Wheelchair use versus risk of falling and further limitation of freedom

By Holly Elliott Wednesday, June 10, 2009

Hello:

In my past I have spent 12 years using a wheelchair and more recently I have been able to use forearm crutches......the freedom was amazing.

 

I am now in a crisis as with the progressive nature of MS my balance has become to rate 9 on a scale of 40 (40 being the higher function)

 

In reality I must look back at the major falls I have experienced - fractures included.  It would seem that I have to make the decision to continue with the risk and use crutches or be safe between the wheels of a wheelchair.

 

My question to you is:  What was the pivotal point that put you in a wheelchair?  When you sat in it for the first time were you aware that it would likely be in your life and for the rest of your life?

Holly

Vicki, Health Guide
6/10/09 11:16pm

Hi Holly,


When I first sat in my chair -- actually an Amigo scooter -- I did not think it was a lifetime commitment.  I guess I really didn't think of it at all.


I was having such problems walking with my cane, then with the walker, when I first rode down the sidewalk and felt the breeze in my hair -- that felt like freedom.  I wondered why I had resisted a chair for so long.


Now let's be fair.  The scooter is almost like a small golf cart, kind of cute and not really looking too disabled.  I could still walk, and actually the chair gave me enough rest to make the walking easier. I knew several MSers who used a chair as a rest between walks, and I had that luxury for years.


It was only a few years ago that walking was no longer an option for me.  I was eased into the idea, so now the chair does not seem so depressing.  I know I will not walk or ven stand again, but I know this lifestyle is manageable.  It is not what I would have chosen, but it is mobility.

6/11/09 7:52am

hello Vicki:

thank

6/11/09 7:52am

hello Vicki:

thank you

6/11/09 7:52am

hello Vicki:

thank you kindly

6/11/09 7:52am

hello Vicki:

thank you kindly for

6/16/09 9:26pm
Your story touched me. I have a scooter. My first scooter was from the No Boundries company. I really liked the name so I bought it. It was a great help especially on family vacations as well as continuing some type of work. I now find myself on my second scooter, a Pride Go-Go but I know I am slowly making my way to a chair for life. I am going to resist sitting permantly as long as possible but I have come to depend on my scooter out in public....This post has made me realize that I am already making the transition Thank you for sharing
6/17/09 8:18am

Hello, TellnHelen

     Thank your kind note.  Yes a scooter is a tremendous adaptive mobility tool.  I had one and it became my companion - free as the breeze!  After two accidents I was asked by the physicial rehabilitation specialist to hand him the keys and he would see that it got delivered to my home and arranged for other transportation for me.  I was in shock -- now when I look back at it my using the scooter was dangerous and as my sitting balance is compromised even with a seat belt on.  Spasms also enters the picture as hand control is not reliable.  I also have difficulty visually judging where obstacles are in my field of vision and the sense of speed -- these impairments eliminates my use of a motorized wheelchair.

     So now it is one day at a time and I can finally say that I have a sense of comfort it living in the moment and working at doing so in a safe environment.

     Thank you again for your support

Holly

6/11/09 8:02am

Hello Vicki:

Thank you for your response.  I have tired to place a comment moments ago however my screen disappeared and when I got it back there were duplications....I hope this reaches you intact.

     Yes, I have had the scooter experience as well and so well remember the first time I tired it at the shop where I purchased it....I went for a trial run in the parking lot - like yourself, the feel of wind in my hair was awesome.  After three major injuries I was asked by my physician to pass over my keys.  I am not able to return to the scooter because my sitting balance is not adequate to travel over bumps and my vision is such that it is only two dimensional thus eliminating the use of a motorized one as well.  Are you using a manual wheelchair and have you considered using a motorized one?

     I sense that I am homebound and I know that there is something I can find to do at home in which I can be passionate about.....what do you do with your down time?

Thank you again for sharing your experience

Holly

    

6/11/09 9:25am

OK Holly, am I the only one out here that refuses to use a wheelchair on a full time bases.  I believe so.  I can still walk in the mornings it is the afternoons that give me a fit and I use my wheelchair.  Call it a pride thingie.  I really need to get over myself.  I am so indepentent just tell me to get over myself.  I could decorate my wheelchair and it would really look cute like meKiss  I have such nice canes and I have them mounted on my walls, and they look so good, with pictures taken at the zoo from the

Africian exhibit , I know I am going to have to get one soon, I am a procrastintor, so I just need a little more time, I am coming, I am just bringing up the rearWink but I am coming  Sherry/smomdukesKiss wait for me I'm coming!

6/11/09 9:41am

Hello, Sherry:  You hit the nail on the head when you refer to wheelchair surrendering as a "pride thing".  Like yourself I am very independent and tend to do without rather than asking a friend for his/her assistance.  I really related to your statement "get over yourself"....somehow that really rang a bell.

     I have a tendency to miss social functions when transportation issues crop up -- I have been resisting the offers of friends as my rigid-designed wheelchair is a handful for petite women and I have not wanted to expose them to this.  In actual fact I am pushing them away and from now on I will accept their offer and give them the option of doing so after explaining what becomes of the chair when putting it in a trunk of a car.

    Once again, thank you for your taking the time to respond to my concerns.

Holly

6/16/09 9:09pm

I spent the entire day moving around the city on my scooter.  Have no doubt that I would rather be on my feet with a cane or crutches but I would not have been able to keep up or to do it at all....so set pride (vanity) aside ....find a way to go forward...a girl's gotto do what a girl's got to do.....I'm trying

6/17/09 8:29am

Hi:

     Yes indeed - vanity is in the picture!!  It is something that I have to address as I am not moving forward as I have the potential to do so.

     There is one interesting fact that I am compelled to pass on.....when using the wheelchair for the first 10 years I noticed people on the street were uncomfortable in my space - cashiers, passing byers etc.  However when using the crutches - the picture was entirely opposite - people would fall over themselves to help open a door for me etc.  So the picture is complicated - I am vane, sense I am sacrificing pride, looking "unable", causing others to back away etc.

     I am finally coming to the point that what others feel, sense and think must not influence or reduce my freedom and quality of life.  I am finally living my mantra - carpe diem "seize the day".

     Thank you once again for your candid comments.

Holly

Anonymous
Anonymous
7/13/09 7:11pm

I came across the emails.  I have to admit I intially felt security and safety as well as freedom for going fast three yrs ago using a wheelchair and scooter but now I am very depressed missing everything I cant do.  I feel like I gave in to the chair.  I hope I can get out of this state.  hope I get to point where you are satisifed.  cheryl

 

7/13/09 8:22pm

My Dear Cheryl:  Your message has been felt deeply and my heart goes out to you.  I can so relate to what you are feeling and wish I could give you a big hug in hopes it would give you some comforts.

     Since making up my mind and surrendered to using my wheelchair  I continue to  feel I am moving backward -- not as they say today - "moving forward".

     I have recently returned to some support groups in my community in hopes that my life experiences and successes will calm the anxieties of others in a similar situation.  In my volunteer work with these support groups I have met some wonderful individuals who constantly inspire me.  Reaching out to them at this point is keeping me sane.

     Humor is my greatest medicine at this point.  I am beginning to laugh at myself and it seems contagious.

     Other avenues to avoid depression has been my return to a few passions I used to have ei - knitting, painting etc.  A great distraction from all the ugliness of disease.

    Do connect with me anytime should you need someone to reach out to. 

Chin Up - Love Everlasting

7/13/09 8:22pm

My Dear Cheryl:  Your message has been felt deeply and my heart goes out to you.  I can so relate to what you are feeling and wish I could give you a big hug in hopes it would give you some comforts.

     Since making up my mind and surrendered to using my wheelchair  I continue to  feel I am moving backward -- not as they say today - "moving forward".

     I have recently returned to some support groups in my community in hopes that my life experiences and successes will calm the anxieties of others in a similar situation.  In my volunteer work with these support groups I have met some wonderful individuals who constantly inspire me.  Reaching out to them at this point is keeping me sane.

     Humor is my greatest medicine at this point.  I am beginning to laugh at myself and it seems contagious.

     Other avenues to avoid depression has been my return to a few passions I used to have ei - knitting, painting etc.  A great distraction from all the ugliness of disease.

    Do connect with me anytime should you need someone to reach out to. 

Chin Up - Love Everlasting

7/13/09 8:22pm

My Dear Cheryl:  Your message has been felt deeply and my heart goes out to you.  I can so relate to what you are feeling and wish I could give you a big hug in hopes it would give you some comforts.

     Since making up my mind and surrendered to using my wheelchair  I continue to  feel I am moving backward -- not as they say today - "moving forward".

     I have recently returned to some support groups in my community in hopes that my life experiences and successes will calm the anxieties of others in a similar situation.  In my volunteer work with these support groups I have met some wonderful individuals who constantly inspire me.  Reaching out to them at this point is keeping me sane.

     Humor is my greatest medicine at this point.  I am beginning to laugh at myself and it seems contagious.

     Other avenues to avoid depression has been my return to a few passions I used to have ei - knitting, painting etc.  A great distraction from all the ugliness of disease.

    Do connect with me anytime should you need someone to reach out to. 

Chin Up - Love Everlasting

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By Holly Elliott— Last Modified: 10/26/11, First Published: 06/10/09