It's been hard to muster the mental energy to write for a long while. (In addition to forgetting how to create a sharepost-LOL) Except for the pseudoexacerbations from the extreme heat here in Dallas; I have been in remission for a few months. There are symptoms that seem to be with me permanently; but the extremeness is alleviated for now. Thank God for that!
I'm still out of work and there does not seem to be an end in sight. This is depressing; but I am not letting it bring me down. I'm still caring for my mother-in-law who has mid-staged Alzheimer's. It is hard at times; but I do what I can for now.
I've still not gotten any closer to confirmation; but that is because I quit going to the doctors. I only go to my PCP when I'm sick. He is certain it is MS as is my Optic Neurologist; but I just do not want to go through anymore testing, prodding and poking at this point.
Just wanted to drop a note to say hi to everyone!
) I hear you about the heat; we've had several days over 110...I don't ever remember it getting this hot here in Texas; at least not where I've lived. I am also ready for the fall; but we only have 2 seasons here; hot and cold. So it won't cool off here until late November...
HI Holly, boy that's about right on all fronts and I'm right there with you. I haven't been to neuro either - supposed to schedule a 6 month follow up for next month. Went to PCP for my inflammed joints about 6 wks ago - He also said he knew when he saw me 2 years ago what it was - MS. I told him where i'm at (clinically Isolated Syndrome) and I think his words were "what are they calling it now?". i think we left that statement with a smirk.
He suggested Phys Therapy for my balance issues. I was hesitant, it had been recommended b4 but I just couldn't deal with it at that point. My doc said "what have you got to lose? just see what happens." So I went and and the P/T taught me some good leg strenghting stuff which was good - there wasn't too much he could do with the balance stuff except for me to recongmize when i'm tipping over to catch myself b4 a fall - but I was already inately doing that on my own over time.
My PCP - also asked me about DMD's. I told him since i was where i was (Limbo) and NO new lesions (which is really good even tho it deters from dx) my doc and i had thought take the wait and see approach. He said since the ones I had hadn't changed in size they would most likely be there for good. We talked about diet, rest, pacing, etc. he said he has a very good friend with MS. He also doesnt do DMD's and said it's 20 years and he still has ups and downs but it hasn't "progressed". Everyone's so different so i guess we have to roll the dice and decide what directio we want to take for ourselves as far as that goes.
I'm sorry you are in a tough spot at this point on many fronts. Like our health - life ebbs and flows doesn't it? I'm glad you've been feeling physically "stable", (i guess thats the best word?) for the last few months. i'm hoping you get a big huge EBB in the stuff to handle and process. I'm sorry about what your mom and what you're going through. I know stress is one of the biggest triggers in my world. So I hope you are able to take a deep breathe and remember to take care of yourself in the process of caring for others. Anyway, I just wanted to say hello...keep me in the loop okay?
Suz
Thanks Suz!