Amy:
I love the way you articulate the range of emotions we go through in seeking validation for our condition. Of course you don't want to be sick! But having a diagnosis is so important -- being left in limbo as to why these things are happening is crazy-making.
I was one of those fortunates (?) who was diagnosed within the first week. Since then, I've had numerous sessions with my neurologist about symptoms that may or may not be MS-related. Most have been. It calms me down to have that validation because then I can do something about it (rest, medication, etc).
I'm so sorry that you have this stomach issue. That's the last thing we women need! I hope you can adjust your medication to alleviate this. In any case, it must be a relief to know what is causing it.
Thank you for sharing your journey.
Thanks for saying Julie. I, like you, am the exception in that I was diagnosed after one week as well. While I didn't have time to speculate and doubt, I was thrown in to whiplash like shock. I'm sure that is a familiar feeling for you. Indeed it does feel good to have a challenge that, unlike so much of what we deal with, you can actually do something about. Compared to what I endure on a daily basis, this side effect seems insignificant. My husband and I amuse ourselves at the day's end trying to determine exactly what our alien baby will look like. Sometimes it's a preemie, but often it is clearly a 12 pounder! Time won't tell... but at least we have a laugh. ;)
Thanks for reading and for your reaffirming comment~
Best,
Amy
Knowing what your symptoms are brings up another UN word: understood. So many of our symptoms are unthinkable and unstoppable that they are often hard to understand. There certainly seems to be an unlimited variety of symptoms that we are exposed to. Many people are unwilling to talk so openly, unabashedly, about their disease and your willingness to do that however unpleasant, makes you one of our unsung heroes. If there was a contest, I would vote for you to be "Miss Understood".
Michael
LOL, Thanks Michael... I love the varied "un"s you've come up with. (Was this thesaurus generated?) I like Miss Understood- being that it connotes the opposite of what it sounds like... though, I prefer Ms. Understood. Not sure if it has the same effect, but the feminist in me insists! I hope you hold the same position in an election year. I'd be honored to woMan the post!
I always appreciate your comments Michael! Thanks for sharing~ (oh, and this subject line... I can't seem to find where it originated.. are you the originator?)
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This was great. It really hits home with the un's of it all. I had just been talking to a freind about the amibiguity and just having to more or less 'roll with it'. I loved they way you decribed it all and i laughed (not at your circumstance or situation with the 'un'diastatis), but because of the familiarity of emotions. Thanks ! loved the way you described it all