Saturday, May 25, 2013

Tuesday, May 29, 2012 Willow Tree asks

Q: Should I tell my doctor what I think I may have or should I just let the Doc figure it out?

Should I tell the doctor what I think I may have or would I sound like a hypochondriac? I have been researching on my own because many doctors still do not know what is wrong. They are sending me to the internal medicine doc next.

 

Symptoms:

 

Extreme Fatigue

Dizziness, subsided vertigo

Joint pain

Muscle pain, especially legs, back, neck

Itchiness, legs, especially in bath

PVC's

Weakness, sometimes legs give out or I cannot open a cereal bag

Heat Intolerance

neck pain when move head down

Weakness

Face rash, maybe rosacea

on and off sore throat

numb toe for a month, under toenail turns blue

tingling numbness on legs and fingers, occasional

memory loss, cannot concentrate, like I'm losing my mind

on and off sore throat

Eye Pain, and redness

night sweats, subsided right now

Fever/chills, occasional

White blood cells, went from high-15.5, to low-4.2

Red blood cells/hematocrit/hemoglobin all high or at the top of scale

ANA Positive 2 times, negative once

trivial mitral valve regurgitation, and trace tricuspid valve regurgitation

scars on liver, they say fatty infiltration liver disease, I'm not obese

thyroid nodule, had for over 10 years, grew 1mm in that time

tastes like blood in mouth sometimes, but no blood present

hair loss, subsided recently

getting irritable

have crohns disease

 

 

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Answers (1)
Lisa Emrich, Health Guide
5/31/12 11:21pm

Hi Willow Tree,

 

It can be challenging to not have answers to what is going on.  In my experience, it is easier to get doctors to listen to you when you present your symptoms and let the doctor begin to piece together the information.  Even if you think you might have a specific disease, it is sometimes more effective to put your energy into clearly presenting information about your symptoms: what are they?  when did they start?  how long do they last?  does anything seem to make them get worse?  does anything seem to help them get better?  what other diseases do you have or do your family members have?

 

Since you have Crohn's disease, it may not be uncommon for you to develop another autoimmune disease.  Many of your symptoms are not typical for MS, but I do think that it's okay to tell your doctor that you are concerned that you 'might' have MS.  Sharing your concerns is always a good idea.

 

Lisa

 

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By Willow Tree— Last Modified: 05/31/12, First Published: 05/29/12