Sunday, February 12, 2012

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Expert_badge Cathy

Cathy

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I have had MS for 25+ years and am a trained Peer Resource for Shared Solutions for Copaxone. I am a recent graduate of the Alfus Patient Advocate Certificate Program from The University of Miami. My mission is to "pay it forward" by helping others with MS and other autoimmune diseases.
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Striving to Be the Best Me I Can Be (Despite MS)

As a child growing up in the sixties I was aware of the look for women. It was the decade of freshly-scrubbed faces like Cheryl Tiegs and Lauren Hutton; blonde hair, button noses and a slender, athletic body.  The Beach Boys were singing about those California girls surfing in itsy, bitsy, teeny-weeny, yellow polka-dot bikinis (okay, that was... Read moreChevron
posted 11/21/2011, comment (1)|
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Expert_badge Lisa Emrich

Lisa Emrich

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Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'
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When to Consider Changing Treatments

As soon as you were diagnosed with multiple sclerosis, you had many decisions to make. One of those was whether to use a disease-modifying drug and, subsequently, which one to use. You did your research, talked to friends and family, read online forums, and worked with your neurologist to choose an appropriate treatment plan which was right for... Read moreChevron
posted 11/20/2011, comment (1)|
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Expert_badge Dr. Kantor

Dr. Kantor

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Neurologist
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Who Is at Risk for PML?

While PML (progressive multifocal leukoencephalopathy) sounds scary, advances are being made in its diagnosis and treatment. The first question is: who is at risk to get PML? The JC virus that causes PML is a common virus that many of us have had since childhood without even knowing it. Most people (with healthy immune systems) don't develop PML... Read moreChevron
posted 11/20/2011, comments (0)|
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Expert_badge Lisa Emrich

Lisa Emrich

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Musician, Patient Advocate, Author of 'Brass and Ivory' blog, and Founder of the 'Carnival of MS Bloggers'
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Denying Denial: Admitting to an MS Relapse and Taking Action

Listening to my own advice.  It is highly ironic that several recent posts have been discussing relapses and communicating with your doctor.  I experienced both on a personal level yesterday afternoon. Living in Denial In the past week or more, I have been feeling not my best.  Each day symptoms would begin to flare and I would hope... Read moreChevron
posted 11/19/2011, comments (5)|
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Expert_badge Amy Gurowitz

Amy Gurowitz

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Writer, Educational Designer, Non-Profit Founder, Dx in 1988
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The Squeaky Wheel - Asking for Help During an MS Episode

Not everyone is like me. I’m a big-time communicator and very in touch with how I feel and what I need and I’m not afraid to ask for it. If I want a beautiful ceramic mug for my anniversary, I email a link to my husband. If I need a hug or to hear that I look nice, I tell the aforementioned person. This approach doesn’t work for... Read moreChevron
posted 11/17/2011, comments (8)|
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