MS and Self-Image: Having a Visible Disability

By Amy Gurowitz, Health Guide Tuesday, August 31, 2010

Big Wheels Keep on Turning, Proud Amy Keeps on Burning (rubber!)

 

Two weeks ago I, along with my family of three, went on a vacation to Seattle. We'd never been there and had heard that the coffee is spectacular. Wink It had been many years since our last vacation, back when we were a family of two, and I knew this would be very different.

 

My ability palette has a few less tools than it did 10 years ago when I climbed Masada in Israel. On this trip I had a motor and a comfy seat held in the front of the plane, waiting patiently for me.

 

Although I got my scooter over a year ago, I've had to force myself to use it planning trips to museums, sculpture parks, and zoos. Things that I want do, but can't without wheels. This reality is so hard to accept; scooting makes it obvious to everyone that sees me.

 

I am very aware of how people treat me with more concern, getting out of my way as I move through a crowd, (This may be standard behavior in Seattle even without a scooter, but New Yorkers need a clear signal to not to plow you down on the street with eyes rolling.) I can't help but to feel that this image isn't me.

 

I know all that this vehicle affords me. (Can you call it a vehicle?) I know that I can participate in ways I never could without it. But somehow I'm uncomfortable with how it feels to be hip-high in a crowd, eliciting question marked faces and sympathy from everyone I "run" in to.

 

What is your experience with your MS image?

MS and the 2010 Mid-Term Elections
By Amy Gurowitz, Health Guide— Last Modified: 05/20/11, First Published: 08/31/10