The Multiple Sclerosis Tapestry: Interviews with People whose Lives are affected by MS

Merely Me Living With It I am a mother, a writer, and now an MS patient I just got diagnosed with MS in October of 2007 although my very... Send Message Subscribe: Merely Me

Monday, November 17, 2008
View All of Merely Me's Posts

Name: Stephen Harris Type of MS: The bad kind. actually, my neuro thinks i'm on the cusp between Relapsing Remitting and Secondary Progressive, I think and the other neuro I saw last week thinks I am solidly into SP. Blog link: One Life When I first met Stephen on-lin...

Hide Comments | Add comment

I'm with Stephen
Paul
Monday, November 17, 2008 at 05:18 PM

MS sucks. All the marketing in the world can never change that. Drugs may be of some benefit but until they cure, restore and prevent, that's the best opinion I've ever read of MS.

The whole interview is to me, extraordinary. In his demeanor and writing to his advice for patients and doctors. I like the breathe thing and intend to do more of it.

I've, though he doesn't know me, just met a man I like and respect.

re: I'm with Stephen
Tery/Dreamwriter
Tuesday, November 18, 2008 at 08:22 AM

I Find that we all know deep in our gut that something is wrong and unfortunately people and doctors don't hear us. The key thing is to never give up hope and realize that someone will listen.

Great article! I learned a lot about MS when I thought I knew it all.

re: I'm with Stephen
Merely Me
Wednesday, November 19, 2008 at 12:02 PM

I am with you. I think Stephen gave a remarkable interview. I am gaining so much by reading how other's perceive this illness and how they make sense of such chaos. I like how Stephen looks at the big picture as a way to cope. And yes...MS sucks...big time. I do thank you for your words and I am glad that this interview has resonated with you.

One Life Indeed
Lisa Emrich
Tuesday, November 18, 2008 at 03:00 PM

Thank you Stephan. Thank you Merely Me.

re: One Life Indeed
Merely Me
Wednesday, November 19, 2008 at 12:08 PM

And thank YOU for reading. He really did a wonderful job with this.

Another interesting story
Joan
Tuesday, November 18, 2008 at 07:10 PM

I really love Stephen's "one half day at a time" comment. I am going to adopt that philosophy, and I'm definitely going to check out his blog. Thanks, Stephen!

Thanks, Merelyme, for sharing another interesting thread in our tapestry.

Joan

re: Another interesting story
Merely Me
Wednesday, November 19, 2008 at 12:14 PM

Hey! So good to see you Joan.

yes this philosophy works for me too. we should have a running list here...of how to get through the day. Add Diane's aspirin and a fan...and we have a plan.

I hope you are doing well and I will be by to catch up on your blog very soon!

Untitled Comment
Nadja Tizer
Tuesday, November 18, 2008 at 08:21 PM

"Only my reaction to it is entirely my responsibility." This line in particular resonats for me. I am just beginning to learn this. I have reacted to each experience in my life with a dramatic knee-jerk and I am just learning to notice it. I may still not control it in the moment but in the long run I am dwelling less.

re: Untitled Comment
Merely Me
Wednesday, November 19, 2008 at 12:17 PM

Yeah...this is wise advice indeed. But it does seem that some of us are given so much to deal with...it is really hard not to just...react. I like to go into my shower and scream and wail myself.

I hope you are doing well and I want to thank you for coming by to read and comment. I will be visiting your site soon. Sorry for being so neglectful lately. Life, as always, is nutty nuts.