Monday, May 31, 2010 Rev Keo, Community Member, asks

Q: Lupus and MS

Have you ever heard of anyone being diagnosed with both lupus and MS?  I was diagnosed with lupus in 1994 but lately I have been having symptoms that are not lupus related - numbness and tingling in the fingers. muscle spasms and pain in the legs, weakness in the legs, a couple of times not being able to walk at all; neuropathy in the feet, bad balance, apin in the right eye, dropping objects and my PCP wants to look at the possibilty of MS. Is it possible to have two auto- immune diseases?

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Answers (2)
ValD, Community Member
6/ 2/10 12:05am

I too am being looked at for both MS and Lupus.  Its confusing, I will keep you posted on my outcome.  They say MS and want me to go to the Rhuemotologist to see if its also Lupus. Good grief isn't one enough. At this point MS is the main problem.

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Rev Keo, Community Member
6/ 2/10 2:14am

I go see the doctor tomorrow. I'll let you know what they say.

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KIM JACKSON, Community Member
1/10/11 9:12am

Geez' me too! I think they look similar when all of your body systems are involved with several symptoms.  My neurologist is sending me through a battery of tests this week to find out if it is lupus' MS' or a stroke--(one of the above' none of the above or all of the above!)  He also wants me to see a rheumatologist.  I'm seeing only one specialist at a time' because all of this information is quite overwhelming.  I'll be interested in what you find out about your symptoms.

Kim J.  RNC

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ValD, Community Member
1/10/11 12:05pm

Kim,

So sorry you are going through this, I know how confusing it is let along how you feel physically.  All my MS tests came back Negative, the Neurologist was going by the lesions he saw on my brain MRI, thats why he was confinced it was MS, however when all those came back negative he sent me to the rhuemotologist, yes seeing one at a time is a good idea.  With all the tests the neurologist had done it made it simplier for the rhuemotologist to see that yes it was Lupus and mine called it CNS lupus or lupus affecting the CNS.  Its been 6 months now since diagnosised with Lupus.  Let me know what you find out. Would be courious to know the symtoms you've been having.

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KIM JACKSON, Community Member
1/10/11 11:19pm

Smile thanks.  i need people to reach out to, who understand what i am going through.  even tho' my hubby says he understands, you can't empathize with something you haven't experienced.  I've been on Facebook quite a bit describing my symptoms and experiences if you can access that.  I'll give you a quick run down of my most prevalent symptoms:  have been having symptoms since I was 19, but no one would commit themselves to diagnosing it, or whatever.  In 1994, I had 26 shock treatments.  After that, my symptoms really started to exacerbate, starting with permanent short and long term memory loss.  I lost all my skills as an RN.  In 2010 I lost 40 pounds in about a 3 month period without trying.  I was hospitalized in Sep for vertigo and weakness (spent some time with PT)  I now walk with a cane.  Since then, I have deteriorated to the point where I feel Drunk all the time. and i don't drink or use controlled substances.  I have fallen several times and some of them I don't remember.  I have bruises and slow healing wart-like sores all over my skin (arms) I also feel like my face is on fire.  These are only a few symptoms.  My CT's from March and last month show lesions and infarcts.  Also, my 3 Mri's were abnormal.  ANA still - low titer.  I also have a definite diag of Optic Neuritis.  going for a VEP tests tomorrow.  Other blood, LP, and stroke studies to follow this week. keep in touch.  Thanks again for your concern.

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McGowan98, Community Member
2/26/11 9:33pm

I was diagnosed w/ MS in 2006. Now I have been diagnosed with Lupus. I'm waiting to see the RA that my GP is referred to after I see the Dermatologist that did the biopsy of the rash on my shoulder. Also I will be seeing my Neurologist in a couple of weeks. She is the doctor that thought I could possibly have another autoimmune disease. Well now I do know and can say that I have both. I can keep you posted w/ what all the doctors say.  Good Luck & Health to ALL.  :)

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By Rev Keo, Community Member— Last Modified: 10/11/13, First Published: 05/31/10