Saturday, May 25, 2013

Limitations suck!

By Julie Tuesday, January 25, 2011

I don't think of myself as impaired or disabled or limited - most of the time. I work, I ride a bicycle, I host family dinners, I'm engaged in life seemingly as much as the next person.

 

But limitations have crept up on me and when I hit one, or it becomes glaringly evident, it sucks! A few weeks ago, I went to Hawaii and one of my goals while there was to conquer my fear of heights and go ziplining. Turns out, it was no problem. I leapt off the platform with eyes wide open and couldn't wait to get to the next platform. It was a wonderful experience.

 

The activity that "got me" was the one I wasn't expecting. We went kayaking with several family members up a river to a trail that led to a beautiful waterfall, or so I was told. I wasn't worried about the kayaking part since I shared a double kayak with my husband - whenever I got tired (which was often), I sat back, enjoyed the scenery and my husband did the work. We had been promised a flat trail and the walk to the waterfall sounded easy enough to do.

 

When we got to the trailhead, the ground was muddy. We had expected this and all wore water shoes and sandals we didn't mind ruining. The part I hadn't considered is that it is very difficult to keep one's balance walking on mud.

Struggling to keep my balance, I used a large amount of energy to stay upright.

 

Soon into our journey, we had to ford a rushing stream. My adult son led me across (there was also a rope to hold onto) the waist-high stream, where I had difficulty picking up my weak left leg and planting it securely again on rather slippery rocks below. It took awhile to get across but I made it. Looking back, everyone else walked quickly across - no problem. I started to worry that my abilities weren't quite what I thought they were. I really thought that everyone else would have a rough time too.

 

Within minutes, I was so far behind the group that they were lost to sight. My husband stayed with me, taking pictures of the beautiful scenery, but I couldn't see any of it. I was totally focused on the ground and not falling into the mud. I had no thought of not making it to the waterfall until I stopped - about 45 minutes into the hike. My legs wouldn't move and my body sagged. My husband moved forward to hug me, anticipating a romantic moment in this amazingly scenic spot. I stopped him and told him I was completely exhausted and needed to turn around to start the journey back. I felt like crying at the thought that I would have to hike all the way back and then kayak to the car. I didn't know if I could make it.

 

I had taken it too far.

 

My husband went ahead to tell the group I had turned around and I found a dry rock to sit on and rest. I lifted my head and looked at the scenery. Wow. This was amazing. I realized I had seen nothing along the way except the muddy trail. I had looked at my feet the entire time in my effort to keep from falling. It was the moment I really realized that I had surpassed my limits. I sat there for 10 or 15 minutes, gathering the motivation to get up and do it all again. I let the beauty of the place inspire me and then stood up.

1/25/11 8:44pm

Hi Julie. I enjoyed your post and can so relate to it. I was thinking I new exactly what you were talking about. I went to Hawaii in October and pushed myself too but being in Hawaii ya just had to!! We did the kayak/then hike to a waterfall too. Luckily it was a dry day and I did okay. I just took my time and through some of it my legs felt like dead weight but I did finally make it. I did pretty good through the trip but it hit me when I got home and I slept for like a week:) It was so worth it though. Im not gonna let MS stop me BUT like you said we need to know our limitations when it can be dangerous to us. We arent always the most graceful creatures..haha. Im just a clutz! Im glad you didnt fall and it was all good! I bet the ripcord was so fun. You go girl! Howd you like walking through that sand?? my legs dont always work on flat hard land..me walkin through the sand was not a pretty site!!

2/ 1/11 11:49pm

First, I think you did good to undertake all of the activity that you did ---BRAVO!

 

My "limitations" story takes me back to my twenties (way before I knew I had MS).  Always wanted to ski.  However, we I finally got to the bunny slop I couldn't keep my balance on the tow rope. This was my first concious limitation although I did really know.

 

A few years later I took my neice to roller skate.  I could keep my balance then either.  At the time I could fathom have this illness...but it was limitation creep

 

Now I try to exercise everyday for strenght and endurance.  They say that exercise and diet are the key.  So I say to you   DON'T STOP YOUR ACTIVITIES.  In factthink about joining a gym or working out at home.  Many of us swear by exercise.  I think it's worth a try.  Chin up.

Lisa Emrich, Health Guide
2/ 2/11 11:10am

Hi Julie,

 

It sounds like you were able to do so many things on this adventure.  Good for you!  It stinks when we realize that something which used to be so easy is now very difficult.  It stinks to have to adjust expectations.  Living with MS requires constant adjustments (even if they are so small we don't notice).  It's great that you were able to enjoy the return trip and the beauty of the area.  I can picture it in your description.  :)

 

Vicki, Health Guide
8/ 1/11 9:38am

I think it makes sense that your balance tests you while walking in mud or waist-high streams. Maybe it only seems as if it was easy for the others.

 

Isn’t it nice that the beauty of your surroundings could inspire you? I envy you. My epiphany of limitations was in the middle of a Wal-Mart – yours was in Hawaii. It was not to easy to be inspired as I walked down the aisles of shoes and toys and plastic goods.

 

I think it is difficult  to grasp our limitations, especially because they may change. I also think it is admirable that you did it. Although you had to stop, you also had the opportunity to be inspired by the beauty of the trail that you blazed, including mud and waist-high streams. Wow.

 

It sounds to me as if you are living a fun and even adventurous life. As “they” say, “You go girl!”

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (2040) >
By Julie— Last Modified: 10/26/11, First Published: 01/25/11