Interesting post, Merely Me. I didn't realize MS could cause euphoria. Wish I had that problem. :)
Aside from the normal weirdness, the only unexplained weird thing that has happened has to do with extreme vertigo. I frequently have vertigo. But on a couple of rare occasions, I have been in bed and the vertigo has gotten extreme, like a rollercoaster. I usually hate rollercoasters since they make me feel sick, but on these occasions, I've gotten almost giggly and felt a little "high." I just laid back and enjoyed it. The first time it happened was the night before I had a collapse that put me in the hospital. I've wondered if there was a connection.
I'd be curious to know if anyone has had anything like that happen to them.
wow...that is pretty wild julie. i must say...i have not had that experience yet. I have felt lightheaded and off balance but not quite vertigo i don't think. something to look forward to.
i kinda wish the euphoria would come more often. depression is the mood which predominates for me.
thanks so much for sharing your experience. i have to come and catch up with your posts.
I have had that too Julie. My neurologist sent me to an ENT doctor and I was diagnosed as having Benign Paroxymal Possitonal Vertigo or BBPV. I was told it is somewhat common with MS patients.
I am not saying that is what you are experiencing but it would be good to have it checked out. I agree, it is a wild ride sometimes. You seem to have a great attitude and that will carry you far in this world, especially having to deal with MS.
Carolyn
I, too, experienced terrible dizziness and vomiting before landing in the hospital for 18 days. At the same time I was losing the function in my right leg, but it was the relentless vomiting due to the vertigo that really pushed me over the edge. I have certainly learned my lesson and pay more attention to my body the next time I start experiencing dizziness as it appears to be a sure warning sign of bad things to come.
Interesting. I sometimes . . . errr . . . often have a horrendous MSHug attack before I start a long flare of my other obnoxious sx. Lately it's been happening too often and these sx just seem like they'll never stop. Right now I'm suffering from bilateral TN, tingling to numbness in both hands and/or l'hermitte's syndrome (my rt hand is into it's third week of numbness), extreme electrical pain in my rt hip that only gives me a little peace while I'm swimming (good thing I do that every morning for almost an hour 
).
One of the gp's I've been in touch with over the years once told me: "don't try to put lables on the pain; it's YOUR pain!"
Oh, as a for "euphoria", I don't think that's where I am. Since I stopped working in 2002 I've just found my own balance, lost the stress of juggling my physical self with my obligations to whatever, and started flowing in my own stream 
. Call it what you will.
Have a beautiful day,
Maris
Yes Nancy
I know exactly what you mean...it feels like...maybe riding a skateboard and constantly adjusting your weight. This was one of my prominent symptoms right before being diagnosed.
I would do some of the neurological tests at home such as the heel to toe walk (like the sobriety test police use for drivers) and I kept falling over to one side. I knew that was mighty unusual.
Thanks for your comment.
MS has turned you into your own entertainment center, not always a pleasant kind, but certainly interesting and surprising. I have seen variations of euphoria; a person who approaches their surroundings as if seeing each item for the first time, apparently as few others can. It is a beautiful world, much more colorful, deeper and vibrant, I'm told; it was curious to witness and left me feeling slightly empty. I don't know if you experience that but it must be something quite different. Just not worth the price of admission.
The number thing is wild. I don't suppose you total the amounts rapidly too?
Hey Paul...
I wish my MS did give me super human mathematical powers...but alas...no...I still can be found counting on my fingers. The euphoria is kinda nice though...I could use more of that feeling.
So nice of you to stop by. I am sure I will have more to add to this symptom list as time goes by. Thank you for your comment...
As a caregiver, I have had a few of these symptoms described to me and wondered... is this MS or something different. This really helps to know that these weird symptoms can indeed be associated with MS, and it really does make sense when one remembers to remember the illness is affecting the nervous system, which does run everything. Thanks for describing these in such good detail.
Thank you for another interesting and informative post, Merely Me. What does your neurologist say about these symptoms? Is there any chance they are seizures, possibly MS seizures? Have you ever had an EEG during one of these 'episodes?' I have been having seizures for at least 12 years, which were the final factor in my having to stop working, although mine have more of a physical effect during the episode and afterward I am somewhat disoriented. They are very different from what you describe but I wonder if there isn't something like that going on.
As one of the other Commenters noted, the central nervous system controls all our physical actions, mental abiities, and emotional states so, while it may sadden me, it doesn't surprise me when someone with MS describes strange occurrances.
I wish you well with these and all the other life-changing MS symptoms you live with every day.
Stop the presses!
I just saw your comment and had to respond right away. Seriously? You have seizures? It seems everyone makes it seem that you can't have MS and seizures. I did have an EEG and they provoked a seizure, as in my entire right side was convulsing. But they said it was not a seizure.
I definitely want to figure this out once and for all because...some of the stuff I do...my friend who has threee kids with epilepsy...she says are all seizure like.
I would like to talk to you more about your experiences.
You are a wealth of information and I am glad you are a participant of this site. Thank you Denise for all your comments and support.
I have experienced many of the things you mentioned. When I first got sick I could suddenly do math and numbers finally made sense. I have also had moments of the heightened euphoria and the depression and anxiety. I get the nausea all too often. My scalp and the back of my neck often get tingles of hot or cold. I also get strange patches of numbness. Sometimes I briefly lose feeling in my hands or feet. It also seems like my pitch has improved. I always could hear music but now I am pretty sure I have perfect pitch. My IQ went up and I actually took the test to prove it to myself. Sometimes my brain gets really foggy and I also lose thoughts or words.
These are just the stranger symptoms. I have others but I have heard of those from the literature.
Wow Nadja...I would like to raise my IQ too. I feel myself becoming "dumber" in that I can't think straight half the time. I am glad I am not alone here in experiencing some of the more strange symptoms. We should make a grand list.
Thank you so much for coming by and adding to this discussion. I always love seeing you here.
This is definitely an intersting subject, Me. I don't know where to begin after the weirdest stuff I can imagine that's been happening to me for close to 30 years, even before I knew what was going on. I'll just list as many as I can:
* phantom smells up my nose
* phantom tastes
* total numbness down the rt side of my body for 2 months (happened twice)
* feeling of my toe, foot, or leg being bitten by something while swimming in a swimming pool
* feeling of things crawling on me
* total feeling of bliss / euphoria almost all the time
* balloon-headedness
I know there are lots more, but at the moment my mind/brain doesn't want to cooperate 
Peace & Serenity,
Maris
Hey Maris!
I am so glad y'all are coming by to tell me these things. I thought I was going nuts. I haven't experienced the phantom tastes and smells...I hope they are of good things! And so you get the euphoria too? That symptom...I like. But I also have the depression and anxiety too.
Thank you for sharing you experience here. It will surely help others who may experience these things too and wonder if they are the only one.
I feel like I'm going back and forth in time. I guess I did agree and called some of my feelings "bliss and/or euphoria" back last year when I answered this the first time. Now I'm not sure that's the right terminology, as I mentioned earlier today.
If it seems strange, now I've forgotten what I really wanted to say now . . . thinking . . . oh yeah, phantom smells/tastes. They've all been unpleasant to bad so far 
. I'm waiting for pizza .
Cheers,
M
i have recently have been dx with CIS/MS a few months and i have had the drunk walk, numbers intreigue me their shape, size and often wonder if they are hard or soft... i often count people (10)(2 eyes 1 nose 1 mouth 2 ears 2 arms and 2 legs) over and over and over with new people i meet ... being in the Army for sometime now that gets difficult considering some of my brothers and sister dont have "10" anymore. Soduku seems to tame my numbers fetish. I have lost more than 30-40 percent of my vision in my right eye and have had the creapy crawlys on my left arm for about 9 months now (numbness followed by tingling and back agian). Recently it has become really hard to type because i believe that i am typing one thing and another comes out "sorry for the english and spelling).
P.S. Shot Fridays stink (gotta take my meds on the weekend so i can work on monday or possibly lose my 17 year carreer with the Army).
Hope everyone has a great weekend!
Hi merelyme. MS has effected me cognitively in many ways. One of the ways it has effected me, that gets on my nerves, is I cry at anything sentimental or sometimes for no reason at all and I can't control it. If I am watching a tv show and there is a hint of sentimental emotion I start to cry. It has become so common that my daughter can always tell when something on tv is going to make me cry. One thing I can no longer do is multitask. I have to focus on one thing at time. I can't process information as well as I could before. Etc, Etc. The list goes on.
Merelyme, I also have a son with a neurological condition. He was okay until 5 years old. When he was 5 he had to be hospitalized because of encephayltis which caused trauma to his brain and now has disabilities that he has to overcome. It is a big challange to deal with your child's problems when you also have problems.
I enjoy reading your post. Thank you for your insight.
Hey there
I will tell you...I am the same way. I can't tolerate the commercial about the dogs and cats with sarah mclaughlin. I have to turn the TV off. For me...this isn't MS but I have just always been that way to cry at things.
I am sorry about your son. I can empathize. My youngest son has autism. It gets real interesting...the day to day life with his and my neurological conditions. And it is very hard.
I am very glad you have come to this site...perhaps I will write more about my experiences with my son. This MS thing is hard for anyone...but when you have children...it is just a whole different ballgame.
Thank you so much for your comment and I look forward to hearing more about your experiences.
Oh yes, I had to stop, working doing audits I had done for a long time, I could not pull it out of my brain. I knew how to do them, just could not access the info stored in my brain. Scary you think oh no dementia! Am I losing it will I ever regain my brain power? I have good days and bad still. Miss working but know it just wasn't fair to hold a postion I could not full fill any more. I had great co workers who would carry me or jump start me on my real bad days. I stepped up my B vitamins and it seems to relieve some of those symptoms. I love this site I just found it about a week ago and all of you have made me feel so much better about what is happening to me and how I have been treated during this whole ride.
Thank you so much for saying that. I had to stop working and ended up splitting up with my significant other because he was calling me lazy, which just made me depressed. But that's exactly what it was. I could not do the simplest tasks... and that's exactly what I freaked out about: I thought I had dementia or alzeimer's or something. I knew how to do things, but at the same time sometimes I just didn't.
So many of your symptoms I have had at some point in time and some I still get as the disease rears its ugly head. Even the sometimes inability to focus on a cinversation has hit me at times and it is confusing.
Thanks for sharing your symptoms and your feelings in this. Another fine idea that can help us all.
i am reading your article on numbers. I too have similar problem. heightened awareness. sentences from numbers also. Funny ,I always thought it was obsessive compulsive disorder. I have all sorts of problems. I have not been diagnosed. However there are times when I completely realize I am different from most of the world, that is to me anyway. diagnosed or not i have lesions on brain. It looks like a whw's who of little white mini snow pods. up there. Occipital lobe lesion. leg problems.Arm if holding up just goes "kerplunk". Foggy brain. insomnia, then complete exhaustion. I have just about given up. Now I have severe joint pain . so bad up all night. There are no normal sleep patterns. I also have essential tremors. At least that is so its called. I also suffer when I go into a large dept. store that has many electronic appliancs/tv/vcr/ lights/ etc.I also have COPD . on oxygen. Now Lately with increased pain in joints I have a lot more muscle hurts in both upper arms.I have bk. injuries. My back is terrible. Pain most of time. Feel like hurt hug. also pain in triangular shape from shoulders to small of back.. I have gotten used to dealing w/pain/ All the time.because of joints in shoulders now raising arms so much worse . well that is my crazy world.
Hopefully you are still checking these postings. I found out about my MS thanks to an MRI done after a car wreck. I thank God for that wreck because I've been sick for about 20 years and they never could find out what was wrong. I am 46 now.
One of my weird things happens while sleeping (which doctors say MS symptoms subside while you are asleep...I say BULL). It's only happened about 6 times in 20 years, but it's got to be related to the MS. I will be fast asleep and then my body begins to quake and tremor like crazy. I thought my husband was making it up, until I went to the beach with my mom and grandmother and shared a bed with my grandmother. I awoke to both of them standing over me in the middle of the night trying to wake me up because the violent shaking had scared my grandmother. It had been awhile since the last episode, but it happened again over the weekend, which got me searching, and led me to your wonderful site.
Other really weird things for me are my vision changes, walking problems, and instead of numbers (which I am very good with) I had a word, one word, "MUSTARD" which appeared in my mind when I closed my eyes. I don't know what brought it on, but it lasted for about 5 years, while I also experienced vertigo spells. I would see "mustard" everywhere. Not the condiment, just the word. It was really freaky. The "mustard" and vertigo were accompanied by feelings of intense deja vu. Keep in mind, I didn't know I had MS, so I thought I was going insane. I wonder sometimes if people who think they are profits, really are just experiencing MS related brain neuropathy episodes???
These three things subsided at the same time, but were replaced with vision changes. Some mornings when I wake up it's like I am looking through milk. If you wear glasses and go from cold temperatures into hot temperatures and your glasses fog up so that you can hardly see through them, that's what it's like. Other days I walk around with blinders on. It sounds crazy, but my vision might be similar to those racehorses they put the blinders on. I can actually see a large blacked out area in my field of vision.
Other major symptoms I have is that I never feel the urge to urinate (which causes it's own problems) and sometimes my left leg forgets to go forward when I am walking a straight line, which means I end up hitting the ground hard, usually face first. Gotta love that. I also feel like things are touching me that aren't there, like sometimes I feel like I'm sitting on a thick quarter-sized disk (nothing there) or like someone is poking me with a dull stick, like the eraser end of a pencil, but nothing's there.
The worst for me has been the short-term memory loss and the gaps in time. I don't know what happens to me, but sometimes it's almost like I go away. I can look at the clock one second, and it seems like 20 minutes later, an hour has gone by. I also have days where time just seems to drag and it seems like I can do four days work in one days time...weird!!! The memory loss is the very worst. It really scares me when my husband says he's handed me something and I argue with him that he never gave it to me and then I look down and it's in my hand, or I find it in my pocket. Or when I get home from the store and can't find my purse, and after searching the car and calling the store, later I find it in the refrigerator.
Like you say, there's never a dull moment. Hardy-Har-Har
Thanks so much for all of your useful info!!!
can you tell me more about seizures/tremors.
The docs ran mri/ mra, saw hypersentive white matter but told me that it's non specific. How can they not connect the dots to what is going on with me?
My sister has MS and one cousin that I know of has it.
However I have been having tremors that ended up turning into epistatic siezures, then myoclonic going in waves of every few minutes to every thirty minutes and lasting for up to three hours at a time before I could rest. This lasted for up to 15 days - even in the hospital.
But they placed me on ativan to keep the so called "tremmor" activity down and then began calling them tremmors as they were under more control.
I was loosing my ability to speak, my speach at times was slurred or difficult to make out the words after each seizure. I also began to experience euphoric periods of time after each seizure.
They dismissed me from hospital not knowing what it is that is really causing this.
I have done enough reading that If I am having a seizure deriving from the temporal lobe then it would affect my speech. NONE of the nurses, neurologist, nor gp told me this. They were clueless.
I need to get direction to a very good neurologist.
I am still on ativan at the moment and it is only keeping the episodes down to a minimum tremmor.
I have the strangest involuntary muscle spasms or movements. One is poking my tounge out suddenly, sometimes several times quickly in succession like a lizard. I also pull strange faces mostly with my mouth such as pursed lips, grimaces, wide open mouth or pouting lip. Sometimes my eybrow or both just go shooting up. There are many more, and luckily they mostly don't happen when I am concentrating or talking with someone.
I had the strangest things happen..... about 4 times, right before I fell asleep, one side of my face automatically went into a smile!!! it felt really good ,, but only on the right side and completely uncontrollable!!! hasnt happened again but I keep getting muscled twitches especially my left eye feels like the muscle behind it is moving all the time..... anyone else?
every once in awhile my legs just jumps for no reason and I have had my right eye feeling like the top of my eyelid would never stop jumping. That went on for a day or two an stopped but it has happened a couple times after that. I am still waiting to see if an officialy diagnois is going to be made...I have been told I had an occurrance of MS. I am going to a neurologist that specializes in MS at the end of the month to see if I can get some answers. It is good to know someone else sometimes has these things happen...I was beginning to think I was crazy..lol
Thank you, Ma'am! Thank you...
I needed to hear about your experiences and those of the other commenters. I'm new to the diagnosis and it's all very strange. I'm actually relieved to have a name to put on the problems I've had; and I'm ecstatic about the possibility of treatments for the symptoms. I should have pursued a reason for the problems long ago. Sounds like I've at least managed to develop a disease that fits my weird sense of humor. Thank heavens for small blessings.
I'll be reading the rest of the site. See you around!
Recently I have been fixated on word games,( On a certain website). BOGGLE. Three days in a row sitting with my face a few inches from my computor screen, ( because I can't see), I sit arranging and rearranging letters to make words fighting against the clock and playing with others online. Now all I can see is a imprint of letters and boxes infront of my eyes. I awoke the next morning after playing a good portion of the afternoon before and this insane boggling was infront of my eyes. All I could see was boxes, peices of what I was seeing was missing. Cubes moving infront of my eyes as if its image was burnt into my brain. And then it seemed as if I was trying to look through water. I started to cry without any control and then scream. The more I screamed actually the better I felt. Then my family especially my children held me and I didn,t want to be touched at all. The call went out to my 31 year old daughter and her husband and here they came and whisked me away for what they thought would be help, ( at the hospital). They assumed their mother had a stroke are a heart attack, I'm 49 years old have Ms and I scared them and I admitt not being able to see will indeed make one panic. I did. So I screamed with frustration and I think I liked it. This occurred also after a rather hot shower. Not smart. I really like word games and they effect me terribly. I used to be able to communicate well now at times I find it very difficult to exspress myself. I can't think of names of simple household objects writing this has been hard for me to find the words. There are many faces to MS and I'm just another face. And yes, being positive about it is so important. Not remembering what you used to do but what you can still do NOW is what to focus on. Yes sometimes I get lost and forget where I'm going and crying isn't always bad, yawning several times in a minute can be interesting to others but I still enjoy life so much and theres still alot of flea markets and numerous starry nights and beautiful sunsets to look at. Let us all move ahead and enjoy the sights. I love the upbuilding comments here, this is good for me. Thankyou for sharing. Each day is a new one.
But, I've been in sales for many years... from being a server to direct sales to 'selling' apartments. I was diagnosed around March of '08. It wasn't an immediate change, but over the last couple years I've migrated more towards the paperwork side of things. I was always about people but now, running a report or thinking of a new way to streamline a process gets me excited! I always thought it was just a natural progression for me to want to change my career focus, but I guess it's possible the MS has something to do with what excites me.
The only physical symptoms that were strange early on:
-I started limping. More than just a gait issue. I wasn't in any pain, but if I tried to walk normally, I would lose my balance completely and fall. (This went away, thank goodness!)
-My feet were freezing. Not outwardly, but the insides felt like blocks of ice. No matter what I did, placing them in warm/hot water, resting a heating pad on them, made a difference. Thankfully, that went away too.
-The last one that was strange happened a few times, but randomly over the first year and a half or so. I would get major dizzy spells. Twice I passed out. The first time, my Dad was with me and thought I was trying to be funny when i fell over and didn't respond for a few seconds. The second time, I was home alone. I went to grab a glass of OJ and the next thing I knew I was on the floor with the bottle of OJ next to me (luckily it was plastic and I hadn't unscrewed the cap yet :) ).
Something I'd like to throw out there for comments:
As an auto-immune disease, my neurologist has the mindset that taking anything to boost your immune system (i.e., echinecea or zinc to fight off a cold) actually feeds the disease and can make you worse. I have subscribed to this belief as I think it makes sense. Has anyone else ever heard this? It's rare that I find someone who has, although it makes perfect sense to me.
Hopefully everyone is doing well!
:)Ariana
Michigan
i was dignosed in 1999 with white matter diease.At that time i was a symtomamatic.I started to develope full blown flair ups.
At the time i didnt put two and two together.I started getting pains in my chest.Ive been to the er many times,each and every time the docters said it was a torn mussel in my chest wall.After a wile i just ignored the pain where i later realized it was a spazum.One night late like around 2 or 3 am.i woke upwith chest pain.It quickly went from chest pain to mid back pain.To leg pain realizing Iwas having a ms flair up.I really dont have any one i know that can understand what im going through.I had a total of maybe 4 full spazum flair ups.They can last from 1 hr to 6 hrs.
later i started doing some reserch and realized im not crazy.I also had times when my scalp or a part of my body is very sencative to the touch.Ive learned to live with it and as my pain management dr.once said im suffering in silence.
As id never wish this on anyone im kinda glad im not alone..
i was dignosed in 1999 with white matter diease.At that time i was a symtomamatic.I started to develope full blown flair ups.
At the time i didnt put two and two together.I started getting pains in my chest.Ive been to the er many times,each and every time the docters said it was a torn mussel in my chest wall.After a wile i just ignored the pain where i later realized it was a spazum.One night late like around 2 or 3 am.i woke upwith chest pain.It quickly went from chest pain to mid back pain.To leg pain realizing Iwas having a ms flair up.I really dont have any one i know that can understand what im going through.I had a total of maybe 4 full spazum flair ups.They can last from 1 hr to 6 hrs.
later i started doing some reserch and realized im not crazy.I also had times when my scalp or a part of my body is very sencative to the touch.Ive learned to live with it and as my pain management dr.once said im suffering in silence.
As id never wish this on anyone im kinda glad im not alone..
The thing is.The flair ups dont happen all the time.It varies..and most of the time i get no warning sometimes i try to stand and its extreamly hard to walk.Its a feeling thats really hard to explane..Its kinda like my legs arnt there but i can bare weight on them..it doiesnt last very log possiably an hr or so..But it can b kinda scarey..
living with a person with MS can be challenging to say the least. I have found that negative stress usually sets off excaberations that end up with my nuggle bunny going to the hospital (and nuggle is the correct word). encourage your spouse all you can, i know that sometimes you just want to run, but remember they are the one really dealing with the disease
Well, I won't dispute the euphoric feelings you have experienced, but I must say that has not been one of my many symptoms, and I have experienced a lot of strange things. But, since this is MS, there is nothing that I would doubt about it being possible. I have experienced strange itching, usually during the night, that would almost drive me crazy. I have had the hot patches all over my body as well as a number of other strange things. I must say the euphoric feeling is one that I wouldn't complain about if it happens to come my way!
I do enjoy reading your posts. Please keep it up!
I have yet to be diagnosed, but I am fairly certain that I have MS. For years I would go to the ER with symptoms ranging from "My tongue, lips, and throat are going numb" to "I feel like I can't breathe" to I have such pain in my neck and shoulder shooting into my head and/or down my back that I'm hysterically crying and can't get a thing done." My most bizarre symptom, when I know I'm in an attack because of pain and dizziness, is hysterical laughter upon facing some stressor. For example, I was in an attack for a couple days: my neck and shoulders were in so much pain I was tearful, I was feeling rather lethargic and had off/on dizziness and/or visual disturbances. I went to put something in the hamper and some rather large beetle thing scuttled out quickly; I jumped and squealed and yelled rather absurdly. That was the usual; the unusual part was what followed: a fit of hysterical laughter that left me breathless and exhausted. Weird, right?
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Are you sure these aren't just symptoms of being a woman? (Sorry, ignore that).
There is a Family Guy episode where Peter gets stuck on the old song, "The Bird is the Word." Can't stop singing it. Goes to sleep mumbling it. That often happens with me. I mean, not that particular song (thank God), but one song or another. I'll just keep singing it until somebody tells me to shut up.
Weird, very vivid dreams have been another thing that has come along with MS. I seem to go into a deeper sort of sleep than before. I will dream that I am doing something and be absolutely convinced that I really am, until I wake up and find I'm still lying in bed.
I do also feel happier in general, more at ease since MS--the euphoria thing, I guess. It's not like tripping out on LSD, but just a baseline shift in perspective or mood.
And there's more, of course. The weirdness goes on and on.
LOL...nope...I have been a woman my whole life and I have not experienced these things until MS.
And I would love to hear more about your weird symptoms. Makes me feel less of an oddball here.
Thanks so much for stopping by!
I have been making noises like hoots and strange noises kind of like torett's also some involuntary movements. Does anyone else get these?
Yep
I have these episodes of vocalizing when I experience tremors either during or before. I think it is a reaction to whatever part of the brain is being affected...kind of like a vocal reflex.
You are not alone!
Thank you for the reponse. Doctors act like I must be nuts for having these things happen to me and tell me I am to old to start with torett's but It isn't really that just you make moves or noises without wanting to. It's weird but I agree it has to be due to that area that is being affected in the brain.