Interviews with People who have Multiple Sclerosis: Meet Jen

By Merely Me, Health Guide Monday, April 20, 2009

 

 

What advice would you give to someone who has just been diagnosed with MS?

 

I would say that so many of us have already been in this position. Whether our cases are mild or severe, every one of us has experienced fear, isolation, sadness, and uncertainty.  As time goes by, patients become more acquainted with the disease and it might not be the biggest thing on a person's mind. We grow to accept what is going on and it's not always awful.

 

 

What is the worst thing about this illness?

 

I don't enjoy the unpredictability. It makes planning things difficult.  But I find ways to work around this.

 

 

Are there any silver linings to having MS?

 

I have learned so much from having this disease. I'm a big jokester by nature, but I have acquired serious compassion, some patience, tolerance, and tenacity. I have pared down my lifestyle and I now enjoy the simple pleasures a lot more: a great cup of coffee, a good read, easy friendships, family fun, and really good food.

 

 

 Do you believe that we will see a cure for MS in our future?

 

This is hard to say. My neurologist believes there will be a cure in our lifetime, so I'm hopeful. In the meantime I'd settle for an oral disease-modifying drug with a higher effectiveness and less side-effects.

 

 

 If you could tell all the doctors and neurologists something that they would listen to, what would it be?

 

Never underestimate the power of patient wisdom. We are our own best advocates, we best know our own bodies, and we have a lot to say. Please listen with open ears and open minds.

 

 

 Last thoughts?

 

Thank you for providing these bios, Merely Me. They're definitely showing the full spectrum of the multiple sclerosis experience.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1955) >
By Merely Me, Health Guide— Last Modified: 11/18/11, First Published: 04/20/09