Hi Jake -
I am right now waiting to go to Johns Hopkins, where I've been referred - finally - by my neurologist. What you and Mandy went through sounds so familiar. My neurologist wants to hang onto the migraine diagnosis he gave me when I had the first major episode 2 years ago. He says I have a "complicated" migraine condition. I don't buy it, particularly when the episodes have come and gone and have continued. I'm not the same person I was 2 years ago. I am far weaker and have far less stamina than I did then.
I am going to send a link to your articles to my husband. He has been my rock throughout all of this.
Peace - D
D,
Thank you for your comment. I'm so sorry that you find yourself in the same situation that we did. It's not an easy place to be. It can be confusing, and hard on a marriage. It's especially nice to hear you compliment your husband in this trying time. My posts are supposed to be made from a caregiver's perspective. Once I finish up the story of how Mandy and I found ourselves here in the maze, I'll concentrate more on caregiver issues. You might suggest to your husband that he check in once in a while. Who knows -- maybe we'll touch on something that will help him in some way. If nothing else, it never hurts to know that you're not alone.
Good luck at Johns Hopkins.
Jake
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