Monday, May 03, 2010
I'm new to this blogging as well as new to MS...PPMS that is - since 10/2009. Most of what I read and have done research on speaks about RRMS. Is there anyone that can share with me what you do for the pain since there is no medication/injection that help PPMS? I am on Percocet, Paxil and Xanax as well as herbal supplements. Somedays I get emotional since there is no one I can talk to about this. My spouse just does not understand or just does not want to face the fact that I have MS...I can't tell which since he really does not talk to me about it. A friend or friends right now would be comforting!
Hi There!
I have RRMS rather than PPMS, so I don't have the pain that you do. I was recently diagnosed though, and it has been very difficult. I understand how hard it is when you feel like you are all alone with only your MS to keep you company! It is a real struggle.
I'm so sorry that you feel alone. My husband has a difficult time coping with my MS as well. He is a "fixer" and it makes him feel vulnerable and helpless when he can't "fix" the problem. I know that there are many people on this website who can offer great suggestions, and I hope they write you too.
In lieu of suggestions for medications or other helpful insight, I will just tell you that I am thinking of you and will be sending positive thoughts your way.
All the best.
Thank you for your response. I was reading your previous writings and I know what you mean when you discussed the MRI's and spinal tap. You must be very brave to give yourself the injections....at least with PPMS I don't have to do that. I guess it is all a frame of mind....everyone has their cross to bear and there is always someone who has it worse than you. I just have to tell myself that daily in my self talk. Thanks for sharing!
Hello and welcome to the site; I was dx with RRMS 02-09. My younger Sis was dx 04-10-10, with PPMS. This website has helped and will help You, my Sis, Me, and any one who seeks information about MS. I spent nearly a year on the Web. learning all I could about MS, before joining this site. Now like you, I'm learning what PPMS is about. IT IS WHAT IT IS, yes it could be worse. Hang in there & keep in touch, We are here to help! GOD BLESS YOU & YOURS....Mike....,.