HI,MY NAME IS JO.I AM ON THE FIBROMYALGIA SITE.I HAVE BEEN A GREAT RESEARCHER OF SEEKING KNOWLEDGE.I AM NOT SURE YET IF I HAVE MS.BUT I DO HAVE ALL THE SYMPTOMS.BUT AS YOU SAY THERE ALWAYS SEEMS TO BE OTHER ACUTE PROBLEMS THAT DELAY THOSE TELL TALE SIGNS OF MS IF ONLY OTHER PARTS OF OUR BODIES WEREN'T YELLING OUT LOUD.

2 THINGS RANG TRUE FOR ME ABOUT WHAT JEN SAID.FIRST THE UNPREDICTABILITY OF THIS DISEASE.I HATE IT WHEN SOME ONE ASKS ME IF I CAN DO SOMETHING ON SUCH AND SUCH A DATE.I HAVE TO SAY I CAN NEVER TELL YOU THAT UNTIL I WAKE UP THAT DAY.AND SOMETIMES IT CAN START OUT OK AND END UP VERY BAD.OR IT CAN START OUT BADLY AND GET BETTER LATER ON IN THE DAY.THE ONLY PROBLEM WITH THAT IS.BY THE TIME WE FEEL BETTER THE EVENT IS OVER.WE ARE FEELING BETTER.AND THE THE FRIEND OR FAMILY MEMBER SEES YOU AND THINKS YOU ARE USING THIS FOR AN EXCUSE NOT TO COME.

THE SECOND THING IS WHAT I WISH EVERY DOCTOR COULD UNDERSTAND.JEN SAID NEVER UNDERESTIMATE THE POWER OF THE PATIENT WISDOM.WE ARE OUR OWN BEST ADVOCATES.WE KNOW OUR OWN BODIES AND WE HAVE A LOT TO SAY.JUST PLEASE TRY AND LISTEN WITH OPEN EARS AND AN OPEN MIND.

THAT IS SO TRUE.I WORKED IN THE MEDICAL FIELD FOR 7 YEARS.I WORKED AT MAYO CLINIC.AND I THINK I PROBABLY WORKED WITH ABOUT ATLEAST 25 DIFFERENT SPECIALTIES.I HAVE SOMETIMES HAD DOCTORS ASK ME WHAT WAS WRONG WITH THE PATIENT.I SHOCKING SAID I BELIEVE THAT IS WHY THE PATIENT IS HERE.YOU ARE SUPPOSED TO BE A DOCTOR.WHO WENT TO MORE YEARS OF SCHOOLING.WHY ALL OF THE UNCERTAINESS OF THAT DOCTOR.DID HE JUST SLIDE THROUGH MEDICAL SCHOOL OR WHAT.I DON'T BELIEVE I WOULD HAVE MUCH CONFIDENCE IN A DOCTOR WHO WOULD ASK SOMEONE WHO JUST HAD A HIGH SCHOOL EDUCATION FOR MEDICAL DIAGNOSIS.

ALTHOUGH I HAVE BEEN ABLE TO TELL OTHER PEOPLE BY WATCHING THE WAY THEY WALK OR  MOVE.YOU HAVE FIBRO OR WHAT EVER.THEY SAY NO.AND WHOOPS A YEAR LATER THEY COME BACK TO ME AND SAY YOU WERE RIGHT.I HAVE ALSO BEEN ABLE TO DO IT TO MYSELF.

THAT IS SO FRUSTRATING TO GO THROUGH HUNDREDS OF TEST AND NEVER GET ANSWERS.ALL NEGATIVE AND NORMAL TEST???WELL THEN WHY CAN'T I WALK OR MOVE OR DO ANY OF A THOUSAND LITTLE THINGS I DID IN ONE DAY.WHEN I WAS YOUNGER RAISING MY 3 GIRLS.I GUESS I JUST IGNORED THE PAIN AND PUSHED THROUGH IT BECAUSE I HAD GIRLS TO RAISE.ALL BY MYSELF MOSTLY.

I WANT TO END THIS BY ASKING IF ANYONE GOES THROUGH FEELING BETTER AT NIGHT TIME.I MEAN IN THE MIDDLE OF THE NIGHT.WHEN THE PHONE WON'T RING.AND MAYBE BECAUSE IT IS THE LEAST STRESSFULL TIME FOR US.I SUFFER FROM SEVERE SLEEP APNEA.BUT I HAVE ALWAYS SAID I AM TIRED BUT I AM WIRED.EVEN THOUGH I KNOW I SHOULD TURN OFF THE T.V.I USUALLY COME IN HERE TO WORK ON THE COMPUTER.I SEEM TO FEEL BETTER MENTALLY AT NIGHT.ANYONE ELSE FEEL BETTER AT NIGHT MENTALLY. JO