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Jake Crest
Jake Crest
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Caregiver and Blogger

See my introductory post...

Jake Crest

Tuesday, September 02, 2008
View All of Jake Crest's Posts
Multiple Sclerosis-- especially Relapsing-Remitting MS-- will drive you crazy. I’ve been asked to fly cross country  to give a seminar on a website promotion package that I’ve put together for a national trade organization. The conference where I’m going to speak is in Las Vega...
  1. Your conference
    Julie
    Tuesday, September 02, 2008 at 12:24 PM

    Hi Jake:

    I'm so relieved that your post said you were figuring out a way for Mandy to go -- and that your story didn't end with your saying she might just stay home. Keep on going!

    I'm heading to Vegas for a conference too and am curious if it's the same one. I'm attending the BlogWorld conference in mid-Sept. Let me know -- I would so enjoy meeting both of you.

    - Julie

    Reply
    re: Your conference
    Lisa Emrich
    Tuesday, September 02, 2008 at 01:38 PM

    Hey, I want to meet folks too.....

     

    Jake you are such a caring husband.  Mandy is a very lucky duck.  I hope that you both are able to enjoy the trip together.  If not, we'll be right here to keep Mandy company online for ya.

    Reply
    re: re: Your conference
    Julie
    Tuesday, September 02, 2008 at 03:59 PM

    Now there's an idea -- let's all meet in Las Vegas. Woo-hoo!

    Reply
  2. Untitled Comment
    Mandy Crest
    Tuesday, September 02, 2008 at 06:21 PM

    Hello, Mandy here.

     

    Julie, I just wanted to let you know that we are not attending the same conference, so we won't be able to say hello afterall.

     

    Lisa, I AM a lucky duck, and that's the understatement of the century.

     

    Jake, somehow I think we'll manage to attend together. We've seldom given in to obstacles. As you are so fond of saying:

     

    "If you can imagine it, you can achieve it. If you can dream it, you can become it."

    - William Arthur Ward

    Reply
    So this is what we've become...
    Jake Crest
    Tuesday, September 02, 2008 at 06:29 PM

    Mandy,

     

    You know, if you want to tell me something, I'm usually not more than 20 feet from you!

     

    ;-)

     

    Love,

    Jake

    Reply
  3. Untitled Comment
    sue
    Wednesday, September 03, 2008 at 02:32 PM

    Ahh Vegas.  I know it has been awhile since I posted - you all ahve been carrying on so well while I lurk in the background - but I ust had to.  Ahh Vegas.  It has been awhile -3 kids ago actually - but what fun, and on the company dime too which made it easier to enjoy I think!  Enjoy and have fun, but you will have to tell us a few things - maybe not EVERYTHING that happens in Vegas has to STAY in Vegas.

     

    All the best, sue

     

    Readers might like to checkout our MS Video Library or take a quiz and test your knowledge on this disease.

    Reply
  4. God bless you Jake Crest!
    triciarr
    Thursday, September 04, 2008 at 10:38 AM

    As a wife recently diagnosed with MS, it made me cry to see such beautiful devotion and love on your part with your wife Jake. If all wives were so lucky to have a husband like you, we would likely be able to deal with this disease much better. It sucks enough to have MS that we need not be cast aside like a bothersome thorn in someone's side on top of it. I hope your wife will be strong and well on your trip but I am betting that she knows that she is lucky to have a wonderful husband. God bless youy both and your family!

     

    Tricia

    Reply
    re: God bless you Jake Crest!
    Jake Crest
    Thursday, September 04, 2008 at 01:47 PM

    Trisha,

     

    What a nice thing to say. Thank you. Pardon me if I'm reading between the lines here, but I do ask you to give your husband some time. You mention that you are a 'recently diagnosed wife.' Getting used to having MS is a HUGE adjustment for you, but realize that it is also a fairly big adjustment for him. Everyone handles these things in their own way.

     

    It sounds a bit weird to say, but it's almost like you need to go through a period of mourning. Not that there is/was a funeral for anyone, but there IS a wake of sorts-- where you mourn for the loss of the life you used to have and come into a time of awakening and acceptance for the new life which, together, you will have from this point forward. The operative word here is TOGETHER. That's the key.

     

    Let him read this. Maybe it'll help.

     

    Jake

    Reply
    re: re: God bless you Jake Crest!
    triciarr
    Thursday, September 04, 2008 at 02:01 PM

    Dear Jake,

     

    Honestly, when I posted, I should have been more aware of my undertones. My husband has actually been very good to me, in his defense. I didn't mean to imply that he was not. I guess I was alluding to my fears of what could be in the future and what is, for many spouses out there, a reality unfortunately. I love that you and your wife are such a loving team. You are both excellent examples of what marriage is all about! I want my husband and I to grow in our marriage despite the challenges of this dis-ease as well. Thank-you to both you and your wife for being examples to other couples. Sincerely,

     

    Tricia  

    Reply
    God bless you Jake Crest!
    Jake Crest
    Thursday, September 04, 2008 at 06:59 PM

    Trisha,

     

    Hmm. Geez, I stink at reading between the lines, don't I?

     

    ;-)

     

    Jim

    Reply
    re: God bless you Jake Crest!
    triciarr
    Thursday, September 04, 2008 at 10:10 PM

    Oh not at all Jake.  I can see exactly why you would have thought that after having reread my post. My bad, sorry!

     

    Tricia 

    Reply
  5. I don't know where to go from here
    Mary
    Friday, September 12, 2008 at 01:30 PM

    I have had R/R MS since 1979, I now have a baclofen pump but I am still very stiff, anyway my husband being a wonderful man, seems to not look after me the way, the ones I read about here. I feel like a true burden, he never listens to hear if I may need help nor does he ask if I need help.  I have lost myself and I feel like just another thing around the house as HE has to do the chores I use to do.  He did not ask for this, so explain to me WHY I should expect him to do the house work.  I lost the person I use to be, I hate what has become of me, I hate asking him to do things I USE to do.  My friends have their own lives and so does our daughter, I will not be  burden to anyone any longer.  I guess I will do what I can for myself and not be that burden. I will stay to myself.  I get excited about something like we found a place I can exercise my legs plus he gets to exercise as well, now I dont get to go as I cannot get there, and he is busy. what do I do now?  I cannot ruin his live or anyones elses lives any longer.

    Reply
    re: I don't know where to go from here
    Jake Crest
    Wednesday, September 17, 2008 at 02:29 PM

    Mary,

     

    Thank you for your comment. I thought that your concerns and issues deserved greater attention so I made my response to you a new sharepost. You can read it in "A Letter to Mary."

     

    Take care, Mary-- and don't be a stranger.

     

    Jake

    Reply
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