Sunday, February 12, 2012

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Expert_badge Lisa Emrich

Lisa Emrich

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Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'
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Evaluating the Progression of MS: Physical Disability

One of the dreaded words used in relation to multiple sclerosis is PROGRESSION. Much of what we do and hope for is a lack of disease progression over time. It is the reason why we incorporate disease-modifying drugs into our treatment regimen and the reason we hope to limit the occurrence of new symptoms and/or relapses.   When I think of the... Read moreChevron
posted 11/28/2011, comments (0)|
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Drichpa

Drichpa

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I am one year new to this,and can really use the information.

Last year, December, I started rebif. Had been pretty routine until I moved 1/2 way across country, I left a box of rebif behind and trying to get mailed to me. Can I just get right back on, or would I have to start over.I have a hard time with the numbness on my whole left side, dont now what exercises I can do, and and how to accept my... Read moreChevron
posted 11/26/2011, comments (0)|
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Expert_badge Amy Gurowitz

Amy Gurowitz

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Writer, Educational Designer, Non-Profit Founder, Dx in 1988
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Preparing for the Doctor Appointment : Making Sure You Remember Not to Forget

Everyone knows the first rule of preparedness when you are off to see your doctor: Bring a list. (If you didn’t know that, go get a pen!) There are so many emotions that surround any doctor appointment; when you are coping with a chronic, unpredictable, potentially progressive disease (just typing those words gives me the yucks!), the... Read moreChevron
posted 11/23/2011, comment (1)|
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Expert_badge Amy Gurowitz

Amy Gurowitz

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Writer, Educational Designer, Non-Profit Founder, Dx in 1988
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Question of the Week: Thank You (What's your spin?)

I know, we are all thinking the same thing on the day before Thanksgiving. If I don't eat anything today, will it allow for 3x my normal calorie consumption tomorrow?   No, that's not it.   It's what we are thankful for silly! Yup, this is the season when everyone takes stock of their lives and looks at it through a different filter.... Read moreChevron
posted 11/23/2011, comment (1)|
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Contributor_badge Dan and Jennifer Digmann

Dan and Jennifer Digmann

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We are a married couple who both have MS. Dan’s is RRMS, Jennifer’s is SPMS.
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My Experience with MS and Mobility Aids

It’s important to remember that two-thirds of people who have MS remain able to walk, though many will need an aid. With that in mind, here is my story:   I kept asking myself, “Are you sure you’ve really accepted your MS?” My answer always was, “Well, of course I have. After all, I have told everyone that I know... Read moreChevron
posted 11/22/2011, comments (3)|
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