• karen karen
    September 14, 2009
    copaxone and weight gain
    karen karen
    September 14, 2009

    Copaxone and weight gain

    I have been on Copaxone for 2 months and Avonex for 7 months before that. I have gained around 40 pounds. I dont eat anymore than i used to, probably less but the scale keeps going up! Any one experience this?????

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FROM OUR EXPERTS

  • Amy Gurowitz
    Health Guide
    September 15, 2009
    Amy Gurowitz
    Health Guide
    September 14, 2009

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    Hi Karen, That must be troubling! I just came off Copaxone after 15 years and never had any issues with weight gain. Of course every person responds differently. With further research I found a listing of all possible side effects of Copaxone (http://www.rxlist.com/copaxone-drug.htm) and weight gain is listed, however it is a 3% incidence  to 1% found in the placebo. But someone has to be in that percentile, so maybe it is a concern, but I would definitely contact your neurologist about it. Good Luck.

    Best, Amy

    • karen
      September 15, 2009
      karen
      September 15, 2009

      Thankyou for you reply. I am going to my neurologist tommorow so I will def. talk to him about this. I am thinking the weight gain is also that I am not able to do what I once could and excercise is limited. I took a walk yesterday and thought my legs were in cement!  UGH but ya gotta keep movingSmileKaren

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    • Amy Gurowitz
      September 15, 2009
      Amy Gurowitz
      Health Guide
      September 15, 2009

      Thanks for weeding through that code to get to my response!  You have a great attitude, which I'm sure serves you well. I have certainly felt the cement legs experience, I give you credit for sticking to it. I hope your Dr. appointment goes well, and let me know if you have any more questions... or want to share.

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    • karen
      September 15, 2009
      karen
      September 15, 2009

      Yeah the coding was kinda crazy but I managed..lol. Can I ask why you decided to stop taking the copaxone?

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    • Amy Gurowitz
      September 15, 2009
      Amy Gurowitz
      Health Guide
      September 15, 2009

      Karen,

      It was a hard decision. Copaxone served me very well for 15 years. My neurologist felt that with increased disease activity, that a change would do me good. I started rebif a month or so ago, so we shall see. I hope Copaxone brings you improvements not yet evident.  For me it took 3 or 4 months before I saw a difference.

       

      If you are interested, I wrote a tongue-in-cheek blog entry about that change. It was, as I said, a tough decision.

       

      http://mslol.wordpress.com/2009/08/05/hey-copaxone-ljbf/

       

      ~ag

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    • Anissa
      January 27, 2011
      Anissa
      January 27, 2011

      I too suffer with the leg problem. Everyone says to exercise and it will get better....I have a tough time just walking from room to room!  How has it been for you?  Any ideas on what I can do with these legs???

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    • lovebob43
      June 07, 2014
      lovebob43
      June 07, 2014

      yes, everyone says it will make it better that is when you can exercise.

      i have gained over the 12 yrs of have MS about a total of 60lbs.Yell

      Part of it  is the steriodsI had to be on for many yrs.  both IV for and average of 9 to 10 days at a time and of corse the oral ones that make me a real squirrel.

      i did get a recombit bike. found it at walmart for $150. it does make it easier. i hace to metal knee repacements and my MS was originaly Transverse Meyolites[SP] my spelling stinks.

      anyway i had no control over and lower part of my body for many months.

      the bike helps, start of a low setting and doing the movements that you would do in therapy.  good luck and i will make you a deal...IF YOU DO NOT GIVE UP, THEN I WON'T EITHER

      SHARLENE

       

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  • Amy Gurowitz
    Health Guide
    September 15, 2009
    Amy Gurowitz
    Health Guide
    September 14, 2009

    I don't know why all that code showed up! Apologies..

     

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    Hi Karen, That must be troubling! I just came off Copaxone after 15 years and never had any issues with weight gain. Of course every person responds differently. With further research I found a listing of all possible side effects of Copaxone (http://www.rxlist.com/copaxone-drug.htm) and weight gain is listed, however it is a 3% incidence, to 1% found in the placebo. But someone has to be in that percentile, so maybe it is a concern, but I would definitely contact your neurologist about it. Good Luck.

    Best, Amy

  • Cathy
    Health Guide
    July 01, 2011
    Cathy
    Health Guide
    September 14, 2009

    Rebecca,

     

    I would not even think to judge anyone's decision about whether or not to take their medication - that is a personal decision.  The only thing that's always in the back of my mind is whether we think we are having MS symptoms or not, MS is always "going on" inside of our bodies.  So, when there comes a time that we do face an exacerbation (flareup), at least the DMD we are taking will fight for us.  That's how I look at it.  Again, this is my personal choice and the way I look at my MS.


FROM OUR COMMUNITY

  • just2tired September 21, 2009
    just2tired
    September 14, 2009

    Karen, I had to stop taking my Copaxone about 5 years ago - could not afford the copay from husband's health insurance or my Medicare Part D.  Now we can't even afford health care from my husbands job for him much less for me!  I did not gain weight  while I was on it, but I have been gaining a lot LOT of weight in the last two years.  You are right - very vicious cycle - 20 minutes of exercise equals 2 days down with extreme pain.  I was diagnosed in January 2004 with Fibromyalgia and MS.  Now I have added Chronic Fatigue Immunse Dysfunction (this may have come prior to the Fibro), Restless Leg Syndrome, Osteoarthritis and Osteoporosis.  My normal weight is 100-110.  I am almost 160 now.  I am to the point of being desperate - I eat like a bird, and have a fairly healthy diet.  I can still manage to keep the house presentable but any real cleaning I have to have help or not do it at all.  Puts me in bed when I overdo.  Depressing I know.  Just wanted to let you know that you are not alone out there in the Lost Scales World! lol  Hang in there - if I find anything that works I will let you know!

    Jan

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    • karen
      September 22, 2009
      karen
      September 22, 2009

      Hi Jan Thankyou for your reply. I am so sorry that you dont have health insurance. That has to be terrible! I know MS can cost alot. I am so luckt that my husbands employer pays our insurance and my copay is only 20 a month. For that they are sending me the paperwork that my copay will be covered through shared solutions. If you did want to get back on a MS drug mabey they could help you with the costs. Just a thought. I know I shouldnt be so vain about the weight gain but MS seems to lower my self esteem by itself and now to add weight gain. UGH. It could be so much worse though so I need to be thankful fo what I have. I am the same way with the housecleaning I am thinking about hiring someone to help me out some. I like things much cleaner then I am able to keep them. Well you hang in there too and I will let you know if I find some magic to help loose weight. Karen

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    • kttwinsred
      September 23, 2009
      kttwinsred
      September 23, 2009

      Jan I am so sorry for all your experiences with this.  I know it must be very difficult.  It is ok to feel desperate, I think we all feel that way at some point.  Keep in mind that as women we are expected to a degree to "look" a certain way even if our body structure is not built for it.  Do not let society or anybody else make you feel anything but beautiful.  I just got done with a heavy 3 day dose of Prednisone and gained 10 lbs in 5 days------OUCH!!  none of my stuff fits and I really got ticked off, but what we men and women, with MS need to remember is we are beautiful.  People are beautiful, without being too skinny and looking sick.  I hear you on the work outs and the house cleaning.  Frustrating.  Something I tried instead of the vigurous workout is Yoga.  I feel great, a little sore, but great after it and it does help you.  Second eating like a bird will hurt you because your body will store any and every fat or nutrients it thinks it may not get again in awhile if you are not eating enough.  I hope that makes sense.  I wish I was there to give you a hug, I can't imagine this without insurance, because even with it all my appts are adding up like crazy.  Has the doc tested your thyroid?  So many problems from that can cause fatigue, weight gain as well as other serious health issues. 

      You are beautiful and you can stay strong.  I am so glad I found this website so I can not feel so alone.  Well I have rattled on long enough, my prayers and my ugs are with you!

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    • just2tired
      September 23, 2009
      just2tired
      September 23, 2009

      Thanks so much for the kind  words and love.  You are absolutely right though.  I have steroids to take during bad flares, but the water retention UGH!  I have decided to jump back on the treadmill that I was going to sell.  I have been doing about 15 minutes at a fairly slw walk, which is about .25 mile.  I am getting pretty tired and sore, but so far it is manageable without increasing pain meds.  Don't know if it will help lose pounds but I am gonna try!  This morning was at 157 so I will weigh in next week and see if there is any progress.  I have been on an apple kick - apple that is dunked in caramel (low fat caramel I swear - lol) and wanting chicken teriaki all the time!  The trouble with eating a good stable diet is that my beloved is a log truck driver.  That means he gets up at 2 a.m., leaves by 2:30 a.m., does not get home until anytime after 3 p.m. (but mostly between 5-8 p.m.).  If he is home close to 5 p.m., I will fix a good meal for us.  But if he is later than that, he does not want to eat a meal because he just has enough time for a cup of tea, shower and bed by 8:30 if possible.  He works anywhere from 10 - 16 hours.  Hard to have a balanced diet, huh?  I make him - well I try to - a fairly nutritious lunch/snack, but it is getting harder and harder to find something different!  When the cold weather hits, I can send him out with soups.  SO I am left to nibble my way thorough the day.  Good Grief!  I have rattled on too much!  Let's keep in touch, yes?  Love & Light, Jan

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    • kttwinsred
      September 24, 2009
      kttwinsred
      September 24, 2009

      I hear you I know it is hard to eat a good diet that doesn't get boring.  I get bored of what I eat but I also eat the way I do because my stomach has decided to ast out against me, lol.  I have gastritis, ulcers and a hyrnia(sp) so if I eat a lot of stuff I get the worst stomach ache and get sick so I stick with only fresh or frozen veggies, steamed or grilled, fresh fruit, high fiber cereal....alot of cereal with skim milk, grilled chkn, fish perferably fresh caught by me =), very very little pork, yogurt and I have to admit I love my choc slim fast.  When I have a choc craving Weight Watchers has these absolutely wonderful choc chip choc muffins, oh my they are great!  I also drink my coffee in the morning and the rest of the day water.  I have a 52 oz mug that the ice stays good in for along time and I drink 3-5 of those a day.  Now who's rambling, lol.  I am only sharing this with you cause I had to trial and error it on what was gonna make me sick to eat or not, but I do feel "good" after I eat.  I feel a happy full if that makes sense. 

       

      I know however what it is like taking care of a trucker that leaves at those hrs, I used to help my Mother-in-law when my father-in-law was driving and it was very hard to keep a good diet at those hrs. 

       

      Great for you for getting on the treadmill.  I love the yoga too, would be happy to burn u a copy of my disc so you can try it if you want.  I also use a stationary bike to help my hips.  I know it is hard but starting out slow and steady is better than too much too fast and being down again.  So don't come down on yourself if you don't notice a lot of difference in one week, just keep it going, it also helps as much as it hurts to keep muscles tuned up for when we really need them. 

       

      You are a strong person and you are doing great!  I am here for you anytime, even if it is to vent.  I know I feel so bad venting when I am down to my hubby all the time so I try to hold it in cause I know it is eaqually hard on my family iof not harder cause I know what I am feeling they have no real clue.  Never hesitate to reach out, I and others are here!!

       

      Chin up, heart and mind open, love in your heart and sole, God Bless & HUGS!!

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    • kttwinsred
      September 24, 2009
      kttwinsred
      September 24, 2009

      I hear you I know it is hard to eat a good diet that doesn't get boring.  I get bored of what I eat but I also eat the way I do because my stomach has decided to ast out against me, lol.  I have gastritis, ulcers and a hyrnia(sp) so if I eat a lot of stuff I get the worst stomach ache and get sick so I stick with only fresh or frozen veggies, steamed or grilled, fresh fruit, high fiber cereal....alot of cereal with skim milk, grilled chkn, fish perferably fresh caught by me =), very very little pork, yogurt and I have to admit I love my choc slim fast.  When I have a choc craving Weight Watchers has these absolutely wonderful choc chip choc muffins, oh my they are great!  I also drink my coffee in the morning and the rest of the day water.  I have a 52 oz mug that the ice stays good in for along time and I drink 3-5 of those a day.  Now who's rambling, lol.  I am only sharing this with you cause I had to trial and error it on what was gonna make me sick to eat or not, but I do feel "good" after I eat.  I feel a happy full if that makes sense. 

       

      I know however what it is like taking care of a trucker that leaves at those hrs, I used to help my Mother-in-law when my father-in-law was driving and it was very hard to keep a good diet at those hrs. 

       

      Great for you for getting on the treadmill.  I love the yoga too, would be happy to burn u a copy of my disc so you can try it if you want.  I also use a stationary bike to help my hips.  I know it is hard but starting out slow and steady is better than too much too fast and being down again.  So don't come down on yourself if you don't notice a lot of difference in one week, just keep it going, it also helps as much as it hurts to keep muscles tuned up for when we really need them. 

       

      You are a strong person and you are doing great!  I am here for you anytime, even if it is to vent.  I know I feel so bad venting when I am down to my hubby all the time so I try to hold it in cause I know it is eaqually hard on my family iof not harder cause I know what I am feeling they have no real clue.  Never hesitate to reach out, I and others are here!!

       

      Chin up, heart and mind open, love in your heart and sole, God Bless & HUGS!!

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    • ktom0507
      December 15, 2010
      ktom0507
      December 15, 2010

      Definitely not alone!  I've been on Copaxone for just over a week and the scales are already climbing!  I just don't see how it is possible to gain almost a pound a day with no change in diet.  Very frustrating, combined with the other side effects I've got, Copaxone is a nightmare!

       

      As far as Shared Solutions Assistance Program, its a joke.  They have lost my information 3 times!  I just found out my insurance only pays for $10,000 annually for perscription meds and then we are left with the balance.  This is rediculous. 

       

      Between the hassle and the side effects, I'm really weighing the options and risks of not taking it.  I think I am going to ditch the Copaxone and take a holistic approach with a Vegan diet and essential oils.  I've heard more positive MS results with that than I am with this. 

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    • just2tired
      December 15, 2010
      just2tired
      December 15, 2010

      Here is the good news:  I can't get the weight OFF, at all.  I plateaued at 150-160, and my normal weight was 100-110.  I feel awful and look worse.  I did eventually have to stop my injections because of the cost.  After another MRI, the doc said it did not seem to stem any progression anyway-I had 16 new lesions in 18 months.  So I have been without any MS modifying medication for years now.  I am only on medication for pain management: percocet, morphine and flexeril.  Not knowing what your finances are like, think hard about changing the medication first to Avonex or one of the others.  I only have medicare and medicare part D, not enought to cover changing the medication, so I stopped altogether.  I am no longer RRMS (if I ever was-I have my doubts) and now considered to be secondary progressive.  However, I have daily Reiki treatments and I am positive that I would be a heck of a lot worse off than without them.  I also started taking Vitamin D-my evergy level increased immediately.  Now that I also have osteoporosis, I have to take Calcium too.  Holistic medicine is well thought of in this familly as we are both Reiki Masters, and I am studying to be a Crystal Reiki Master.  I use gemstones to make me feel better and so started making jewelry for that purpose.  Also aromatherapy helps the stress a lot.  So hang in there honey, you are following your instincts and that is always good.

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    • KeriJayne
      December 26, 2010
      KeriJayne
      December 26, 2010

      Hi there,

      I have just found your comments online.  I am 30 years old, an MS'er lady and truly, truly fed up.Since I have been feeling absoloutely terrible since starting Copaxone at the end of August this year, I thought I would share my moans with you!  I am the closest thing to topping myself than I have ever been!!! I was on Rebif for 2 years until, after a minor pins and needles type relapse in my legs, they found out after a routine blood test, that I had neutralising antibodies so the Rebif had not been working for some time! I was told the next step for me was the only realistic option of this s**t! Let me just bore you with my list of horrific side effects I am experiencing at the present moment:

      1. Nystagmus (very severe - I cant drive, wear heels or walk in a straight line!)

      2. Severe head aches

      3. Severe back pain

      4. Tingling patches just about every where

      5. Speech problems

      6. Cognitive issues - forgetting stuff like names etc

      7. Depression - I AM CRYING ALL THE TIME!

      8. Doulble vision

      9. I wear glasses and they ain't working! At all!

      10. Joint problems and pain

      11. Stupor

      12. Bladder issues - I have wee'd a little when I have laughed a lot!

      13. Eye flickers

      14. Drop foot

      15. Massive weight gin in around 2.5 weeks! I LOOK SIX MONTHS PREGNANT!!!

      16. Itching!

       

      And the list goes on! I must sound like a right winger! AND my sense nurse tells me that "its normal, it should clear up... eventually! It could take anything up to... I dunno.. A YEAR, MAYBE LONGER!!!!!!!!!!!!!!!!!!!!!" My reaction was "WHAT???? A YEAR, MAYBE LONGER????? WOT THE HELL!!!!!!!!!!!!!!!!!!!"

       

      Anyway, I have an MRI on January 6th and my MS nurse, GOD BLESS HER, has said we will see what the results are and then take it from there...

       

      Wish me luck. I can honestly say that I NEVER had any of this when I was on Rebif - I miss it so much and I DESPISE Copaxone!

       

      I hope you all had a wonderful Xmas and wish you all a happy, healthy new year.

      Dear God, please let them find a cure for this despicable disease that robs so many people of a normal, fun-filled, long life. 

       

      FYI I am based in the UK, so I feel really awful for all of you in the states who are being forced to PAY for this s**t that can make you feel like you're gonna die!

       

       

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    • debimdza
      March 13, 2011
      debimdza
      March 13, 2011

      All of your side effects sound like MS activity, not a reaction to the drug.  Hopefully they will get better for you when your new meds take effect.  I have been on Betaseron for 3 years and have developed antibodies to it so I am going to start on Copaxone.  I also get awful site reactions with the Betaseron so I am hoping they will not be as bad with the Copaxone.  I have gained 30 lbs while on the Betaseron so I am afraid of gaining more with the new meds.  I'm just trying to figure out how much of my weight gain has been due to the Betaseron and how much has been simply from having MS.  My last blood work showed my Thyroid hormone to be a bit off but not much which I understand the Betaseron can cause and the Copaxone does not.

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    • kerijayne
      March 18, 2011
      kerijayne
      March 18, 2011

      Hi there!

       

      Thanks for replying to my moaning! Turns out, my MS nurse, who is fab fab fab Innocent has confirmed that quite a lot of my problems were in fact down to copaxone... including the collapse of my knee! I am currently having to endure a lot of physiotherapy to try and sort this mess out! Oh God, please help me get back into my killer heels! I am happy to say that my neurolgist had told me to stop taking copaxone immediately - my MRI scan was a mess; to the point he would not even show me!!! - and now he has got me on tysabri. Hurray - no more daily injecting!!!! Just 2 hours per month sat in hospital having the infusion - NOT BOTHERED! I can just sit and read and talk to the other lady who has hers at the same time as me - we have become great friends! No need to tell me about the risks involved with tysabri - Im just grateful that I have such a wonderful team of professionals on hand to watch me, help me and look out for me - they're like my guardian angels! I will say I urge you to be careful on copaxone, hopefully it will not grab you the way it did me! Oh and the lady i was talking about who goes in the same time as me, she was diagnosed in July last year (totally fit and healthy before) having only suffered weird symptoms - she was on rebif for 4 months and she ended up so screwed up she was in a wheel chair last time I saw her; couldnt even walk to the toilet - I could not believe my eyes. Any of these health care professionals who say these meds cannot do these nasty things to you is LYING!!! Yell

       

      I know MS can do some well shitty things to a person but it seems quite coincidental that she and I have both (nearly - hopefully) ended up so badly messed up in such a short space of time and the neurologists have told us to drop the meds immediately and moved us onto this life changing stuff! Wink

       

      Any way, take care, I do hope it all works out for you! Laughing

       

      KeriJayne x

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    • Mary O
      November 22, 2011
      Mary O
      November 22, 2011

      Karen I guess right now I'm pretty lucky I'm still able to work thank goodness and I do have insurance on the job my copay with insurance is $70 and shared solutions kicks in and now it's only $35. You're not vain at all about the weight because I have gain at least 20 pains in the past few months. And frankly its a little depressing to me. My boyfriend and live together and I still have to do all the house cleaning.

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    • Mary O
      November 22, 2011
      Mary O
      November 22, 2011

      I don't think tha tI've been on the copaxone long enough to tell a big difference in what I was going through before the meds. I guess that will come with time. I do see a difference in my skin at the injection areas and I have been told that's normal. I'm going to give it a little longer and see after another MRI whether there is any difference.

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    • Sandy
      June 25, 2012
      Sandy
      June 25, 2012

      Jan ,

       I was diagnosed with MS 5 years ago . My husband passed away last year but even with his medical coverage the yearly deductible and out of pocket had to be paid and I just couldnt afford it . I contacted the Chronic Disease Fund and they covered all of my expenses until the ins. kicked in so thats one option for you . I now have a grant thru Shared Solutions and they cover what ever my Medicare doesnt and they even cover my copay . You should call them and tell them you need financial assistance and they will send you the paperwork so your Copaxone is covered . Nobody has to go without their medication . I hope this helps you because it has helped me . Wishing you the best .   Sandy

       

       

       

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  • Ronna C. February 26, 2010
    Ronna C.
    September 14, 2009

    Yes, I have been on copaxone for 4 months and I have experianced weight gain as well.

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  • John October 20, 2009
    John
    September 14, 2009

    Hi Karen,

    I am also on Copaxone and had a gastic bypass and put 50 lbs in the 4 months I've been on it!

    John

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  • kttwinsred September 15, 2009
    kttwinsred
    September 14, 2009

    Hi Karen,

    I was on Copaxone, but for a short amount of time, because I could not handle the side effects of it and Cared Solutions didn't have the same list of side effects the drug can cause that the FDA has, hmmmm.  Anyway I did have some weight gain, not a lot.  something to keep in mind is that I have gained a little wieght but in reality I think it is immobility issues more than anything.  I still eat a clean diet of fruit, veggies raw and steamed or grilled, fish and chicken. And all I drink is water.  I eat well but I am having so many issues with balance, leg/hip weakness that I am not getting the excersise I am used to getting.  i have been in my w/c for the most part the past week and that is sure to put weight on. It is easy to wonder with these drugs if they are the cause because really there is so much to learn and absorb with this rollercoaster called MS.

     

    I am so sorry you are having the weight gain, that is a hard thing to deal with really.

    I wish you the best and you are in my thoughts as I know how hard this is.  I think I have a long list of but why's going things I am trying to figure out myself with this everchanging challenge.  Keep positive, keep strong and know this, you are beautiful!!

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    • karen
      September 15, 2009
      karen
      September 15, 2009

      Hi...I think you may be right I am ALOT less active now that I have MS and physically cant excercise the way I used to! I was jut wanting to blame something other then that, hoping it was just from the meds. Better excuse I guess, I dont know. It is just frustrating to be heavier now and feel like there isnt much I can do. I guess it could be worse. I do like the results of the copaxone so far and I dont have any side effects other then welts at the injection site. So even if it was causing weight gain I would still have to take it. I dont eat healthy like I should like it sounds like you do. I need to get better at that. I am sorry you have been "stuck" in your wheelchair this week alot. I hope things get better for youLaughingYes, there is alot to figure out with MS! Too many unknowns! You are beautiful too!!!! Love, Karen

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    • kttwinsred
      September 15, 2009
      kttwinsred
      September 15, 2009

      Ahhh ty Karen.  Something to try too is yoga it does wonders to get the blood flowing, keep muscles more flexible and it will help you gain strengh to where you can do more as well.  This MS is a hard thing and it has so many things that are hard to admit too really, it is hard to really make sense of stuff.  I have put on more weight this past week, enough I have noticed my pants are too tight just from being in my w/c and not being even a little active.  Keep your chin up, stay strong, and anytime you need me I am here for support.  Really we the patients need a place like this to talk.  This is hard enough on my hubby and daughter I know.  I will be up and outta this thing again in no time =).

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    • karen
      September 15, 2009
      karen
      September 15, 2009

      I believe you will be outta that chair soon. You seem to be very optimistic which is great!!!! I will give yoga a try, I have heard tae chi is good for us msers too so I would like to give it a try. Instead of just thinking about it I know I need to just do it!!! I dont have time to go to a class with two boys in school but I think I will try a DVD to do at home. How old is your daughter? You are right MS is hard on everyone in the family. My husband gets upset and doesnt always understand why I cant do all the things I used to, I know its hard on him and my boys too. But it always could be worse. Its been great to share with you! thanks keep in touch!

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    • kttwinsred
      September 16, 2009
      kttwinsred
      September 16, 2009

      My daughter is 9 and she is a true blessing.  She is so strong when I am at my worst, so caring.  That is the hardest thing to look back at what we used to do, know I make myself stop that and I look forward and make short term goals and stick to them till I am done and do it again.  I am a firm believer that as hard as it is on us it is harder on our families, my reasoning is we kinda feel it comin on, they don't.  I am so truly blessed with my hubby, he only gets upset when he can't fix it.  You go for it.  Don't let fear stop you.  I know it is tough but, we have to be tougher.  Keep your chin up and know you always have someone to talk to that truley understands.

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    • karen
      September 22, 2009
      karen
      September 22, 2009

      Thanks so much!!!! You keep your chin up as well..God Bless

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    • Mary O
      November 22, 2011
      Mary O
      November 22, 2011

      I was diagnosed in August 2011 with MS and started copaxone in September 2011 I have had some weight gain but I can't be for sure if it's because of that or the meds for depression right now. Before being diagnosed I went for months with the numbness and tingling in my legs and feet, having trouble walking, seeing and falling alot. I couldn't even walk upstairs without falling and it continued until eventually I fell and broke a bone in my hand going upstairs. Finally, my doctor sent me to a neurologist who ordered a battery of test including MRI's. This is when when he and another neurologist who view the MRI's determined that I had MS. It has been a rollercoster battle for me because there are still days when I struggle to move around and the therapy can be so painful on days that I hate to even take it but know I must or it will get worse. Hopefully it will get better with time and it will like second nature to me.

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    • rich
      June 29, 2012
      rich
      June 29, 2012

      i been on copaxen for 2 years now.im very weak in the legs and have ed will this cause me to have ed

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  • mammabear May 19, 2010
    mammabear
    September 14, 2009

    I too have been gaining weight, which absolutely scares the heck out of me. I have had my stomach done twice and the last time was so painful, that I will never do it again, so I just cant gain. I have went from 340 to 203 now back after rebiff and copaxone now 220 Im terrified. I possibly eat at the wrong times, but on the Avonex I kept maintaining or losing, now the scale is going the wrong way, YIKES! I think I have read that Rebiff and Copaxone cause some weight gain, and of course steriods will cause weight gain for most, however I lost on the steriods, go figure... Now the battle on two problems continue, yeah... Im going to start jotting down everything that goes in my mouth, to keep track of calories, Im also enemic, so I have been craving ice, and red meat. Im also going to try and do my wii fit or walk more again to see if it helps and not eat anything after 7pm nightly. I will see, hopefully this works.

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  • donna May 13, 2010
    donna
    September 14, 2009

    me too....what to do??

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  • Katia April 07, 2010
    Katia
    September 14, 2009

    I have been on Copaxone for about a year and I have noticed weight gain myself. I do not excerise like I should which I am starting water aerobics at the end of the month, but geez.. I do watch what I eat.. but I do lay around. :-(

     

    I am hoping with the water aerobics I will see a change!! I need to lose weight, eek!

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    • karen
      April 07, 2010
      karen
      April 07, 2010

      Now that the weathers nice ive been trying to get out and walk when i can. I sure miss the days when I could do aerobics and things like that. Its hard to loose the weight when u cant excercise like you should. But we gotta keep trying:) best of luck with water aerobics, that sounds fun!

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    • Katia
      April 10, 2010
      Katia
      April 10, 2010

      So... the million dollar question is..... Does Copaxone make you gain weight? Or is it the disease itself? Smile

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    • karen
      April 10, 2010
      karen
      April 10, 2010

      I actually think its a little of both. I know for me Im not as able to be as active as I used to and that has added on some of the pounds. I also dont always make the best food choices. So alot of it is my fault but I am trying to get better at both my diet and excercise. I do think that the Copaxone makes the weight gain happen quicker.... i dont know its hard to say guess we just gotta do the best we can with what we gotSmile

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    • Katia
      April 11, 2010
      Katia
      April 11, 2010

      Well... to be honest, I do not make the best food choices either. Laughing And.. to be honest.. I hate to excerise! And now that I need it the most, it's harder for me. As I suffer fatigue.  I work the usual 8-5 and by the time I come home I do not want to do anything and on the weekends, I love to just relax...take naps & watch movies!!

       

      But as I said, at the end of the month I am going to start the water aerobics, so hopefully that will help. I feel that is the best excerise because you are in the deep end and you are in water so you will not get hot, plus you are working the full body. Smile

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    • karen
      April 11, 2010
      karen
      April 11, 2010

      I only work 3 days a week and that takes alot out of me. I need to rest alot of the weekend too and that irritates me! So much needs done around the house and theres so much I want to do just dont have the energy. Im sure not what I used to be. Oh well. I have been trying to walk as much as I can on my days off. I love to walk outside and I try to walk with a friend so we get talking and I forgot im walking. Sometimes that backfires when I walk to long and my legs ache. I think your water aerobics will be great!

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    • Sandy
      June 25, 2012
      Sandy
      June 25, 2012

      From my experience I think its the disease and not the Copaxone . When Im determined to lose the weight I can but when I sit around and dwell on all of the problems that I have I gain the weight back . Im 62 years old and more than likely have had this disease since I was in my late 20s . I have severe pain , bowel and bladder problems , left side weakness , drop foot and up until a month ago couldnt go anyplace with out my walker . My husband of 47 years died this past July which made things worse . My 2 daughters got me up and out of the house working at a gym with a personal trainer lifting weights etc. I no longer need the walker and the weight is coming off . Everyone is different and Copaxone may cause weight gain in some people but I have to honestly say that any weight that I gained was due to lack of exercise and over eating . Copaxone is the safest drug to take for MS .

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  • kttwinsred November 22, 2011
    kttwinsred
    September 14, 2009

    Wow I haven't been on here in forever!!  Well I also haven't been on the Copaxone in even longer, I could not handle the side effects. not just weight gain but so many others, the FDA website has a list I experienced so many but more so my flare up didn't slow down so I went to Avonex. I developed a spinal lesion and more brain lesions. Things have moved very fast the past this Jan will be 3 yrs. My last spinal tap was a combination of things. I have been taken off the Avonex and put on Immuran and things continued with my spinal lesion growing so I am now on Cell Cept. Well I think things have stopped growng or multiplying anyway....ughhh. My Docs are 90% looking at NMO ( also known as Devic's Disease) www.orpha.net is a great website to find information on orphan diseases. The symptoms are the same as MS. I still raise money for the National MS Society for the Walk. My prayer is that with one great advancement towards a treatment for Devic's Disease it may mean a GREAT leap for MS or even a CURE!!! I still encourage each of you to fight!! LIVE LAUGH AND LOVE like there is no tomorrow. life is like a cloud; it may be here one minute and gone the next, it may have a silver lining, it may not, it may let the sun shine and it may be gray, and we all know it pours, but we can-and do make it thru!! My heart and prayers are out there with you, I am there with each struggled step, each ache and pain, each tear, each smile, laugh, and each fall to in your heart help you up!!  Some may say this is life....HUGS!!!

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    • Tired with kids
      April 17, 2012
      Tired with kids
      April 17, 2012

      I just happened upon this site as I feel like I have gained a lot of weight.  Some may be due to the MS and inactivity but thought some may be from the Copaxone or Ampyra that I have been on since July 2010.  I wanted to get some opinions.   I get on kicks to eat healthy, but also just eat from pitying myself at times.  I feel it is ok to have a personal pity party every now and again as long as I don't stay there.  (Plus, there's no cake at that party)  I have DVDs for yoga and chair exercises, but haven't even started them.  I was (am still in my heart) a teacher and so I try to volunteer at my son's school (where I taught) at least a couple of days a week.  This gets me moving and back with friends that know, love, and support me.  This is great for my psyche!!  With 3 kiddos 6th grade and below, I am POOPED!!  My down time (nap) is right before they get home from school. Luckily I have a daughter that likes to help with dinner.  My husband IS AWESOME!!  I do feel guilty for not helping more, but he is a real trooper! (In sickness and in health) It's hard to get my kids to understand, but they try.  My husband and I have noticed that I seem to not do well even with the copaxone.  I don't know if it is the drug or the disease. During the prognosis I was told that I already had a lot of lesions.  I have read  the other comments about other drugs but didn't want the other 3 w/ flulike symptoms and depression, etc. 3 young kids doesn't give me time for that.  Does anyone know if the other 3 drugs have something Shared Solutions that would pay the co-pay? We are all beautiful, STRONG, AND LOVED!!!!!     Hang in and keep the faith!!   Praying for a cure in our lifetime!!                                                                 

       

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    • Tired with kids
      April 17, 2012
      Tired with kids
      April 17, 2012

      I just happened upon this site as I feel like I have gained a lot of weight.  Some may be due to the MS and inactivity but thought some may be from the Copaxone or Ampyra that I have been on since July 2010.  I wanted to get some opinions.   I get on kicks to eat healthy, but also just eat from pitying myself at times.  I feel it is ok to have a personal pity party every now and again as long as I don't stay there.  (Plus, there's no cake at that party)  I have DVDs for yoga and chair exercises, but haven't even started them.  I was (am still in my heart) a teacher and so I try to volunteer at my son's school (where I taught) at least a couple of days a week.  This gets me moving and back with friends that know, love, and support me.  This is great for my psyche!!  With 3 kiddos 6th grade and below, I am POOPED!!  My down time (nap) is right before they get home from school. Luckily I have a daughter that likes to help with dinner.  My husband IS AWESOME!!  I do feel guilty for not helping more, but he is a real trooper! (In sickness and in health) It's hard to get my kids to understand, but they try.  My husband and I have noticed that I seem to not do well even with the copaxone.  I don't know if it is the drug or the disease. During the prognosis I was told that I already had a lot of lesions.  I have read  the other comments about other drugs but didn't want the other 3 w/ flulike symptoms and depression, etc. 3 young kids doesn't give me time for that.  Does anyone know if the other 3 drugs have something Shared Solutions that would pay the co-pay? We are all beautiful, STRONG, AND LOVED!!!!!     Hang in and keep the faith!!   Praying for a cure in our lifetime!!                                                                 

       

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  • Mark July 26, 2010
    Mark
    September 14, 2009

    When you visit your neurologist ask him/her to do a TSH. That is a blood test that will tell what your Thyroid Stimulating Hormone is reading. That is way too much of a weight gain in way too short of a time frame. There may be a underlying condition that needs  to be addressed as soon as posssible. Your thyroid is a major control of most of your body. And can be very serious should it malfunction, as yours maybe doing. Most of the time a Med. such as levoxyl  will be perscribed. There is a good chance you may be suffering from Hyperthyroidism. This would explain such a rapid weight gain in short amount of time. Good luck. Please let us know how you made out this is Interesting, and would like to hear the findings. Mark

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  • A querky MS Gal! July 23, 2010
    A querky MS Gal!
    September 14, 2009

    yes i have so far gained a whopping 25 lbs ...im so miserable     i am taking copaxone  also     anyone have any help advice

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  • karen April 27, 2013
    karen
    September 14, 2009

    I have been on Copaxone for 5 months and gained about 10 pounds so far. I dont seem to eat anymore than before either. I had to go up a pant size. It is like being on a steroid. I know we need it, but I dont like this at all!!!

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  • Gayla July 09, 2012
    Gayla
    September 14, 2009

    I have been on Copaxone for a little over 3 years I never thought about it causing weight gain. We eat very health, exerice at least 3 days a week but the scale is going up for me as well. In fact my husband has lost weight. Not sure what to think....

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  • Barb March 09, 2012
    Barb
    September 14, 2009

    I was on avonex and no weight gain till i was put on copaxone.  I hate it................Went gtom 103 to 121

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  • shari September 24, 2011
    shari
    September 14, 2009

    Hi! I just went off Copaxone and was told it doesn't make you gain weight. I gained and was on it. Who knows?

     

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  • jami August 14, 2011
    jami
    September 14, 2009

    I was the same way as you all.  I was on Copaxone for 2.5 months and gained 12lbs.  With no change to diet or exercise. I hated this medicine as it also caused other issues with my body.  I stopped taking it 3 months ago and the weight will not come off!  I used to be in fitness competitions and I know how to diet down.. with all my efforts the weight will not come off.  I am wondering if the medication gives some sort of metabolic damage?  How long does this stay in your system?  I'm tired of working out every day, and dieting and NOT gettng results.  If I would have known this from the beginning I would have not choosen this DMD.  I now take Low Dose Neltrexone and I feel AMAZING!!  All of my MS symptoms gone.. POOF in one week! 

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  • Rebecca Emery July 01, 2011
    Rebecca Emery
    September 14, 2009

    Hi, my name is Rebecca. I have been on Copaxone for three years now and have experienced weight gain and adema. I finally gote so fed up that I stopped taking my medicine about two months ago. I realize that my decision won't be very popular. However, fluid retention can have real bad side effects on the heart. I hope to one day be on something that is as effective without the side effects.

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  • Colleen March 22, 2011
    Colleen
    September 14, 2009

    YES!!!! I've been taking Copaxone for a year now and have put on 20+ pounds from it. I talked to my dr about it but he thought it was unlikely since the side effect percentage is only 3%. But it's the only thing that's changed in my life since being diagnosed with MS last year. I still eat the same, work out the same, EVERYTHING is the same except for the Copaxone. Are ALL MS therapies like this? Do they all cause such weight gain?

     

    Has anyone who gained weight while on the Copaxone been able to LOSE the weight, whether still on it or not??? And if so, how??

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    • Cathy
      March 23, 2011
      Cathy
      Health Guide
      March 23, 2011

      Hi Colleen,

       

      At 52 years old, losing weight is SO hard.  I have had MS for 25 years, been on Copaxone for 15 years, and yo-yo between what I weigh all the time.  I think the combination of genetics and not being able to work out the same as I used to (heavy legs, numbness, fatigue) has something to do with it.  I never noticed whether Copaxone was the culprit.  I feel that all of my issues combined don't help!  I am now on Weight Watchers - a "way of life" - and the pounds are dropping s-l-o-w-l-y!!!  But I am losing, so I am sticking with it.  I am re-learning portion control (I ate healthfully with no white sugar, lots of fruits and veggies, organic produce and fish, etc.)  Hope this helps!  Let me know if you have any other questions.

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    • P Grace-Farfaglia
      April 20, 2011
      P Grace-Farfaglia
      April 20, 2011

      I am a Registered Dietitian and was diagnosed in 2006. I was on Rebif for 6 months and then switched to Copaxone. I've gained 20 pounds, even though I go to Zumba 3-4 times a week and have cut back on portions. I had the CCSVI venoplasty last January and felt better than I have since my 20's. My vision, hearing and energy came back. I had an abscess in a tooth and a secondary upper respiratory infection. Then I started with thyroid symptoms...I am waiting for the lab results and my second ultrasound. I meet with my neurologist next week. I think it's time to switch to another disease modifying drug. Copaxone use has a higher rate of thyroid disease.

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  • Pam
    Pam
    February 07, 2011
    Pam
    Pam
    September 14, 2009

    Ok this was posted 1 1/2 years ago but...ummm YEAH...I was diagnosed in June of 2010 and I am on Copaxone. At the same time I was diagnosed with ciliac so I am gluten free as well...eating really well. I have gained 25 pounds since then...HELP!!! ANYONE???????

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  • Sue Ellen January 30, 2011
    Sue Ellen
    September 14, 2009

    I have been on copaxone for over two years.  Luckily I was diagnosed early, March 2008, and have only had two relapses, the last was in January 2010.  I was doing really well with weight loss and exercise when I was diagnosed.  It wasn't until I started copaxone that my body would not respond to exercise and diet.  I have gained over 25 pounds and I am heartbroken.  No one will listen to me.  I have had my thyroid checked as recently as this past summer.  The doctors say I am not eating right, not exercising enough or something.  That is not true.  I feel very fortunate that I am able to still be as active as I was before diagnosis.  I am currently in a boot camp 3 days a week, on off days I get in at least 60 minutes of vigorous cardio workouts with one day of rest in a 7 day week.  When the weather is nice I cycle outdoors 30-40 miles each ride.  And this is not new to my life.  My daily fitness has been at his level for almost 2 years.  I journal my food and beverage intake, I drink well over 100 oz of water each day yet, I continue to gain.  It is getting worse.  I can't think that it is anything else than the copaxone.  It is rediculous! 

     

    I started taking almost 4000 units daily of vitamin D3 in the fall.  I have read where this is helpful with MS.  I am scared to consider stopping the copaxone as I have only had 2 relapses and the first was right after I started the copaxone so the copzxone had not really started working yet.  The second relapse was not severe either.  Do I take a chance and stop therapy, continue to exercise, eat right, hopefully lose weight and run the risk of of losing mobility or my vision again?  I just don't know what to do but I do know that I am miserable at 5 feet tall and 175 pounds.  It is even worse knowing how hard I work EVERY day to stay fit and lose weight.  Is there another therapy that will not cause so much problem with weight gain and difficulty to lose?  While I have struggled with my weight all my life I know I can lose weight but something is getting in the way.  I have never worked as hard as I am now and it seems to be getting worse.  Any words of advice?

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    • karen
      January 30, 2011
      karen
      January 30, 2011

      Wow you really work out! Good for you. It does seem crazy with that program and eating healthy that you arent loosing weight. I would have to think it has to be the Copaxone. Im not at all saying you should stop taking it though, thats between you and your Dr. Im no longer taking Copaxone(its been about 5 months).I didnt stop b/c of the weight gain, I developed an allergy to it. So when I got off it I thought the weight would just magically disappear! Didnt happen that way:) I finally have decided that the weight is not going to come off unless I make it! Im now following weight watchers and working out the best I can. I cant say Ive seen results yet(its only been a week) I do feel good! Im gonna keep it up. Will keep ya posted. Oh and I havent had any relapses without the meds..(praise God) I have a MRI next month so Im praying for no new lesions. I would love to beable to continue with no meds. I wish you lots of luck as you decide what is best for you to do. Let me know:) Karen

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    • Melroche
      April 15, 2013
      Melroche
      April 15, 2013

      Was wondering if you ended up going off copaxone and focusing on diet and exercise for treatment? I want to do this and I am wondering how people make out long-term. 

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    • Sue Ellen
      April 15, 2013
      Sue Ellen
      April 15, 2013

      Hi, I actually went off copaxone in May of 2011 and started tysabri. I began progressing and my Dr. changed things up. I actually gained another 15 pounds once starting the new therapy. I am beginning to think that it also has a lot to with the steroids we have to take from time to time whenever there is a flareup. I think it really messes with our metabolism. And of course I am in my mid 40s so that does not help either. However, in about 7 months I went from pulling myself up the stairs at night to training for my first half marathon. A year after starting my new therapy I ran the entire race "Diva half marathon in N Myrtle Beach, SC", without walking or stopping! It was a magnificent feeling. I didn't lose much weight either. I may have dropped that extra 15 pounds but have stayed this weight and nothing has changed. I am still exericising 5-6 times a week, running, cycling, boot camp twice a week...I am frustrated but at the same time not willing to change or stop my therapy. I feel so normal! There are days that I completely forget that I have MS. This threapy has been such a blessing for not only me but my family as well. It has now been two years this May and I have been told with three negative JC virus tests I can stay on this therapy indefinitely, as long as my JC tests continue to be negative and I have no progression. I am still on a quest to lose weight. I have given up wheat and try to eat more protein and veggies and fruit, more than even before. I no longer eat anything from a bag or box, trying to keep things as clean as possible. We actually ordered a vitamixer this weekend so this may also help with cleaner eating. I will keep you posted and let you know if the food changes make any difference. I do feel a lot better without the wheat. Rice bread is pretty awful but when you toast it with a little yogurt spread it is tolerable. I eat a ton of brocolli and brussel sprouts as well as apples and almonds. I try to stay away from peanut butter and dairy as much as possible. We will see. I will not give up but I have decided that I prefer moving. And if that means staying on this therapy, taking steroids when necessary and being a bit overweight, well, the choice is easy. I will just continue to strive for a healthier lifestyle, experiencing "imperfect progress" while moving everyday!

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    • Melroche
      April 15, 2013
      Melroche
      April 15, 2013

      Thank you for your prompt reply! I am a bit confused...are you still taking the Tysabri or did your DR. take you off because you began progressing.  If so - what is the name of the therapy you currently take?  Congrats on the marathon!! Wow.  It is DEF the steroids that causes the weight gain...I gained over 60 lbs after having my first infusion. :(  I do not eat anything that comes out of a box either..I was on Rebif for 8 years and I had adverse reactions the entire time which we actually thought was my MS.  My husband and I moved and I got a new neurologist who recognized this right away and stopped the Rebif immediately.  I did however get to be off treatment for several months and felt better than I have felt since my diagnosis.  The copaxone site reactions are ridiculous and I am getting scars that will be there forever all over my body (each arm, legs, stomach).  It's so painful and I think I just have needle fatgue...everyday giving needles is so aweful when they are this painful.  If nothing more I need a break.  I would like to talk to someone with relapsing remitting who has stopped treatment and decided to either treat holistically or with diet alone.  I was diagnosed on my 25th birthday and I am now 34 - so I have officially had MS for 9 years but I had symptoms long before diagnosis.  I have relapsing remitting and my condition has been stable (knock on wood).  I am not sure I want to be a guinea pig putting god knows what into my body while they try to understand this disease.  I have learned so much about food and GMOs and fats and allergens...it's all so confusing because "what if" what if the medicine is the reason my condition has been stable and not because I have relapsing remitting and changed my diet :/ That is why I reached out to you...you seemed to be in a similar state of mind back when you left that post.  Thank you for your time and good luck and good health to you in the future. 

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    • Sue Ellen
      April 15, 2013
      Sue Ellen
      April 15, 2013

      Sorry that I was not clear.  I am currently on Tysabri.  I do not plan to stop unless it is recommended or if I ever become JC positive.  My sister, however, has MS and has been diagnosed two years longer than I have. Like us she has RRMS and she has never used any therapy. She is vegan.  She has had some progression and pretty bad flare ups in the last year.  She is pretty adamant about not using drugs though.  My infusion nurse and doctor do not think it too wise.  As you know, MS is silent.  Once we get into our fifties and beyond the damage that has quietly occurred will eventually rear its ugly head and that damage is beyond repair.  I am of the mind set to use a therapy that works for me but at the same time keep a pretty strict diet and vigorous exercise protocol.  You are so young and have so much of life ahead of you.  I encourage you to consider researching tysabri.  It may not be for you but it is worth researching.  I have a wonderful doctor who is considered the North Carolina Guru of MS and has had tremendous succes with his MS patients. In fact, two years ago when I went to make the final decision to switch, I had my father, a very, very conservative physician, go with me and he was not against my decision to start.  In fact, he asked my Dr. if he would consider using tysabri as a first line defense for RRMS and my Dr. said yes, as long as everyone was in agreement and the JC tests had been completed. 

      Just the other week i went in for my monthly infusion of Tysabri and there was a girl there that was getting her 5th infusion.  I saw her at her first, she could barely walk with a walker, had significant cognitive and speech delays and was only in her 20's.  She is a mother of two very young boys, 5 and 6months, and my heart was broken for her and her family.  However, just this month she came in, without her walker and her cognitive abilities and speech were much improved.  It was absolutely amazing and I just cried with her in thanksgiving for her and her improvements.  It was a beautiful thing to see, her moving towards a more normal existance.

      I would highly encourage you to research this and talk to your doctor.  I have no side effects other than the one day each monthy I take it.  No, pain, no site injection problems, no scarring.   I embrace my infusion day... sleep it off, taking the entire day just for me.  I will take one yucky day a month with 28 beautiful days over a lifetime of struggles, relapses and progression.  The day of my infusions I am very, very tired, achy and get a headache.  I feel almost flu like.  These days my husband either takes us out for dinner or I do a crock pot meal.  drinking lots of water two to three days ahead has seemed to lessen the headaches and fatigue on the day of infusion.  Its all good.  I am just so grateful to have been given the option of tysabri.

      As of last April, my MRI showed zero progression after 11 months on the drug.  I am scheduled for my next MRI next Tuesday and pray that things are the same, thanks to tysabri.  I will keep you posted.

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    • Melroche
      April 15, 2013
      Melroche
      April 15, 2013

      Food for thought..I would like it if you would keep me posted.  I have looked into tysabri..it sounded scary to me.  I have a history of bad reactions with medicine.  Pretty much every drug I've taken I get the random adverse affects that only effect a few.  I'm scared to try something infused in such a quantity.  As for gylania (sp) it would be great to take something orally but I also have GERD and IBS lol so they don't recommend for people with gastrointestinal issues.  I have done the interferons...and I don't want IM's...copaxone isn't causing ms symptoms or flu feeling but it's painful and leaving scars and injection reaction that last for days..Food is something I can control...I just don't know.

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  • Tina January 21, 2011
    Tina
    September 14, 2009

    I have been on Copaxone since July 2006. In the first 4 months I gained 40 lbs. I had an episode Dec. 2006, was on IV steriods for 5 days and then prednisone for 21 days and gained another 15 lbs.  I have had 2 more episodes requiring IV steriods and prednisone since, each time gaining a little more weight.  Losing weight is the heardest thing while on these drugs, to top it off I am an insulin dependent diabetic.  I have learned to just concentrate on staying healthy and as active as I can.  I have a great support system (none of which have MS) and my husband and children.  Nobody wants to gain weight but at the same time this drug is helping us to reduce the problems/issues of having MS.  I hope you the best with your treatment and health.

     

    Tina

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    • karen
      January 21, 2011
      karen
      January 21, 2011

      Thanks Tina, I must say its a little reassuring to know im not the only one going through this. The weight gain is hard to deal with but so would limited mobility or some of the other things that could happen with MS. Im trying to eat healthier not just for my weight but for my health and im trying not to be as focused on the weight gain and just try to be healthy. Karen

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  • Marianne January 17, 2011
    Marianne
    September 14, 2009

    I was also on Avonex for 3 years and now on Copaxone for 2 months now. I gained most of my weight while on Avonex. I weighed 143 after released from Hospital in May 2007 started on Avonex June 2007 and thats when I started putting on the weight wasn't eating anymore than I use to do but the exercise has slowed down. Now I weight 170 and its making me depressed and causing alot of stress. Now I think I have ulcers sick all the time,  I feel nauseous all the time, eat alot of mint candy seems to take the nauseous away for a short time. I eat alot of mint candy or chew double mint gum. Any ideas how to lose the weigh?

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  • Lazzzzy January 12, 2011
    Lazzzzy
    September 14, 2009

    yes! Can't get an answer from my Doctor..All he says is cut down on eating or I'm not eating right.

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    • Rebecca Emery
      July 01, 2011
      Rebecca Emery
      July 01, 2011

      I got so sick and tired of my Neurologist and his attitude like he knows more than the rest of the world. the last time I was in the hospital he told me he thought I was experiencing psychosomatic effects. I never went back to him again and it was then that I stopped taking my Copaxone all together. That was two months ago. Its bad enough to be sick. it is even worse to let someone who you trust treat you like an ass.

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    • Mary O
      November 22, 2011
      Mary O
      November 22, 2011

      I know this is a little off beat but before I was diagnosed I would tell my significant other about the different things I was experiencing and how I felt on a daily basis not to mention how it wasn't improving. Well at first he thought I was just wining and that I had become as he said "lazy". He has since then apologized and has become supportive but it is the worse when you trust someone and they treat you like an ass.

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