to thank you for taking the time to post this video,
it has actually given me something to relate to as I have personally been experiencing bizarre walking or gait difficulty similar to what you have demonstrated. I haven't been able to find anything on the internet that would like similar to what I have been experienceing....I am currently seeing a neurologist who one minute says he doesn't think I have MS and than he does...I am so frustrated ...I have had some MRI's that don't show enough evidence to be able to definately diagnose me with MS...I have had the gait problem for 1 year now...I have had several other symptoms that one minute could look like MS and some times not so sure...The neurologist is sending me to another specialist who has had a case where the symptoms didn't show up on the mri but later they diagnose the lady with MS....
I fell twice this past week. I watched your video to see if the falls might be caused by my MS or just clumsiness. I'm definitely able to do the heel-toe fine. I'm glad I saw how hard it was for you to do it. I certainly don't have that problem. Thank you so much for being willing to share your difficulties. I can breathe a little easier knowing that my MS probably isn't responsible for my falls.
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Thank you so much for sharing that video. Hopefully it will help some of the people out there that may still be wondering about symptoms.
Oh good...I am glad it was helpful. It was a little hard emotionally for me to show this but hey...if it helps...I will do it. Thank you so much for viewing and commenting.