Sign in

or Register now

MultipleSclerosisCentral.com

See all of our health sites at www.HealthCentral.com
Sunday, November, 22, 2009
  • Font size
Receive a FREE Osteoarthritis of the knee pamphlet. Start here.

Question of the Week: Blue Plate Special

Amy Gurowitz
Amy Gurowitz
Close
Writer, Instructional Designer, Non-Profit Founder, Dx in 1988

A lot has happened since I was diagnosed with Multiple Sclerosis in...

Amy Gurowitz

Monday, November 09, 2009
View All of Amy Gurowitz's Posts
Living with MS can be very bizarre.  We each have a completely different menu of symptoms. And like any good 24-hour diner you can get any thing at any time – from grilled cheese to lobster. My special of the day is a warm bowl of dizziness with a side spasticity.  What’s on you...
  1. Untitled Comment
    momdukes
    Monday, November 09, 2009 at 03:58 PM

    Hi Amy and welcome to the fold!Wink  On my plate, and I have a big one with a lot of compartments, spascity, hurting knees, and no balance, with a touch, no not a toucha great big old helping of Fatique.  But I manage to handle it all in a day.  I have no choice, it is called "life".  Oh I forgot the bladder thingie, hey without Poise pads I would be lost, but I got it under control.  MS, well you just learn how to deal with the cards that life has given you.  I have.

     

    sherry/smomdukesKiss 

    Reply
    So True
    Amy Gurowitz
    Monday, November 09, 2009 at 04:21 PM

    Yes...  I too have many compartments in my TV Dinner! It is amazing how much we can eat in a given day... we take on whatever is being served. As you say, it's called living! Thanks for sharing.

    Reply
  2. daily menu
    djax59
    Monday, November 09, 2009 at 06:07 PM

    i never thought of it as a menu--what a novel idea. i have concrete legs from about mid-thigh down. they are numb but they hurt-something only another ms'er has understood. the dizzies--the floor and i have a good relationship going. we meet regularlly over coffee. it's a good thing that laughter is served for dessert.-remember to tip your waitress--djax59 

    Reply
    re: daily menu
    Amy Gurowitz
    Monday, November 09, 2009 at 07:06 PM

    I love this metaphor. I have a nice relationship to the ground as well, though we've never met for coffee~ I'll have to suggest it next time! Wink

    Reply
    re: re: daily menu
    djax59
    Thursday, November 12, 2009 at 02:53 AM

    the floor and i don't meet "for" coffe--it's usually "over" the coffee i spilled on the way down.Laughing

    Reply
  3. Blue Plate Special
    Lisa Emrich
    Monday, November 09, 2009 at 06:52 PM

    Appetizer: Nystagmus and left-overs from previous bouts of optic neuritis

    Main dish: Lack of balance and ability to walk straight

    Side dish1: Weakness in legs and persistent numbness on various body parts

    Side dish2: Fatigue (nuf said)

    Desert: Spasticity and RA symptoms

    Reply
    re: Blue Plate Special
    Amy Gurowitz
    Monday, November 09, 2009 at 09:09 PM

    Wow.. that's quite the buffet... Don't forget to add butter and salt when necessary. It really adds a sense of much needed control to the process. Wink

    Reply
  4. Diner Blue Plate Special
    Vicki
    Monday, November 09, 2009 at 08:47 PM

    H Amy, Welcome


    Today, I suppose it's chop suey, the American-Chinese odds and ends concoction with no clear nationality, no clear taste or even a consistent recipe.

    Reply
    re: Diner Blue Plate Special
    Amy Gurowitz
    Tuesday, November 10, 2009 at 07:58 AM

    A veritable MS melting pot! Thanks for posting Vicki.

    Reply
  5. A Blue Plate Buffet
    tellnhelen
    Monday, November 09, 2009 at 10:39 PM

    Hey Amy I'm glad someone is gonna do the question.  It's good for me.  Ok..my buffet includes: numb fingers--dropping things a lot & having a hard time typing;  poor balance; weakness & spascity....could probably go on but....I'll need an attitude adjustment if I do

     

    L e t's share some coping stories

    Reply
    re: A Blue Plate Buffet
    Amy Gurowitz
    Tuesday, November 10, 2009 at 08:00 AM

    Excellent suggestion. I thought I'd try and get the conversation started and then talk coping, but if you'd like to jump in to that cookbook.. you go! I'm sure we will all follow suit~

    Reply
  6. Untitled Comment
    Me - Jen
    Tuesday, November 10, 2009 at 01:12 AM

    Hello Amy & welcome :)

     

    The most significant for me is numbness, and some tingling in my legs..and my feet feel like ice cubes in the evening!  The desert dish (sleep time) my arm goes to sleep.

     

    I am grateful in the am when I am getting out of bed, even with stiffness and some dizzinss.  Wink

     

    Look for something special to be grateful for every am, and every day.

    Reply
    re: Untitled Comment
    Amy Gurowitz
    Tuesday, November 10, 2009 at 08:02 AM

    Yes, I hear you! I'm all about those positive moments and how to find/create them. And if we can laugh along the way, even better.  Smile Thanks for sharing...

    Reply
  7. Blue CUP Special
    Dar49
    Tuesday, November 10, 2009 at 02:47 PM

    Hey Amy,

     

    Well, I'm not here to eat, just want to grab a drink that will give me the illusion of energy, so . . . I'll take one large strawberry milk shake to go. Laughing Surely all that sugar will put some pep in my step and  even if it doesn't help with my fatigue, it will sure taste good. Plus the calcium is good for the bones, which as we all know is the primary reason we indulge ourselves with milk shakes. Wink

    Reply
    re: Blue CUP Special
    Amy Gurowitz
    Tuesday, November 10, 2009 at 04:48 PM

    Yes, count me in on that shake order.  I need the calcium~ ;)  I must say though, you may want to drink it here.. there are some very interesting peeps to talk to~

    Reply
  8. Untitled Comment
    garlicfrau
    Tuesday, November 10, 2009 at 04:28 PM

    Well, like any good meal plan, I tend toward variety, but with some daily standard menu items. My standards include a big helping of walker, the mid-day meal of fatigue, with snacks throughout the day of debilitating leg fatigue and varying lack of function in my hands.

    <!--Session data-->

    Reply
  9. Untitled Comment
    garlicfrau
    Wednesday, November 11, 2009 at 06:01 AM

           When I think on this again, I realize that each day with MS is  like going to the neighborhood potluck-----you never quite know what will be laid out on the table, and there is sure to be a few dishes which are not as desirable as others.  For instance, tonight I am 'enjoying' a tater tot casserole of insomnia.

    <!--Session data-->

    Reply
    symptom buffet
    Amy Gurowitz
    Thursday, November 12, 2009 at 07:14 AM

    I love it.  thanks for furthering the metaphor. While trying to deal with the constant readjustment to symptoms that are every-changing, it's all about comfort food for me... so this line of thinking is great fun. Today's potluck seems to have more dizziness than I requested. Looks like we are going to have to pack it up and take it home. But lets trash it, shall we? It will just clog up the fridge anyway. I hope the insomnia "passes" like and bad food experience~  

     

    On another note, I'm enjoying sleeping more deeply with a very low dose of Lunesta. A nice intermezzo!

    Thanks for commenting!

    Amy g.

    Reply
  10. Untitled Comment
    donna
    Thursday, November 12, 2009 at 02:18 PM

    Low Dose Naltrexone~  Four years and going on with life~No relapses and my doctor tells me I am his only patient not getting worse.  They all take shots.

    The CRABS!  I still have MS but it isn't progressing.  Thank God for that! 

     

    www.freewebs.com/lovelaugh/

     

    www.ldninfo.org           

    Reply
    re: Untitled Comment
    tellnhelen
    Sunday, November 15, 2009 at 06:08 PM

    Donna

     

    Go Girl.  I started  LDN yesterday (11/14).  I'm eagerly hoping I will be able to make the same sort of statement as you. 

    Reply
  • Font size
  • Bookmark
  • Thank you for your input
  • Save
  • RSS
  • Report Abuse

Ask a Question

Get answers from our experts and community members.

View all questions (1018) >