I am one sad, tired, achy, numb, spastic, weak, brain dead person these days. I had to laugh when I read this one!
My poor story is almost 12 years old and longer than the NIV- I'll work on the short version....
Gall bladder issues- after 7 doctors they ran the right test and found it to be not working at all and attaching to my intestines- Surgury next day-removed.
soon after returned to new GI doc complaining of pain after eating only different pain, and it had moved more center...ERCP fishing expedition ( DO NOT EVER AGREE TO AN ERCP, I FOUND OUT TO LATE FROM SEVERAL SPECIALIST THAT THIS TEST HAS MORE NEGATIVE SIDE EFFECTS THAN THE TEST HELPS)
This triggered my first full blown pancreatic attack! for those who have not had the pleasure of experiencing one of these I would much rather sign up for giving birth on a daily basis over 5 days of one of these attacks.
Final diagnosis- blockage of the main bile duct- professional name: Biliary Dyscenitia, and spincter of odie dysfunction....with all the long term damage plain old 'chronic pancreatitic' fills in all the blanks.
Here is where we all seem to fall into the same category- along the way when I was having terrible headaches had an MRI done-this showed white foci on the stem, or white scaring- which in turn brought up the awful "MS" converstion. Without insurance this is where everything got left- but over time I was having several dizzy spells, numbing of limbs, leg giving out when i would stand up and several other symptoms.
Night vision was aweful, exhausted, every joint hurting, 2 hrs of doing anything would put me down for a day- if I tried to work a full shift I couldnt pull myself out of bed until I HAD TO GET UP FOR MY NEXT SHIFT!
all of the above while still having the pancrease issues and pain....ok enough whining...
turns out because my pancreatic enzymes and yes even insulin are not able to get into my intestines to help with digestion- because of this I now have what is called malabsorption syndrome- I am absorbing my food into my fat tissue vs getting broke down properly and going through my blood system. k, so after that very long intro: one of my issues was hello VITAMIN D DIFFICIENCY...
I started taking 4000 iu of liquid form d3 daily and alot of my skeletal issue began to get much better...
I am not saying I may not still have ms, and with my disease I have so many other issues, problems, and pains but I can tell so many of you whether it is fibromyalgia, RA, MS, celiac, etc. adding vitamin D to you daily regime will give you some relief from some of you issues you are fighting....when one thing goes haywire with your body eventually like a waterfall several more will follow.
Until they find a way to work with friable duct, my problem will never be fixed...(weighing out the pros and cons of a pain pump currently) but having gone years without insurance-and doing what I could to listen to my body and research without becoming paranoid- LISTEN TO YOU BODY, BECOME AN ADVOCATE OF THE SIMPLIST THINGS LIKE GETTING YOUR VITAMIN AND MINERALS UP TO PAR, AND LEARN TO SMELL THE ROSES ONCE IN AWHILE!
Whining will not fix it, it will drag you down- work up your own charts, and get to work- if at first you dont succeed try try again!
Good luck to all of you!