Antiobiotics and Temporary relief

Hi Holly,

This is very interesting.  Whenever I've need to take antibiotics, the MS has also been acting unhappy (ie pseudoexacerbation).  And as the infection is eliminated, I get to return to "normal."

I am aware of some MSers who follow some type of antiobiotic protocol.  I do not know that much about it off the top of my head and would need to dig much further into the topic to be able to clearly speak to it.  It might be coincidence, but I can think of at least one MSer who follows this protocol who does it to treat lyme disease (which I remember that you said you do not have).

There are certainly drugs which lower the immune system (ie steroids) and there are drugs which modulate the immune system in specific ways (ie interferons or other therapies).  This is a very interesting observation on your part and something which I would definitely discuss with my neurologist (or other doctors) to get their input.  In the meantime, I'll see what I can find out about the "antiobiotic protocol."

Look into Colliodal Silver.  I am studying it now and it isn't as harsh as a man made Antibiotic. It is a natural antibiotic and has been used as far as my history knownledge since the 1800's.  All I can say is study on it...I am now but have been wondering about it and MS.  I know people who take it all the time...and have great results....but like anything you have to educate yourself.  I take low dose naltrexone for my MS therapy and for 4 years and have not had a relapse.  It is just amazing.  My neuro says I am his only patient not getting worse....and the other patients are all on shots.

Hope this gives you some thought. 

Two low dose naltrexone sites if you are interested.....

www.freewebs.com/lovelaugh/

www.ldninfo.org           

Holly,

I was diagnosed with Primary Progressive Multiple Sclerosis.  I have severe mobility issues and am currently shopping online for a wheelchair.  My Mayo Clinic neurologist told me that there is no treatment for PPMS.  I refuse to believe that there is no treatment and have been doing quite a bit of research online.

I recently discovered that many people believe that there is an epidemic of Lyme Disease in this country, and many people with MS and other diseases have been misdiagnosed.  Apparently, Lyme is incredibly difficult to detect.  Only IGENEX Labs in California does a comprehensive test, so tests from other labs often result in false negatives.

Since I would have to pay out-of-pocket for the IGENEX test, I haven't managed to get a sample to them.  However, I took the advice of a man with Lyme who was misdiagnosed with MS and I started taking Samento.  Samento, Cumanda, and Quina are natural antimicrobials that are used to treat Lyme and the co-infections that frequently occur with Lyme.

I don't know what the long term benefit will be, but I can tell you that in the couple of weeks that I have been taking Samento I have noticed a slight improvement.  I have a little more energy and can wiggle the toes on my right foot, which I haven't been able to do in a very long time.

Since I have nothing to lose and am no longer taking an injectible MS medication (none of which are used for PPMS), I am trying a number of alternative therapies in addition to the Samento.  I am taking Low Dose Naltrexone (LDN), 4-AP (soon to be available for MS as "Fampridine"), Sclero-Eze (which has an herb derived from hydrangea root), and a number of other vitamins and supplements.  I am also using Inclined Bed Therapy which may help me in the long run, but immediately stopped my husband's snoring and sleep apnea!  I am also following studies regarding MS and CCVSI.  CCVSI (chronic cerebrospinal venous insufficiency) is yet another MS theory.  It has yet to be determined whether CCVSI is the cause or a symptom of MS.

I would not recommend anyone with Relapsing Remitting MS do what I am doing, but you may want to research the Samento, Cumanda, and/or Quina to use instead of the antibiotics you have been taking.  If you decide to take the Low Dose Naltrexone in addition to your MS injectible, know that Copaxone is the only compatible injectible with LDN.

I am attaching some links in case you are interested.  Good luck!

Lyme Disease:

http://www.newswithviews.com/Howenstine/james26.htm

Samento, Cumanda, Quina:

http://www.bionatus.com/nutramedix/pdfs/L-townsendapr07.pdf

Hydrangea Root:

http://www.childrenshospital.org/newsroom/Site1339/mainpageS1339P1sublevel539.html

4-AP (soon to be available for MS as "Fampridine"):

http://www.thecompounder.com/ms4ap.php

Low Dose Naltrexone:

http://lowdosenaltrexone.org/

Inclined Bed Therapy:

http://www.newmediaexplorer.org/sepp/2007/04/12/medical_underground_inclined_bed_therapy.htm