joguinn

Health Interests

Patient Advocacy,  Progressive MS,  Thriving,  Living as fully disabled-mostly at home

Drugs I am Taking

copaxone,  neurontin,  baclofen,  wellbutrin,  paxil

About Me

I am 44, a wife of 23 years, mom to 18 yr old college student, former professional with a dream job, who now is learning how to live her life as it is today-mostly at home and fully impacted by MS. The hallmarks of my MS are left sided symptoms that are starting to show up on my right, clear brain MRIs (they recently found 3-am I crazy to be so excited?), off the chart spinal test numbers, a tremendous 8-yr struggle for diagnosis and pervasive nerve pain. Currently I am learning how to live a purposeful and joyful life within the limitations of this illness.