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Book Review: The Diving Bell and the Butterfly

Merely Me
Merely Me
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I am a mother, a writer, and now an MS patient

I just got diagnosed with MS in October of 2007 although my very...

Merely Me

Wednesday, October 29, 2008
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  The Diving Bell and the Butterfly was written by Jean-Dominque Bauby (1997)   I first heard about this book through word of mouth on Multiple Sclerosis blogs.  Why would someone who has MS read this particular book?  While this is not a book about MS, it ...
  1. Now I'm Crying
    Lisa Emrich
    Wednesday, October 29, 2008 at 11:48 AM

    Merely Me,

     

    More than a humble review, a beautiful statement.  You're words have the power to touch others in such a meaningful way.

     

    I did watch the movie version earlier this fall on cable (hadn't seen it previously).  I haven't read his book and might find it too powerful.  But sometimes we need to be bowled over by power and beauty, especially in the form of words.

     

    Thank you.

    Reply
    re: Now I'm Crying
    Merely Me
    Saturday, November 01, 2008 at 04:16 PM

    Thanks Lisa.

     

    Yes it was a moving film and book.  Makes you really appreciate all that we still have and can do.  I feel very fortunate for the life that I have. 

    Reply
  2. Very moving
    Paul
    Wednesday, October 29, 2008 at 12:04 PM

    I don't think I can say anything more, for myself, than thank you for your tribute to this man, your love for your children and the moving questions he generated then. Also for sharing those you've had to confront since symptoms of MS began for you.

    I believe everyone who reads this, will be sitting on that beach as you wondered your future with the kids especially. Your children will always see, in some gesture of yours, the love you have for them, whether words, your eyes, or facial gestures, they will know.You've just told them here.

     

    Reply
    re: Very moving
    Merely Me
    Saturday, November 01, 2008 at 04:18 PM

    Oh that is so nice Paul.  Thank you.  I hope they know.  I try to tell them everyday.  It is becoming harder with my oldest son who is now a teenager.  Hugs are difficult to give and get now.  I love them so much.  I hope I am around a long time to enjoy them.

    Reply
  3. Untitled Comment
    Anonymous
    Wednesday, October 29, 2008 at 04:39 PM

    I have read this book, and as a matter of fact, read it while at the beach last summer.  I too feel it is well worth reading and a book that will really make you think.  This is perhaps most true because Bauby's humanness comes through.  He at times lets his self sorrow show so well,  and too, at other times,  his larger spirit.  Looking out over the blue water and somehow knowing he did the same seemed to bring it home even more.  All that beauty... so far away, and so deep inside.  Touchable and untouchable.

    Reply
    re: Untitled Comment
    Merely Me
    Saturday, November 01, 2008 at 04:21 PM

    I felt the same things.  He was himself throughout the book...sometimes angry and bitter but oh so human.  I wonder what I would be writing under such life circumstances.  I hope I never know.

    Reply
  4. Saw the movie...
    Joan
    Thursday, October 30, 2008 at 07:57 PM

    ...and it was surreal and well done.  I am grateful that I am NOT dealing with that condition.  Makes my complaints seem so trite.

     

    Joan

    Reply
    re: Saw the movie...
    Merely Me
    Saturday, November 01, 2008 at 04:23 PM

    Had you read this too Joan?  It was surreal and so hard to imagine living as he did.  It did make me feel...grateful.  I can still hug up my kids if they let me.  Thank you so much for stopping by.  I will be visiting your blog shortly.

    Reply
  5. Untitled Comment
    Rick Moore
    Thursday, October 30, 2008 at 10:41 PM

    Hello Merelyme!

     

    This review was marvelously uplifting to read.  To be able to have the opportunity provided by therapist was such a dazzling gift, and the fact that Jean-Dominque Bauby reached out and embraced the offering was like a burst of radiant light of a dark night.  Such indomitable spirit!

     

    To reach out for the everyday activities and rituals of life displays an individual of great spirit, because it is these things that weave a fabric for love of life, of person, of humanity.

     

    Thank you so much for this review.

    Reply
    re: Untitled Comment
    Merely Me
    Saturday, November 01, 2008 at 04:26 PM

    Well hello there Rick!  I really appreciate you stopping by.  Yes thank goodness he had the help of that speech therapist so that he could have some outlet for all his thoughts.  I will be doing more book reviews like this one so I hope you do come back again to read.

    Reply
    re: re: Untitled Comment
    Rick
    Saturday, November 01, 2008 at 04:29 PM

    Yes, I signed up (I think) to be notified of new posts here so that I can stay in touch.  Thanks so much for inviting me.

    Reply
  6. The Diving Bell
    Larry
    Sunday, November 02, 2008 at 09:27 PM

    Thanks for sharing this. I had not heard of the book before but not only does your account make one feel they have read it, but also they have lived it to an extent.

     

    Like you I want normal conversations most of the time. There will always be the subject of MS and its effects to talk about, but living a life of somewhat normalcy also includes the daily conversations of life.

     

    Great article!

    Reply
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