Sunday, February 12, 2012

All SharePosts

Expert_badge Lisa Emrich

Lisa Emrich

(Profile)
Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'

Talking to Your Doctor About MS Progression

Multiple sclerosis is a progressive disease. Progressing is what it does and unpredictably at that. The goal of treatment is to slow the progression down or to halt it entirely. But measuring progression is not as easy as it may sound. It takes repeated evaluations over a large period of time to document new levels of disability. It takes an even... Read moreChevron
posted 12/04/2011, comments (0)|
Contributor_badge Dan and Jennifer Digmann

Dan and Jennifer Digmann

(Profile)
We are a married couple who both have MS. Dan’s is RRMS, Jennifer’s is SPMS.

Questions You Really Want to Ask About MS

Shortly after being diagnosed with multiple sclerosis, I realized I hated the disease. Yes, I know it is not nice to hate anything, but MS could handle it. After all, this disease was a source of emotional pain and fear in the beginning, and really, has never become much different in the 14 years since my diagnosis.   And while I hate MS, I... Read moreChevron
posted 11/29/2011, comments (0)|
Expert_badge Lisa Emrich

Lisa Emrich

(Profile)
Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'

To Taper or Not to Taper: Plummeting Steroid Levels

After a restful Thanksgiving weekend, I wanted to discuss something with you.  Steroid Tapers. As you know, I have had a recent MS relapse.  This one wasn’t one which I just wanted to “wait it out” for.  I’ve done that with very minor bumps/relapses along the road during the recent years.  In fact since... Read moreChevron
kittyjoann

hope someone can answer

To Whom It May Concern:My name is Joann Robin Berman, and I have MS.  I am trying to find work, however, I don't know exactly where to turn.  I am an American citizen, although I have lived in Italy since I was 10.  I have trouble with my English, so to say the least it has been difficult.  I applied for disability, but I was... Read moreChevron
Expert_badge Cathy

Cathy

(Profile)
I have had MS for 25+ years and am a trained Peer Resource for Shared Solutions for Copaxone. I am a recent graduate of the Alfus Patient Advocate Certificate Program from The University of Miami. My mission is to "pay it forward" by helping others with MS and other autoimmune diseases.

Why Is My Mommy Different Than All Other Mommies?

When my husband and I decided we wanted to start a family, we wondered whether my MS would interfere in conceiving and delivering a healthy baby.  Beyond that, I wondered if I would be the kind of mother I always wanted to be.  My own mother was always loving and hardworking; but I wanted to be more than that.  Modeling myself on... Read moreChevron