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Why, Why, Whine
momdukes
Tuesday, May 19, 2009 at 09:36 AM -
We Want and Need to Hope... Want and Need to Believe
tellnhelen
Tuesday, May 19, 2009 at 10:30 PMJulie, I feel your frustration. I think we all need to hope. l believe somewhere in our hearts we want to believe our conditions can be corrected. Nobody knows how to do that and it hurts or makes us crazy. After years of denying that MS is a life-altering condition...it IS the hand that we have been given...what a bummer, huh? Well after years of self-medication, I finally sobered up and made some decisons. I decided (and you should for yourself) that while MS has a great effect on my life, that this illness WILL NOT define who I am or who I have been for 50+ years. I too am frustrated with medical progress or lack of progress. I'm not a doctor or a scientist. In fact my eyes glaze over when read some of the drug litertature. I do find ways to comfort myself.. sometimes in the evenings typing a sharepost. I also make decisions about what to do now..I exercise (in the pool), I am more aware of how my diet affects me and I faithfully take my vitamins. I say my prayers everyday and ask for guidance or at least meditate to try and connect with spirit..try it.
Maybe you can STOP always looking outside yourself for the answer and find peace within...It's scary...it's difficult and doesn't always work..IT'S LIFE...There is no pill to take but you have a life to live. I am finally putting a plan into action...following dreams...meeting new people...sharing lifes' lessons...and always seeking to overcome the negative emotions that creep into my conciousness. I hope and pray that you will do the same. May God Bless You.
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Why, Why, Whine
Julie, no one understands better than someone else who has MS. I use to ask "Why me, then "Why not me", I could not answer either question. I really do not think that there is an answer. MS is just one of those diseases that is out there that man has not conquered yet, and in our life time, who knows, they may not conquer it, but that is something that we are just going to have to live with, and yes, I am willing to do that, life leaves me no other choice. I too have symptoms that my doctors cannot treat, explain, or fix, but I have to keep going if I want to continue on vertical, and I do. Some days are harder than others, I experience some of the same things that other people with MS experience, and some things I do not. MS is a strange bird that is why doctors have a hard time getting a handle on it. You are not alone in this fight we are all in it together. Some choose to fight in private, others like myself, tell all! There is no shame in my game at all. I cannot half see most of the time, my glasses don't work, I can't walk all day, I fall, break bones, my knees hurt, they burn, and the fatigue is a killer, the bladder issues, well that is a day to day thing, I own stock in Poise pads. The list goes on and on, but I am alive and almost kicking! Continue to whine Julie, it is all right!