Friday, March 12, 2010
  • Font size
Receive a FREE Osteoarthritis of the knee pamphlet. Start here.

Interview with Mark Miller: MS Patient who had Endovascular Surgery for his MS

Merely Me
Merely Me
Close
I am a mother, a writer, and now an MS patient

I just got diagnosed with MS in October of 2007 although my very...

Merely Me

Tuesday, September 08, 2009
View All of Merely Me's Posts
In my previous post I introduced the theory of a researcher named Doctor Zamboni who believes that the Multiple Sclerosis is not primarily an autoimmune disease but a vascular one.  The theory that Multiple Sclerosis has a vascular cause is called Chronic Cerebrospinal Venous Insufficiency which...
  1. Endovascual surgery for MS
    Michaelbgerber
    Tuesday, September 08, 2009 at 06:37 PM

    I think that this is amazing and remarkable. While I am not running to Stanford to get it done, I am anxious to learn more. There is a certain logic to it. Will the effects last? I sure hope so.

    Great reporting. Thanks for keeping us informed.

    Michael

    Reply
    re: Endovascual surgery for MS
    Mark_w_MS
    Tuesday, September 08, 2009 at 07:16 PM

    Hey I hope so too!

    She's done a spectacular job on the topic btw. :)

    Reply
    re: re: Endovascual surgery for MS
    Merely Me
    Tuesday, September 08, 2009 at 07:40 PM

    Thanks so much...Mark and Michael!

     

     

    Reply
  2. My Picture
    Mark_w_MS
    Tuesday, September 08, 2009 at 11:42 PM

    In case anyone makes it this far, wanted to illuminate the picture on the first page just a bit. That was taken before the surgery, not afterwards. You should be seeing one jugular vein coming down there, not all those branches (called collateral veins). After the stent placement in precise locations, those "extra" veins dry up because the blood is flowing where it is supposed to go! In ONE vein. That means you don't have this blood turbulence wherein some gets through and some backs up or "refluxes" into the brain where it's not supposed to go. This is the start of the process (according to the current theory of course) wherein the body does all the wrong stuff for all the right reasons, and you "get MS".


    During the follow up next month, I will have that very same shot but I guarantee you it will look totally different! I'd also like to echo something Lew has said, which was my reasoning for pursuing this further: Can't hurt fixing narrowed veins coming off the brain! That's at the worst of it. In varying degrees of "better", I feel like I "got my brain back" and it's getting better every day. You can't tell me that one month ago, I was barely functioning midday until about 9 pm (and it was bad), to overnight just bouncing off the ceilings all day and no, I'm not on ANY drugs. :)

     

    All that within the course of a few weeks is all the proof I need for my own life and quality thereof.

     

    Mark Miller

    Reply
    re: My Picture
    Merely Me
    Wednesday, September 09, 2009 at 10:04 PM

    Hi Mark!

     

    We definitely want to hear more about your journey with this procedure...and how things develop in the future.  Thank you again for doing this interview and sharing your experience here with us.

    Reply
    re: re: My Picture
    Mark_w_MS
    Friday, September 11, 2009 at 07:07 PM

    Thanks for having our merry band of CCSVI'ers on!

     

    :) Mark.

    Reply
  • Font size
  • Bookmark
  • Thank you for your input
  • Save
  • RSS
  • Report Abuse

Ask a Question

Get answers from our experts and community members.

View all questions (1184) >