Multiple Sclerosis - All SharePosts Relating To "Who To Tell"

Pam1010

posted 10/14/2009, comments (5)

A very scary crossroad...

As I sit here this morning my body is a virtual amusement park of scary rides. My arms, hands, and legs doing their increasingly familiar Frankenstine-ian thang. Spasms and jerks that lost any charm that they might have had months ago. My mind whirling chaotically, kinda like a rusty, broken down version of The... Read more Chevron

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Lisa Emrich

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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

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posted 08/22/2008, comments (5)

Who do you tell? When and Why? - Part 3 The Outer Realm

I choose to tell others I have MS in part to put a face on the disease and then to help lift the veil of mystery and stigma associated with it. In a very real way, multiple sclerosis can be an invisible disease absent a clear public face; and with the use of the recent disease-modifying drugs, fewer MS patients end up in a wheelchair or severely... Read more Chevron

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Lisa Emrich

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posted 08/18/2008, comments (4)

Who do you tell? When and Why? - Part 2 The Middle Realm

Telling people that you have Multiple Sclerosis is a very personal choice. For some, it flows naturally from their lips without hesitation. For some, it is a secret which they hold close to the breast. In Part 1, I discussed telling those people closest to you - family members, other doctors, perhaps your best friend. Ultimately each... Read more Chevron

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Lisa Emrich

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posted 08/15/2008, comments (2)

Who do you tell? When and Why? - Part 1 The Inner Realm

Multiple Sclerosis is a mysterious disease for many. The exact cause is still unknown although there are some autoimmune theories. The progression of the disease is unknown for each individual patient, especially for those newly-diagnosed. No two MS patients are exactly alike so we are told and continue to tell each other regularly. So... Read more Chevron

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Lisa Emrich

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posted 08/11/2008, comments (8)

"I had to learn to reconstruct my life" - Jacqueline Du Pre

On Saturday, I had a freelance gig. An easy job with a 3-hour rehearsal and an afternoon performance. Those are the types of playing jobs I really enjoy. Low pressure and good pay. On this particular job, I encountered another horn player whom I had not seen for quite awhile. Really quite awhile, like two to three... Read more Chevron

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