Hi M2, I take Provigil, but as for me and I can only speak for me;, it stops working as well. But my nuero told me this would happen. I started out with one pill at day half in the morning then the other half around 1:00 p.m. Now I have moved up to one pill in the morning and one in the afternoon. Sometimes I just take the one in the morning. It is the one that works best. The pills are 200ms each. Others hve been telling me about some vitamins that I am going to take, so you might want to try that route along with the Provigil. I hope this helps. sherry/smomdukes
The trials really don't show any consistent benefit for medications in fatigue, which is really not surprising. Fatigue is a complex interplay of physical effects of chronic nervous system inflammation with emotional responses and psychological effects, particularly in association with depression. Fatigue is really a multi-faceted feature, and it responds best to a whole-of-lifestyle approach to the disease, using diet, exercise, vitamin D and sunlight, meditation, and stress reduction. The many many hundreds of people I know who are following this approach generally report that fatigue is much less of a problem, and for many, it disappears altogether. See www.takingcontrolofmultiplesclerosis.org.
Cylert and generic pemoline were great drugs. There were a couple of liver failures but none in MS patients. Millions of children took this drug for ADHD. Conservative pressure, among other things, and it was pulled from the market as well as it's generic, pemoline.
Leading some, like me, to feel robbed of the choice benefits.
There is also dextroamphetamine, with many restrictions on the prescription and not quite the same benefits of Cylert.
Too bad leveler heads did not prevail. Now we all pay the price of a few and our rights were diminished.
Carolyn
Hi there everyone!
I am writing to tell you there is hope in the here and now! My doctor who is always keeping up on the newest things, got all excited about this drug. It's called Amantadine. I take 200 mg. 2X a day. At first my heart felt a little like I was on some kind of upper, and after a week of this bare minimum side effect, I'm awake again!!! I feel so normal, so alive and so vital. It is defiitely worth asking your Dr. about!
Next stop for me is, Baclofen pump instead of baclofen pills! That will make all the difference in my exhaustion too.
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Hi Sherry,
I tried the Provigil. It didn't do all that much. What about Vit D3? Hasn't that given you more energy? It does for me. I'm taking around 2400 - 3200 IU daily spread out through the day. I think it helps my energy.
Stay strong. Feel good.
Energizing hugs to all,
Maris