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Hi Kat,          I was born with Hip dsyplsia and it took doctors 5 years before thsy found what was casing my hip pain,had hip resurfacing surgery on both hips and some knee surgeries, and back to work i wnet still with alot of joint pain, brain fog,numbness and tingling in my hands. Had EMG test done the found bilateral neurophathy and radulopathy and no knee reflexes. My Orthopedic doctor, referred me to ruhmatolgist ,said possible pinch nerve. mri shows degeneration of c5-c7, i have headaches,restless leg at night. I was taking neorantin dor restless leg didn't work so I talke 10 mg of Diazapan, it helps and 800mg of motrin 2-3 times of day for inflammtion which like you don't help. I've had cordisone injections and help a little. I told my doctor everytime I take steriods of any kind they give me some relief. he put me on predisone for7 days becasue on one of my blood test my ANA came out positive for lupus. It was the I ever felt, no joint pain and energy, but after seeing the rhmatologist my DNA strand was negative for lupus. Back to the drawing board. I ask my doctor if i could continue on predisone and he said no too many dangereous side effects. I been reserching onthe internet and asked him that maybe my adrenal gland might not be makig enough cortisol to fight off inflammation or vitamin level is down. Sure enough my Vitamin level was low,I told doctor i have been taking a 1000 units for 2 years now, so he put me on 50,000 units for 6 weeks and I now have knee reflexs which I didn't have before and my depression has improves some. I went to see a Neurolgist 3 days ago gave him my pain diary which I keep and what I have been suffering for years and what each doctor has told it could be. The Neurologist is going to start from scratch. I understand your pain and i hope you get answer from your Neurolgist . I will be curious to hear what your neuroglist has to say.  My mother past away about 2 years ago and she had joint problems and demntia, I saw a show on mystery diagnose where a women had some similar problems,she was diagnosed with Pernicious Anemia, but since her iron levels were ok they never thought of low vitamin D or any other vitaimin deficinceys like B12 which can cause joint pain,or demention if not taken care of. Take care and you get better soon.
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