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Merely Me Living With It I am a mother, a writer, and now an MS patient I just got diagnosed with MS in October of 2007 although my very... Send Message Subscribe: Merely Me

Monday, October 12, 2009
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As I write this I am thinking about the first time I posted on this site. I had MS for a little over a year and was writing about my experiences on my personal blog. I was so grateful for the help and information I had received that I wanted to give back. And my writing was a way to do th...

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your absence from this site
Jeannette
Monday, October 12, 2009 at 03:08 PM

Dearest Merely Me,

I am in tears as I read of your absence from this site.I understand and feel your reasons. The mark of a greatness is ones impat upon another .I can feel you,thus your absence will be acutely lost for me.The blessing of extreme presence,coexists with the pain of absence. I feel your existential and tangible loss from my moments.I wish you to be embraced with well being in every aspect of your life.

With deepest of sincerity,

Jeannette

re: your absence from this site
Merely Me
Monday, October 12, 2009 at 03:56 PM

Oooooh nooooo now I am gonna cry too. This is really hard. I am glad that I did make a difference. That is what I was hoping for. But know that you all helped me probably way more than I could help anyone.

Well...I am hoping to leave you in good hands. My good friend Vicki Bridges is still here and she has been such a comfort to me from the beginning. I have always looked to her...to know...hey if she is surviving this as well as she does then maybe I can too.

I will be over on those other sites and especially the depression site...I hope you all can come over and visit me there.

Your comment means the world to me...thank you so much. And I wish you the best in everything. Let's hope for a cure for this disease...perhaps in our lifetime even

Thank you again for your touching words...

re: your absence from this site
momdukes
Monday, October 12, 2009 at 04:05 PM

Handbags Are Us!

Merely, You will be truly missed, who is going to keep me in line.... You know I have a tendendy to step out every now and then, and I need that push, what am I going to do? Well now I guess it will be left up to the others, they have got their work cut out for them! I will continue to buy handbags, in fact I am due to buy a new one now, it has been a while since I have bought myself one, so I will buy a new one in your honor! I will surely miss you on this site, but we will be in touch. I am not going to cry right now, I am playing in my new Mac makeup! Take care Merely and always stay positive like you always are!

sherry/smomdukes

re: re: your absence from this site
Merely Me
Monday, October 12, 2009 at 04:52 PM

Thanks so much Sherry! I know you won't be a stranger...you are only a Health Central site away. Of course I will visit over here now and then just to see how you all are doing.

Shuckaroo....this is hard. It has been an honor to get to know you all. You guys are great!

Your leaving
Paul
Monday, October 12, 2009 at 05:17 PM

I have been an observer from your beginning at this and other sites. I know full well the power of written words, when wielded by an expert craftsman, to form art; a gift, to convey all the human emotions from strength to frailty to fear to triumph and joy.

You, better than anyone else I have ever read, are able to connect with others. To tell your story and give so much in doing so. I regret your having to leave writing anywhere. I like that Vicki will be here because her writing and spirit capture the personality of so many good people caught up in this affliction. Where your and their strength comes from, I cannot fathom.

I personally feel that you have transformed this site from when you began. All the innovations, the interviews with patients and doctors, Questions of The Week, the discussions of alternative care, discussions about the pros and cons of using or not using the MS medications has really helped to create community here. It is thriving.

You are going to be missed; a hole I do not believe can be filled, though Vicki may, in her own way, succeed as well. Maybe someday you will come back to write in peace and gather people once again with your gift. Thank you for all you have given.

re: Your leaving
Merely Me
Monday, October 12, 2009 at 05:50 PM

Thanks Paul!

Your words are much too kind. I have been fading out for months now so I am just amazed that anyone still comes to comment on my stuff. I feel very guilty that I could not do everything I wanted to do. If only things had been different....and I could have been more visible here and could have contributed more. But there are some things you just cannot change. I can only change myself so...I am hoping my leaving will be a good thing. But know that I am very sad about it.

Sorry for my jibberjabber.

The members are what make the site great. I hope everyone in limbo gets some answers soon. Some stories will last in my mind for a very long time. I am hoping we will get some new fantastic drugs in our future so we don't have to worry about MS anymore. Anything is possible!

Thanks so much for your words...they mean a lot.

Thank You
tellnhelen
Monday, October 12, 2009 at 08:02 PM

Your writing and your aproach to our illness has been inspirational. I found your choice and handling of your weekly question was creative and on-point. I think I will mostly miss your honesty and compassion. Good Luck. God Bless and maybe we will meet on another site. Sincerely, Helen

re: Thank You
Merely Me
Monday, October 12, 2009 at 10:09 PM

Thank you!

It has been a real pleasure to write here and I wish I could have stayed on to get to know you all better. But you are right...I am merely a site or two away! Any time you want to visit me y'all know where I am.

I love your attitude and positive spirit...I do hope you keep reaching out to others who need your support. Thank you for being such a wonderful part of this community!

re: re: Thank You
momdukes
Tuesday, October 13, 2009 at 11:02 AM

Gonna miss you writting here MM, but we know where to find you. We all wish you Gods Speed sherry/smomdukes

Question of the week...
Merely Me
Wednesday, October 14, 2009 at 03:11 PM

Hi guys...just a little note...the question of the week which I usually do each Thursday...I am going to ask that Vicki Bridges take over this feature. Vicki has been doing such discussions for a long time on her own personal blogs so...I think she will be wonderful at generating such discussions here as well.

God be with You
Hollyk
Tuesday, October 20, 2009 at 03:00 PM

I am going to miss your encouraging and enlightening posts as well as the support you've given me personally! Take care and God be with you and your family!

Holly