lisadearlisa now living with ms

By lisadearlisa Thursday, May 13, 2010

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when i was younger i always new what i wanted to do with my life, and ms was not a part of it. but now that is all over and i had to learn how to live my life with ms and let me tell u it has not been easy. i had to give up everything i dreamed of and worked for all my schooling 7 years of college so yes i was a very bitter person but i have learned alot in my 15 years of living with ms. ive learned that i have to learn to roll with things and accept things as they r and i cant do as much as i use to but thats ok. i also know that i probably am never gonna be married and will never have children cuz i am already 40 and that lil clock is tickin away and theres no prospects cuz as soon as they hear ms i hear the words see ya,,wouldnt wanta be ya. but its ok cuz i have lots of nephews and i do mean lots of nephews im finaly gonna have a great niece in october i am so excited. i have 10 nephews 2 great nephews i love boys but where r the girls. they all want me to run and play they dont understand why i cant run and why i walk funny and why im sick all the time. i try to explain and my brothers r like they dont need to know that its like i should be ashamed of the ms. im not ashamed. im not proud but im not ashamed im just living with it. i adjust my life to exercising for ms. i dont drive cuz i have ms. i dont live like i use to cuz im on a fixed income now cuz of the ms. i live in subsidized housing now cuz of the ms. i eat healthier now. i am more independent now. i am stronger mentaly and physicaly. i have a closer relationship with God who without id be lost so i am very grateful for that. i have become a advocate for ms and very active in my ms chapter. i have groups on daily strength uplifting other members with ms and i help provide useful ms information. i also am battling a eating disorder. i have had anorexia nervosa since age 16. i am somewhat stable right now i have been at a stable weight for the past 8 months binge/purge free for 8 months so im doing good according to my docs. my only problem is accepting compliments and not thinking oh my gosh im fat. cuz im healthy and my ms is good. and thats important. so if theres anything ud like to know just ask me.

Comments (10) | Add comment

Vicki, Health Guide

5/15/10 5:52pm

Hi lisadearlisa,

There were some comnents that sounded positive — good for you! Also, the anorexa sounds as if you are really working on it. It must be hard.

I am really glad you are advocating for MS. That helps others learn, too. We need that. Please keep a positive attitude. You just keep going and you will feel great! It worked for me.

lisadearlisa

5/17/10 5:10pm

thank you for the positive input its appreciated. how r u doing with ur ms?

pam carroll

5/17/10 11:08am

have you heard about the new procedure that is helping with the disease, it's called CCSVI. It's hard to find someone to diagnosed and then to do the procedure, It's called the Liberation procedure. I'm still trying to find someone, I have some good leads, but if everything else fails, I will go outside of the USA

Pam

lisadearlisa

5/17/10 5:11pm

ive never heard of ccsvi what is it exactly?

pam carroll

5/17/10 5:49pm

Google "CCSVI", or Liberation. It's in the news, except in the USA. Dr Zamboni, a doctor from Italy discovered a theory that MS is not a autoimmune diease but a vascular problem. Quite a few have had the "liberation" procedure and many of the problems with MS have disappeared. Everyone is screaming for the procedure, but some doctors have been shut down. Check out the following site "thisisms"

Pam

Lisa Emrich, Health Guide

5/17/10 11:08pm

Hi Lisa,

Welcome to the community. Seems like MS really does change each of our lives in many different ways. We have a few things in common. I'm 41 and realize that children will not be in my future. But I also have nephews, although the oldest is only nine.

I'm glad that you've found our little community. I hope that you pull up a chair and hang out awhile. :)

Lisa

Hannah

6/26/10 12:10pm

I hope you realize that someone "out there" needs your love. I don't mean as a friend! You are very young at 41. Maybe too old to bear children but not too old by any means to be married and a stepmom. Time is passing. I'm almost 20 years older than you. I'm glad I didn't find out I had MS until I was in my early 50s or maybe having MS would have given me another excuse for avoiding committing myself to a marriage partner. Don't waste anymore precious time. I really believe there is someone(s) for each of us with whom we are meant to grow them and us in that special relationship of marriage.

Andrew

7/26/10 10:24pm

I would like to invite you to join a dating service for the disabled.

There are a lot of people with disabilities out, and a wonderful place to meet others would be such a forum. The love of my life, who I met there, has MS. There is hope for a future and happiness so please go for it.

david

8/ 6/10 11:08am

my symptoms are extreme when it comes to the hug. its been about two years since i first experienced this symptom. I t hasnt stopped since the first time i had this feeling. its annoying, painful and irritating. for me it feels like my rib cage is turning inside out if i twist the wrong way it will often double me up in a massive cramp that feels like im having a heartattack in fact ive had co-workers almost call 911 over a cramp. My ribs and stomach on my right side have been num for about 4 years and the feeling never goes away. My doctor told me thati it wasnt ms but probably was my gal bladder. i went to a internal specialist that did an ultra sound and told me my gal bladder was fine . It haunts me every day i wish this would go away NOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

rippletime

9/ 8/10 10:30pm

My first symptom 3 years ago was a strange numbness on the right side of my abdomen, between the hip and the bottom of my rib cage. It hasn't turned into a full-on MS hug and has only been a minor annoyance.

But last week I woke up and the bottoms of both of my feet were numb. I was in denial and thought it was a circulation issue. But it started getting worse and 3 days later both feet were tingling and numb - like they both had fallen asleep. I finally called my neuro and today I had my second solumedrol infusion of a 3-day course. This is crazy scary.

I should not have waited to call my neuro. I won't make that mistake again. I hope there isn't too much permanent damage. Good luck with your situation.

Mike

lisadearlisa now living with ms

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