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Saturday, November, 21, 2009
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Diagnosis...MS

BigCthenMS
BigCthenMS
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stay-at-home mom pre-k teacher retired after symptoms worsened

BigCthenMS

Friday, November 06, 2009
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Hello,

I was diagnosed with MS at the age of 48. The diagnosis came after having 6 chemo treatments and 30 radiation treatments for breast cancer.

 

After the radiation, I started having a little twitching with the left leg. A few weeks later, my left eye started going fuzzy. I went to the opthalmologist, and he diagnosed me with optic neuritis. He also set up a CT Scan. The scan was negative for tumors, thank God. So then, I was referred to a neurologist. After MRIs showed lesions on the brain, thoracic, and spine, the neurologist diagnosed me with Relapsing-Remitting MS. However, I have wondered if it has gone into Secondary Progressive since I have symptoms all the time and they might be getting worse. The symptoms that seem to be getting worse are stiffness, balance, and endurance (probably related to fatigue). I exercise as much as I can, which is not much. I swim in the summer and ride my exercise bike in the winter. If I exercise too much at a time, I cannot lift my legs or keep my balance. I have been falling about once a month, so that is a real concern of mine. I have been to a PT, a chiropractor, acupuncturist. They have all helped some. I have wondered about vitamins. Any suggestions?

 

I have not seen anything here about Mirapex for leg spasms or RLS. The neurologist prescribed Mirapex for me. It is actually a drug used for Parkinson's, but it works great for me. I have also been using 4-aminopydidine for stiffness and gait. It has helped me also.

 

Thanks for this website. MS is very frustrating. It is good for me to vent.

 

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